The first serious, extended effort to use a human rights-based approach to address the scientific issues affecting society and the often-neglected human right to science.

Since the discovery of the structure of DNA and the birth of the genetic age, a powerful vocabulary has emerged to express science’s growing command over the matter of life. Armed with knowledge of the code that governs all living things, biology and biotechnology are poised to edit, even rewrite, the texts of life to correct nature’s mistakes. Yet, how far should the capacity to manipulate what life is at the molecular level authorize science to define what life is for? This book looks at flash points in law, politics, ethics, and culture to argue that science’s promises of perfectibility have gone too far. Science may have editorial control over the material elements of life, but it does not supersede the languages of sense-making that have helped define human values across millennia: the meanings of autonomy, integrity, and privacy; the bonds of kinship, family, and society; and the place of humans in nature.

“An engaging, insightful, and challenging call to examine both the rhetoric and reality of innovation and inclusion in science and science policy.” —Daniel R. Morrison, American Journal of Sociology Stem cell research has sparked controversy and heated debate since the first human stem cell line was derived in 1998. Too frequently these debates devolve to simple judgments—good or bad, life-saving medicine or bioethical nightmare, symbol of human ingenuity or our fall from grace—ignoring the people affected. With this book, Ruha Benjamin moves the terms of debate to focus on the shifting relationship between science and society, on the people who benefit—or don’t—from regenerative medicine and what this says about our democratic commitments to an equitable society. People’s Science uncovers the tension between scientific innovation and social equality, taking the reader inside California’s 2004 stem cell initiative, the first of many state referenda on scientific research, to consider the lives it has affected. Benjamin reveals the promise and peril of public participation in science, illuminating issues of race, disability, gender, and socio-economic class that serve to define certain groups as more or less deserving in their political aims and biomedical hopes. Ultimately, Ruha Benjamin argues that without more deliberate consideration about how scientific initiatives can and should reflect a wider array of social concerns, stem cell research—from African Americans’ struggle with sickle cell treatment to the recruitment of women as tissue donors—still risks excluding many. Even as regenerative medicine is described as a participatory science for the people, Benjamin asks us to consider if “the people” ultimately reflects our democratic ideals.

Explores the Christian Right’s fierce opposition to science, explaining how and why its leaders came to see scientific truths as their enemy For decades, the Christian Right’s high-profile clashes with science have made national headlines. From attempts to insert intelligent design creationism into public schools to climate change denial, efforts to “cure” gay people through conversion therapy, and opposition to stem cell research, the Christian Right has battled against science. How did this hostility begin and, more importantly, why has it endured? Antony Alumkal provides a comprehensive background on the war on science—how it developed and why it will continue to endure. Drawing upon Richard Hofstadter’s influential 1965 essay “The Paranoid Style in American Politics,” Antony Alumkal argues that the Christian Right adopts a similar paranoid style in their approach to science. Alumkal demonstrates that Christian Right leaders see conspiracies within the scientific establishment, with scientists not only peddling fraudulent information, but actively concealing their true motives from the American public and threatening to destroy the moral foundation of society. By rejecting science, Christian Right leaders create their own alternative reality, one that does not challenge their literal reading of the Bible. While Alumkal recognizes the many evangelicals who oppose the Christian Right’s agenda, he also highlights the consequences of the war on reality—both for the evangelical community and the broader American public. A compelling glimpse into the heart of the Christian Right’s anti-science agenda, Paranoid Science is a must-read for those who hope to understand the Christian Right’s battle against science, and for the scientists and educators who wish to stop it.

The advent of the CRISPR/Cas9 class of genome editing tools is transforming not just science and medicine, but also law. When the genome of germline cells is modified, the modifications could be inherited, with far-reaching effects in time and scale. Legal systems are struggling with keeping up with the CRISPR revolution and both lawyers and scientists are often confused about existing regulations. This book contains an analysis of the national regulatory framework in eighteen selected countries. Written by national legal experts, it includes all major players in bioengineering, plus an analysis of the emerging international standards and a discussion of how international human rights standards should inform national and international regulatory frameworks. The authors propose a set of principles for the regulation of germline engineering, based on international human rights law, that can be the foundation for regulating heritable gene editing both at the level of countries as well as globally.

Why the social character of scientific knowledge makes it trustworthy Are doctors right when they tell us vaccines are safe? Should we take climate experts at their word when they warn us about the perils of global warming? Why should we trust science when so many of our political leaders don't? Naomi Oreskes offers a bold and compelling defense of science, revealing why the social character of scientific knowledge is its greatest strength—and the greatest reason we can trust it. Tracing the history and philosophy of science from the late nineteenth century to today, this timely and provocative book features a new preface by Oreskes and critical responses by climate experts Ottmar Edenhofer and Martin Kowarsch, political scientist Jon Krosnick, philosopher of science Marc Lange, and science historian Susan Lindee, as well as a foreword by political theorist Stephen Macedo.

One of the pathways by which the scientific community confirms the validity of a new scientific discovery is by repeating the research that produced it. When a scientific effort fails to independently confirm the computations or results of a previous study, some fear that it may be a symptom of a lack of rigor in science, while others argue that such an observed inconsistency can be an important precursor to new discovery. Concerns about reproducibility and replicability have been expressed in both scientific and popular media. As these concerns came to light, Congress requested that the National Academies of Sciences, Engineering, and Medicine conduct a study to assess the extent of issues related to reproducibility and replicability and to offer recommendations for improving rigor and transparency in scientific research. Reproducibility and Replicability in Science defines reproducibility and replicability and examines the factors that may lead to non-reproducibility and non-replicability in research. Unlike the typical expectation of reproducibility between two computations, expectations about replicability are more nuanced, and in some cases a lack of replicability can aid the process of scientific discovery. This report provides recommendations to researchers, academic institutions, journals, and funders on steps they can take to improve reproducibility and replicability in science.

This guidebook is essential reading for all professionals in the field.

The imperative of happiness dictates the conduct and direction of our lives. There is no escape from the tyranny of positivity. But is happiness the supreme good that all of us should pursue? So says a new breed of so-called happiness experts, with positive psychologists, happiness economists and self-development gurus at the forefront. With the support of influential institutions and multinational corporations, these self-proclaimed experts now tell us what governmental policies to apply, what educational interventions to make and what changes we must undertake in order to lead more successful, more meaningful and healthier lives. With a healthy scepticism, this book documents the powerful social impact of the science and industry of happiness, arguing that the neoliberal alliance between psychologists, economists and self-development gurus has given rise to a new and oppressive form of government and control in which happiness has been woven into the very fabric of power.

U.S. Congresswoman Degette weighs in just prior to the 2008 presidential election on the persistent absurdity of the Bush administration in its efforts to politicize sex, and looks at the conservative agenda as it relates to bioethics and scientific research.