Unfitting Stories: Narrative Approaches to Disease, Disability, and Trauma illustrates how stories about ill health and suffering have been produced and received from a variety of perspectives. Bringing together the work of Canadian researchers, health professionals, and people with lived experiences of disease, disability, or trauma, it addresses central issues about authority in medical and personal narratives and the value of cross- or interdisciplinary research in understanding such experiences. The book considers the aesthetic dimensions of health-related stories with literary readings that look at how personal accounts of disease, disability, and trauma are crafted by writers and filmmakers into published works. Topics range from psychiatric hospitalization and aestheticizing cancer, to father-daughter incest in film. The collection also deals with the therapeutic or transformative effect of stories with essays about men, sport, and spinal cord injury; narrative teaching at L’Arche (a faith-based network of communities inclusive of people with developmental disabilities); and the construction of a “schizophrenic” identity. A final section examines the polemical functions of narrative, directing attention to the professional and political contexts within which stories are constructed and exchanged. Topics include ableist limits on self-narration; drug addiction and the disease model; and narratives of trauma and Aboriginal post-secondary students. Unfitting Stories is essential reading for researchers using narrative methods or materials, for teachers, students, and professionals working in the field of health services, and for concerned consumers of the health care system. It deals with practical problems relevant to policy-makers as well as theoretical issues of interest to specialists in bioethics, gender analysis, and narrative theory. Read the chapter “Social Trauma and Serial Autobiography: Healing and Beyond” by Bina Freiwald on the Concordia University Library Spectrum Research Repository website.

Organized around a metaphor of an academic journey, D. Jean Clandinin offers published tracings of an unfolding journey over 40 years that, at its outset, appeared to focus only on questions of epistemology. However, the book illuminates how that apparent beginning focus shape-shifted to questions of methodology, ethics, ontology, and subsequently, political concerns. Clandinin shows that, even at the outset, her research wonders were grounded in relational understandings of experience, understandings that were simultaneously ontological, methodological, epistemological and ethical. Jean’s work is collaborative, an engagement alongside others and within the contexts in which they and she lived and worked, including those who were participants in the research. She continues to acknowledge that narrative inquiry changes people’s ways of being in the world, and those changes have ethical significance. While what she and her colleagues now call relational ethics has always been central, recently her sense of ethics has become more explicitly political. She shows the development of ideas over time, beginning as she entered doctoral work and continuing through 2019 and onward. Jean’s work, centered on relational understandings of experience, highlights ethical dimensions, and has come to define narrative understandings for generations of researchers. This book will be an invaluable resource for researchers and graduate students, and professional researchers in both educational and healthcare settings. .

Since the early 1990s, tens of thousands of memoirs by celebrities and unknown people have been published, sold, and read by millions of American readers. The memoir boom, as the explosion of memoirs on the market has come to be called, has been welcomed, vilified, and dismissed in the popular press. But is there really a boom in memoir production in the United States? If so, what is causing it? Are memoirs all written by narcissistic hacks for an unthinking public, or do they indicate a growing need to understand world events through personal experiences? This study seeks to answer these questions by examining memoir as an industrial product like other products, something that publishers and booksellers help to create. These popular texts become part of mass culture, where they are connected to public events. The genre of memoir, and even genre itself, ceases to be an empty classification category and becomes part of social action and consumer culture at the same time. From James Frey’s controversial A Million Little Pieces to memoirs about bartending, Iran, the liberation of Dachau, computer hacking, and the impact of 9/11, this book argues that the memoir boom is more than a publishing trend. It is becoming the way American readers try to understand major events in terms of individual experiences. The memoir boom is one of the ways that citizenship as a category of belonging between private and public spheres is now articulated.

The Deceitful Onion Bulb. A Blessing to Smuggle. The Conjuror of Rain. In this collection of stories as whimsical as their titles, award-winning author Olesia Nikolaeva poignantly recounts life for Christian believers in Soviet and post-Soviet Russia. In a manner reminiscent of the bestselling Everyday Saints these tales reveal a common theme - the subtle, sometimes imperceptible movement of Divine Providence at work in the lives of saints and sinners alike. Her writings bring us to what the ancient Celts called "thin places" where the boundaries of heaven and earth meet and the sacred and the secular can no longer be distinguished.

This book uses both oral and conventional historical methods to describe and analyze the history of lung transplantation in the US. While drawing on accounts from doctors and other specialists, it primarily focuses on the experiences of patients and explores themes of uncertainty, timing, identity, coping, and quality of life.

