This book highlights that the capacity for gathering, analysing, and utilising vast amounts of digital (user) data raises significant ethical issues. Annika Richterich provides a systematic contemporary overview of the field of critical data studies that reflects on practices of digital data collection and analysis. The book assesses in detail one big data research area: biomedical studies, focused on epidemiological surveillance. Specific case studies explore how big data have been used in academic work. The Big Data Agenda concludes that the use of big data in research urgently needs to be considered from the vantage point of ethics and social justice. Drawing upon discourse ethics and critical data studies, Richterich argues that entanglements between big data research and technology/ internet corporations have emerged. In consequence, more opportunities for discussing and negotiating emerging research practices and their implications for societal values are needed.

As the impact of data science continues to grow on society there is an increased need to discuss how data is appropriately used and how to address misuse. Yet, ethical principles for working with data have been available for decades. The real issue today is how to put those principles into action. With this report, authors Mike Loukides, Hilary Mason, and DJ Patil examine practical ways for making ethical data standards part of your work every day. To help you consider all of possible ramifications of your work on data projects, this report includes: A sample checklist that you can adapt for your own procedures Five framing guidelines (the Five C’s) for building data products: consent, clarity, consistency, control, and consequences Suggestions for building ethics into your data-driven culture Now is the time to invest in a deliberate practice of data ethics, for better products, better teams, and better outcomes. Get a copy of this report and learn what it takes to do good data science today.

Explores and develops a framework for the ethical practice of name authority control, through theoretical and practice-based essays, stories, content analyses, and other methods

A practical guide to reform of the regulatory environment for access to government held data for research.

Linked Data for Digital Humanities provides insights into how digital technologies can enrich and diversify humanities scholarship and make it pioneering in the digital age. Written in non-specialist language, the book illustrates how information is captured, published, represented, accessed, and interpreted using computational systems and, in doing so, shows how technologies actively shape the way we understand what we encounter. Focusing as it does on underlying Web architecture and projects accessible online, the book has an inherently international focus. The interdisciplinary case study examples include bibliographic data from works published in England between 1470 and 1700; literature from ancient Iraq; jazz performances, predominantly from the USA in the 1930s; and even reach as far as an alien, fictional future. Whilst these case study examples span vast spatio-temporal distances, they all share a common thread in the use of the Linked Data information publication paradigm. Using existing computer science methods, as well as processes such as ontology development and database design, the book also includes reflections on practical considerations and offers advice about how to take institutional policies, socio-cultural sensitivities, and economic models into consideration when implementing Linked Data projects. Linked Data for Digital Humanities discusses technological issues in the context of Humanities scholarship, bridging disciplines and enabling informed conversations across disciplinary boundaries. It will be of interest to humanities scholars, computer and data scientists, and library and information scientists.

This book presents cutting edge research on the new ethical challenges posed by biomedical Big Data technologies and practices. ‘Biomedical Big Data’ refers to the analysis of aggregated, very large datasets to improve medical knowledge and clinical care. The book describes the ethical problems posed by aggregation of biomedical datasets and re-use/re-purposing of data, in areas such as privacy, consent, professionalism, power relationships, and ethical governance of Big Data platforms. Approaches and methods are discussed that can be used to address these problems to achieve the appropriate balance between the social goods of biomedical Big Data research and the safety and privacy of individuals. Seventeen original contributions analyse the ethical, social and related policy implications of the analysis and curation of biomedical Big Data, written by leading experts in the areas of biomedical research, medical and technology ethics, privacy, governance and data protection. The book advances our understanding of the ethical conundrums posed by biomedical Big Data, and shows how practitioners and policy-makers can address these issues going forward.

The Oxford Textbook of Clinical Research Ethics is the first comprehensive and systematic reference on clinical research ethics. Under the editorship of experts from the U.S. National Institutes of Health of the United States, the book's 73 chapters offer a wide-ranging and systematic examination of all aspects of research with human beings. Considering the historical triumphs of research as well as its tragedies, the textbook provides a framework for analyzing the ethical aspects of research studies with human beings. Through both conceptual analysis and systematic reviews of empirical data, the contributors examine issues ranging from scientific validity, fair subject selection, risk benefit ratio, independent review, and informed consent to focused consideration of international research ethics, conflicts of interests, and other aspects of responsible conduct of research. The editors of The Oxford Textbook of Clinical Research Ethics offer a work that critically assesses and advances scholarship in the field of human subjects research. Comprehensive in scope and depth, this book will be a crucial resource for researchers in the medical sciences, as well as teachers and students.

This handbook brings together a range of global perspectives in the field of critical studies in education to illuminate multiple ways of knowing, learning, and teaching for social wellbeing, justice, and sustainability. The handbook covers areas such as critical thought systems of education, critical race (and racialization) theories of education, critical international/global citizenship education, and critical studies in education and literacy studies. In each section, the chapter authors illuminate the current state of the field and probe more inclusive ways to achieve multicentric knowledge and learning possibilities.