This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

A compilation of the proceedings from a symposium of the same name as the book. Topics include: access to information; Internet ethics and free speech; the ethics of electronic information in China today; privacy and the Internet; copyright; and regulation of information and Internet commerce.

Stephen Almagno’s career as a professor of library science began at the University of Pittsburgh in 1971. In 1990, he became the first professor in the United States to teach an information ethics course in a library and information science program. Almagno’s work in the area of information ethics was recognized at the 2001 “Ethics of Electronic Information in the 21st Century” symposium held at the University of Memphis on October 18–21, 2001, upon the occasion of his retirement from the University of Pittsburgh. The essays in this book were presented at the symposium honoring Almagno. The first section of the book features papers that pay special tribute to Almagno. The second contains papers on library issues and ethics, such as the ethics of electronic information in China and eastern Europe, the organizations that represent information professionals, the ethics of user privacy in the digital library, and ethical implications of e-commerce, to name just a few. The third section covers topical issues, such as Internet plagiarism, ethical hacking and the security justification, social democracy and information media policy, and the ethics of dialogue, among others.

This textbook provides an introduction to the social and policy issues which have arisen as a result of information technology. Whilst it assumes a modest familiarity with computers, its aim is to provide a guide to the issues suitable for undergraduates. In doing so, the author prompts the students to consider questions such as: "What are the moral codes of cyberspace?" Throughout, the book shows how in many ways the technological development is outpacing the ability of our legal systems to keep up, and how different paradigms applied to ethical questions may often offer conflicting conclusions. As a result students will find this to be a thought-provoking and valuable survey.

Ethics in Information Technology, Second Edition is a timely offering with updated and brand new coverage of topical issues that we encounter in the news every day such as file sharing, infringement of intellectual property, security risks, Internet crime, identity theft, employee surveillance, privacy, and compliance.

This collection of essays explores the ethical issues that arise when information technology seems to exceed and even contradict the purpose of its creators. The studies focus upon the management of information technology, specifically the Internet, considering the most ethical ways of generating, using, and controlling information technology in our time. Section One includes essays pertaining to Africa’s place in the 21st century, including democracy, information flow, connections with the world through the Internet, telecommunications, Uganda and the digital divide, and an examination of a pilot study in South Africa for developing a universal tool to measure information poverty. The essays of Section Two cover topical library issues, such as professional information organizations and their ethic codes, communicating ethics when teaching electronic research to undergraduates, pay-for-placement search engines, consumer health information services, laws applying to confidentiality of library records, privacy control after September 11, cybercrime investigation, and the technologies protecting copyright. The essays were originally presented at the “Ethics of Electronic Information in the 21st Century” symposium held at the University of Memphis on October 24-27, 2002. Each includes references and helpful Internet resources.

Rapid technological advancement has given rise to new ethical dilemmas and security threats, while the development of appropriate ethical codes and security measures fail to keep pace, which makes the education of computer users and professionals crucial. The Encyclopedia of Information Ethics and Security is an original, comprehensive reference source on ethical and security issues relating to the latest technologies. Covering a wide range of themes, this valuable reference tool includes topics such as computer crime, information warfare, privacy, surveillance, intellectual property and education. This encyclopedia is a useful tool for students, academics, and professionals.

This handbook provides an accessible overview of the most important issues in information and computer ethics. It covers: foundational issues and methodological frameworks; theoretical issues affecting property, privacy, anonymity, and security; professional issues and the information-related professions; responsibility issues and risk assessment; regulatory issues and challenges; access and equity issues. Each chapter explains and evaluates the central positions and arguments on the respective issues, and ends with a bibliography that identifies the most important supplements available on the topic.