This text is a valuable resource for clinicians who work with clients dealing with non-death, nonfinite, and ambiguous losses in their lives. It explores adjustment to change, transition, and loss from the perspective of the latest thinking in bereavement theory and research. The specific and unique aspects of different types of loss are discussed, such as infertility, aging, chronic illnesses and degenerative conditions, divorce and separation, immigration, adoption, loss of beliefs, and loss of employment. Harris and the contributing authors consider these from an experiential perspective, rather than a developmental one, in order to focus on the key elements of each loss as it may be experienced at any point in the lifespan. Concepts related to adaptation and coping with loss, such as resilience, hardiness, meaning making and the assumptive world, transcendence, and post traumatic growth are considered as part of the integration of loss into everyday life experience.

Up until fairly recently, memory used to be mainly considered within the frames of the nation and related mechanisms of group identity. Building on mechanisms of inclusion and exclusion, this form of memory focused on the event as a central category of meaning making. Taking its cue from a number of Anglophone novels, this book examines the indeterminate traces of memories in literary texts that are not overtly concerned with memory but still latently informed by the past. More concretely, it analyzes novels that do not directly address memories and do not focus on the event as a central meaning making category. Relegating memory to the realm of the latent, that is the not-directly-graspable dimensions of a text, the novels that this book analyses withdraw from overt memory discourses and create new ways of re-membering that refigure the temporal tripartite of past, present and future and negotiate what is ‘memorable’ in the first place. Combining the analysis of the novels’ overall structure with close readings of selected passages, this book links latency as a mode of memory with the productive agency of formal literary devices that work both on the micro and macro level, activating readers to challenge their learned ways of reading for memory.

In the second half of the eighteenth century, celebrated Swiss physician Samuel Auguste Tissot (1728-1797) received over 1,200 medical consultation letters from across Europe and beyond. Written by individuals seeking respite from a range of ailments, these letters offer valuable insight into the nature of physical suffering. Plaintive, desperate, querulous, fearful, frustrated, and sometimes arrogant and self-interested in tone, the letters to Tissot not only express the struggle of individuals to understand the body and its workings, but also reveal the close connections between embodiment and politics. Through the process of writing letters to describe their ailments, the correspondents created textual versions of themselves, articulating identities shaped by their physical experiences. Using these identities and experiences as examples, Sonja Boon argues that the complaints voiced in the letters were intimately linked to broader social and political discourses of citizenship in the late eighteenth century, a period beset with concerns about depopulation, moral depravity, and corporeal excess, and organized around intricate rules of propriety. Contributing to the fields of literary criticism, history, gender and sexuality studies, and history of medicine, Telling the Flesh establishes a compelling argument about the connections between health, politics, and identity.

Drawing on the controversial case of “Ashley X,” a girl with severe developmental disabilities who received interventionist medical treatment to limit her growth and keep her body forever small—a procedure now known as the “Ashley Treatment”—Reconsidering Intellectual Disability explores important questions at the intersection of disability theory, Christian moral theology, and bioethics. What are the biomedical boundaries of acceptable treatment for those not able to give informed consent? Who gets to decide when a patient cannot communicate their desires and needs? Should we accept the dominance of a form of medicine that identifies those with intellectual impairments as pathological objects in need of the normalizing bodily manipulations of technological medicine? In a critical exploration of contemporary disability theory, Jason Reimer Greig contends that L'Arche, a federation of faith communities made up of people with and without intellectual disabilities, provides an alternative response to the predominant bioethical worldview that sees disability as a problem to be solved. Reconsidering Intellectual Disability shows how a focus on Christian theological tradition’s moral thinking and practice of friendship with God offers a way to free not only people with intellectual disabilities but all people from the objectifying gaze of modern medicine. L'Arche draws inspiration from Jesus's solidarity with the "least of these" and a commitment to Christian friendship that sees people with profound cognitive disabilities not as anomalous objects of pity but as fellow friends of God. This vital act of social recognition opens the way to understanding the disabled not as objects to be fixed but as teachers whose lives can transform others and open a new way of being human.

Adopted Women and Biological Fathers offers a critical and deconstructive challenge to the dominant notions of adoptive identity. The author explores adoptive women’s experiences of meeting their biological fathers and reflects on personal narratives to give an authoritative overview of both the field of adoption and the specific history of adoption reunion. This book takes as its focus the narratives of 14 adopted women, as well as the partly fictionalised story of the author and examines their experiences of birth father reunion in an attempt to dissect the ways in which we understand adoptive female subjectivity through a psychosocial lens. Opening a space for thinking about the role of the discursively neglected biological father, this book exposes the enigmatic dimensions of this figure and how telling the relational story of 'reconciliation' might be used to complicate wider categories of subjective completeness, belonging, and truth. This book attempts to subvert the culturally normative unifying system of the mother-child bond, and prompts the reader to think about what the biological father might represent and how his role in relation to adoptive female subjects may be understood. This book will be essential reading for those in critical psychology, gender studies, narrative work, sociology and psychosocial studies, as well as appealing to anyone interested in adoption issues and female subjectivity.