This report follows on from an earlier JRF project on childhood disability, which described a minimum budget standard that parents thought necessary to raise a severely disabled child. This book describes the actual spending patterns of parents with severely disabled children and presents a detailed examination of the costs involved.

Decades of research have demonstrated that the parent-child dyad and the environment of the familyâ€"which includes all primary caregiversâ€"are at the foundation of children's well- being and healthy development. From birth, children are learning and rely on parents and the other caregivers in their lives to protect and care for them. The impact of parents may never be greater than during the earliest years of life, when a child's brain is rapidly developing and when nearly all of her or his experiences are created and shaped by parents and the family environment. Parents help children build and refine their knowledge and skills, charting a trajectory for their health and well-being during childhood and beyond. The experience of parenting also impacts parents themselves. For instance, parenting can enrich and give focus to parents' lives; generate stress or calm; and create any number of emotions, including feelings of happiness, sadness, fulfillment, and anger. Parenting of young children today takes place in the context of significant ongoing developments. These include: a rapidly growing body of science on early childhood, increases in funding for programs and services for families, changing demographics of the U.S. population, and greater diversity of family structure. Additionally, parenting is increasingly being shaped by technology and increased access to information about parenting. Parenting Matters identifies parenting knowledge, attitudes, and practices associated with positive developmental outcomes in children ages 0-8; universal/preventive and targeted strategies used in a variety of settings that have been effective with parents of young children and that support the identified knowledge, attitudes, and practices; and barriers to and facilitators for parents' use of practices that lead to healthy child outcomes as well as their participation in effective programs and services. This report makes recommendations directed at an array of stakeholders, for promoting the wide-scale adoption of effective programs and services for parents and on areas that warrant further research to inform policy and practice. It is meant to serve as a roadmap for the future of parenting policy, research, and practice in the United States.

Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.

This handbook is the first comprehensive text on positive psychology and disability. Emphasizing paradigmatic changes in understanding disability, the text covers traditional disciplines in positive psychology; and applications of positive psychology to domains like education or work.

This path-breaking international handbook of disability studies signals the emergence of a vital new area of scholarship, social policy and activism. Drawing on the insights of disability scholars around the world and the creative advice of an international editorial board, the book engages the reader in the critical issues and debates framing disability studies and places them in an historical and cultural context. Five years in the making, this one volume summarizes the ongoing discourse ranging across continents and traditional academic disciplines. To provide insight and perspective, the volume is divided into three sections: The shaping of disability studies as a field; experiencing disability; and, disability in context. Each section, written by world class figures, consists of original chapters designed to map the field and explore the key conceptual, theoretical, methodological, practice and policy issues that constitute the field. Each chapter provides a critical review of an area, positions and literature and an agenda for future research and practice. The handbook answers the need expressed by the disability community for a thought provoking, interdisciplinary, international examination of the vibrant field of disability studies. The book will be of interest to disabled people, scholars, policy makers and activists alike. The book aims to define the existing field, stimulate future debate, encourage respectful discourse between different interest groups and move the field a step forward.

Over the last forty years, the number of American households with a stay-at-home parent has dwindled as women have increasingly joined the paid workforce and more women raise children alone. Many policy makers feared these changes would come at the expense of time mothers spend with their children. In Changing Rhythms of American Family Life, sociologists Suzanne M. Bianchi, John P. Robinson, and Melissa Milkie analyze the way families spend their time and uncover surprising new findings about how Americans are balancing the demands of work and family. Using time diary data from surveys of American parents over the last four decades, Changing Rhythms of American Family Life finds that—despite increased workloads outside of the home—mothers today spend at least as much time interacting with their children as mothers did decades ago—and perhaps even more. Unexpectedly, the authors find mothers' time at work has not resulted in an overall decline in sleep or leisure time. Rather, mothers have made time for both work and family by sacrificing time spent doing housework and by increased "multitasking." Changing Rhythms of American Family Life finds that the total workload (in and out of the home) for employed parents is high for both sexes, with employed mothers averaging five hours more per week than employed fathers and almost nineteen hours more per week than homemaker mothers. Comparing average workloads of fathers with all mothers—both those in the paid workforce and homemakers—the authors find that there is gender equality in total workloads, as there has been since 1965. Overall, it appears that Americans have adapted to changing circumstances to ensure that they preserve their family time and provide adequately for their children. Changing Rhythms of American Family Life explodes many of the popular misconceptions about how Americans balance work and family. Though the iconic image of the American mother has changed from a docile homemaker to a frenzied, sleepless working mom, this important new volume demonstrates that the time mothers spend with their families has remained steady throughout the decades.

