From one of America's most celebrated psychiatrists, the book that has taught generations of healers why healing the sick is about more than just diagnosing their illness. Modern medicine treats sick patients like broken machines -- figure out what is physically wrong, fix it, and send the patient on their way. But humans are not machines. When we are ill, we experience our illness: we become scared, distressed, tired, weary. Our illnesses are not just biological conditions, but human ones. It was Arthur Kleinman, a Harvard psychiatrist and anthropologist, who saw this truth when most of his fellow doctors did not. Based on decades of clinical experience studying and treating chronic illness, The Illness Narratives makes a case for interpreting the illness experience of patients as a core feature of doctoring. Before Being Mortal, there was The Illness Narratives. It remains today a prescient and passionate case for bridging the gap between patient and practitioner.

For most of literary history, personal confessions about illness were considered too intimate to share publicly. By the mid-twentieth century, however, a series of events set the stage for the emergence of the illness narrative. The increase of chronic disease, the transformation of medicine into big business, the women's health movement, the AIDS/HIV pandemic, the advent of inexpensive paperbacks, and the rise of self-publishing all contributed to the proliferation of narratives about encounters with medicine and mortality. While the illness narrative is now a staple of the publishing industry, the genre itself has posed a problem for literary studies. What is the role of criticism in relation to personal accounts of suffering? Can these narratives be judged on aesthetic grounds? Are they a collective expression of the lost intimacy of the patient-doctor relationship? Is their function thus instrumental—to elicit the reader's empathy? To answer these questions, Ann Jurecic turns to major works on pain and suffering by Susan Sontag, Elaine Scarry, and Eve Sedgwick and reads these alongside illness narratives by Jean-Dominique Bauby, Reynolds Price, and Anne Fadiman, among others. In the process, she defines the subgenres of risk and pain narratives and explores a range of critical responses guided, alternately, by narrative empathy, the hermeneutics of suspicion, and the practice of reparative reading. Illness as Narrative seeks to draw wider attention to this form of life writing and to argue for new approaches to both literary criticism and teaching narrative. Jurecic calls for a practice that's both compassionate and critical. She asks that we consider why writers compose stories of illness, how readers receive them, and how both use these narratives to make meaning of human fragility and mortality.

Illness narratives have become a cultural phenomenon in the Western world. In what ways can they be seen to have aesthetic, ethical and political value? What do they reveal about experiences of illness, the relationship between the body and identity and the role of the arts in bearing witness to illness for people who are ill and those connected to them? How can they influence medicine, the arts and shape public understandings of health and illness? These questions and more are explored in Illness as Many Narratives, which contains readings of a rich array of representations of illness from the 1980s to the present. A wide range of arts and media are considered such as life writing, photography, performance, film, theatre, artists' books and animation. The individual chapters deploy multidisciplinary critical frameworks and discuss physical and mental illness. Through reading this book you will gain an understanding of the complex contribution illness narratives make to contemporary culture and the emergent field of Critical Medical Humanities.

A moving memoir and an extraordinary love story that shows how an expert physician became a family caregiver and learned why care is so central to all our lives and yet is at risk in today's world. When Dr. Arthur Kleinman, an eminent Harvard psychiatrist and social anthropologist, began caring for his wife, Joan, after she was diagnosed with early-onset Alzheimer's disease, he found just how far the act of caregiving extended beyond the boundaries of medicine. In The Soul of Care: The Moral Education of a Husband and a Doctor, Kleinman delivers a deeply humane and inspiring story of his life in medicine and his marriage to Joan, and he describes the practical, emotional and moral aspects of caretaking. He also writes about the problems our society faces as medical technology advances and the cost of health care soars but caring for patients no longer seems important. Caregiving is long, hard, unglamorous work--at moments joyous, more often tedious, sometimes agonizing, but it is always rich in meaning. In the face of our current political indifference and the challenge to the health care system, he emphasizes how we must ask uncomfortable questions of ourselves, and of our doctors. To give care, to be "present" for someone who needs us, and to feel and show kindness are deep emotional and moral experiences, enactments of our core values. The practice of caregiving teaches us what is most important in life, and reveals the very heart of what it is to be human.

Comprehensive overview of illness narratives in practice, divided into eight distinct parts. The clear layout allows the readers to focus on the area essential to them and get a comprehensive overview and reflective stance of narratives in that field.

Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today

Narrative medicine emerged in response to a commodified health care system that places corporate and bureaucratic concerns over the needs of the patient. This book provides an introduction to the principles of narrative medicine and guidance for implementing narrative methods.

"A valuable collection. . . . The essays in the volume are all fresh, the result of recent work, and the opening chapter by Garro and Mattingly places the current trend in narrative analysis in historical context, explaining its diverse origins (and constructs) in a range of disciplines."—Shirley Lindenbaum, author of Kuru Sorcery "A good place to consult the narrative turn in medical anthropology. Thick with the richness and diversity and stubborn resistance to interpretations of human stories of illness. An anthropological antidote for too narrow a framing of the complex tangle of ways-of-being and ways-of-telling that make medicine a space of indelibly human experiences." —Arthur Kleinman, author of The Illness Narratives

This comprehensive book celebrates the coming of age of narrativein health care. It uses narrative to go beyond the patient's storyand address social, cultural, ethical, psychological,organizational and linguistic issues. This book has been written to help health professionals andsocial scientists to use narrative more effectively in theireveryday work and writing. The book is split into three, comprehensive sections;Narratives, Counter-narratives and Meta-narratives.

A collection of women's illness narratives Stories of Illness and Healing is the first collection to place the voices of women experiencing illness alongside analytical writing from prominent scholars in the field of narrative medicine. The collection includes a variety of women's illness narratives--poetry, essays, short fiction, short drama, analyses, and transcribed oral testimonies--as well as traditional analytic essays about themes and issues raised by the narratives. Stories of Illness and Healing bridges the artificial divide between women's lives and scholarship in gender, health, and medicine. The authors of these narratives are diverse in age, ethnicity, family situation, sexual orientation, and economic status. They are doctors, patients, spouses, mothers, daughters, activists, writers, educators, and performers. The narratives serve to acknowledge that women's illness experiences are more than their diseases, that they encompass their entire lives. The pages of this book echo with personal accounts of illness, diagnosis, and treatment. They reflect the social constructions of women's bodies, their experiences of sexuality and reproduction, and their roles as professional and family caregivers. Finally, and perhaps most importantly, Stories of Illness and Healing draws the connection between women's suffering and advocacy for women's lives.