Today, a third of American children are born outside of marriage, up from one child in twenty in the 1950s, and rates are even higher among low-income Americans. Many herald this trend as one of the most troubling of our time. But the decline in marriage does not necessarily signal the demise of the two parent family—over 80 percent of unmarried couples are still romantically involved when their child is born and nearly half are living together. Most claim they plan to marry eventually. Yet half have broken up by their child's third birthday. What keeps some couples together and what tears others apart? After a breakup, how do fathers so often disappear from their children's lives? An intimate portrait of the challenges of partnering and parenting in these families, Unmarried Couples with Children presents a variety of unique findings. Most of the pregnancies were not explicitly planned, but some couples feel having a child is the natural course of a serious relationship. Many of the parents are living with their child plus the mother's child from a previous relationship. When the father also has children from a previous relationship, his visits to see them at their mother's house often cause his current partner to be jealous. Breakups are more often driven by sexual infidelity or conflict than economic problems. After couples break up, many fathers complain they are shut out, especially when the mother has a new partner. For their part, mothers claim to limit dads' access to their children because of their involvement with crime, drugs, or other dangers. For couples living together with their child several years after the birth, marriage remains an aspiration, but something couples are resolutely unwilling to enter without the financial stability they see as a sine qua non of marriage. They also hold marriage to a high relational standard, and not enough emotional attention from their partners is women's number one complaint. Unmarried Couples with Children is a landmark study of the family lives of nearly fifty American children born outside of a marital union at the dawn of the twenty-first century. Based on personal narratives gathered from both mothers and fathers over the first four years of their children's lives, and told partly in the couples' own words, the story begins before the child is conceived, takes the reader through the tumultuous months of pregnancy to the moment of birth, and on through the child's fourth birthday. It captures in rich detail the complex relationship dynamics and powerful social forces that derail the plans of so many unmarried parents. The volume injects some much-needed reality into the national discussion about family values, and reveals that the issues are more complex than our political discourse suggests.

The strengths and abilities children develop from infancy through adolescence are crucial for their physical, emotional, and cognitive growth, which in turn help them to achieve success in school and to become responsible, economically self-sufficient, and healthy adults. Capable, responsible, and healthy adults are clearly the foundation of a well-functioning and prosperous society, yet America's future is not as secure as it could be because millions of American children live in families with incomes below the poverty line. A wealth of evidence suggests that a lack of adequate economic resources for families with children compromises these children's ability to grow and achieve adult success, hurting them and the broader society. A Roadmap to Reducing Child Poverty reviews the research on linkages between child poverty and child well-being, and analyzes the poverty-reducing effects of major assistance programs directed at children and families. This report also provides policy and program recommendations for reducing the number of children living in poverty in the United States by half within 10 years.

First published in 1987, this book focuses on childhood disability within the family. It examines the very nature of disability itself, as well as many of the fundamental elements of families. The book was written at a time when the meaning level of disability and its effect on family and society were rapidly changing and people with disabilities were starting to benefit from opportunities to compensate for whatever disabilities they may have had. Modern technology and an affluent society afforded advantages to support many of its disabled members. Contributors examine the contemporary context of disability, the cost of disability to families, ethical, philosophical and social issues underlying the treatment and rehabilitation of children with severe disabilities, and the role of professionals, amongst other topics. This book will be of interest to those involved in teaching, research and direct care with families who have children with disabilities. Although written in the late 80s, the work discusses subjects that are still vital today.