This illustrated guide with contributions from carers and those who are ill, from around the world, is packed full of practical tips, insights, guides and self-reflective exercises designed to raise awareness of how to care for someone with Severe/Very Severe M.E. Greg Crowhurst PgDip, Cert Counselling, Dip Life Coaching, MA, who qualified as a Registered Nurse in 1984, has spent over two decades caring for his wife who has Very Severe ME. In 2015 he was a finalist in the prestigious BJN Nurse of the Year Award, receiving a certificate in Clinical Excellence in Nursing. Greg is the author of ""Severe ME featuring Justice for Karina Hansen"" widely acclaimed as a book of ""immense value"" in describing what it is like to ""live a life as and with someone who is severely stricken with the devastating disease Myalgic Encephalomyelitis.""

Essential information on the neurological disease M.E. sourced from the world's leading M.E. experts. Suitable for M.E. patients, their friends and family, partners, carers or doctors. The book includes a foreword by international M.E. expert Dr Byron Hyde. M.E.is a distinct neurological disease and is not at all the same thing as 'CFS.' Learning the facts is not time-consuming or complicated. Supporting your ill friend or family member or patient more fully by being aware of the basic facts of M.E. could make all the difference in the world to them. This book shows you how. Jodi Bassett is the founder of the international M.E. charity, HFME. Jodi contracted M.E. in 1995 when she was just 19. HFME contributors also aim to advocate for those non-M.E. patients who have been given the always meaningless 'CFS' diagnosis, and subsequently denied correct diagnosis and treatment.

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

"Nurses play a vital role in improving the safety and quality of patient car -- not only in the hospital or ambulatory treatment facility, but also of community-based care and the care performed by family members. Nurses need know what proven techniques and interventions they can use to enhance patient outcomes. To address this need, the Agency for Healthcare Research and Quality (AHRQ), with additional funding from the Robert Wood Johnson Foundation, has prepared this comprehensive, 1,400-page, handbook for nurses on patient safety and quality -- Patient Safety and Quality: An Evidence-Based Handbook for Nurses. (AHRQ Publication No. 08-0043)." - online AHRQ blurb, http://www.ahrq.gov/qual/nurseshdbk/

The Pocket Book is for use by doctors nurses and other health workers who are responsible for the care of young children at the first level referral hospitals. This second edition is based on evidence from several WHO updated and published clinical guidelines. It is for use in both inpatient and outpatient care in small hospitals with basic laboratory facilities and essential medicines. In some settings these guidelines can be used in any facilities where sick children are admitted for inpatient care. The Pocket Book is one of a series of documents and tools that support the Integrated Managem.

Based on many years of working with such people, many of whom have withdrawn into a world of their own, Phoebe Caldwell explores the different sensory reality they experience, showing it to be infinitely more complex and varied than is widely understood.

"Scouring the history of Native American boarding schools, nineteenth-century reformatories, and programs to Americanize immigrants, Glenn brilliantly reveals the role of coercion in caregiving. An important read for us all."---Arlie Hochschild, author of The Time Bind --

Myalgic encephalomyelitis (ME) and chronic fatigue syndrome (CFS) are serious, debilitating conditions that affect millions of people in the United States and around the world. ME/CFS can cause significant impairment and disability. Despite substantial efforts by researchers to better understand ME/CFS, there is no known cause or effective treatment. Diagnosing the disease remains a challenge, and patients often struggle with their illness for years before an identification is made. Some health care providers have been skeptical about the serious physiological - rather than psychological - nature of the illness. Once diagnosed, patients often complain of receiving hostility from their health care provider as well as being subjected to treatment strategies that exacerbate their symptoms. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome proposes new diagnostic clinical criteria for ME/CFS and a new term for the illness - systemic exertion intolerance disease(SEID). According to this report, the term myalgic encephalomyelitis does not accurately describe this illness, and the term chronic fatigue syndrome can result in trivialization and stigmatization for patients afflicted with this illness. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome stresses that SEID is a medical - not a psychiatric or psychological - illness. This report lists the major symptoms of SEID and recommends a diagnostic process.One of the report's most important conclusions is that a thorough history, physical examination, and targeted work-up are necessary and often sufficient for diagnosis. The new criteria will allow a large percentage of undiagnosed patients to receive an accurate diagnosis and appropriate care. Beyond Myalgic Encephalomyelitis/Chronic Fatigue Syndrome will be a valuable resource to promote the prompt diagnosis of patients with this complex, multisystem, and often devastating disorder; enhance public understanding; and provide a firm foundation for future improvements in diagnosis and treatment.

This paper is published alongside the Government white paper "Caring for our future: reforming care and support" (Cm. 8378, ISBN 9780101837828). The draft Bill takes forward the recommendations of the Law Commission report on adult social care (Law Com. 326, HC 941, session 2010-12, ISBN 9780102971682) which concluded that existing care and support legislation was outdated and confusing, making it difficult for people who need care and support, and carers, to know what they are entitled to and for local authorities to understand their responsibilities. The Bill will: modernise and consolidate the law, clarify entitlements; support broader needs of local communities; simplify the care and support system and processes. Key provisions include: statutory principles which embed the promotion of individual well-being; clear legal entitlements; everyone, including carers, should have a personal budget as part of their care and support plan; duties to ensure care and support continues when a person moves to a different local authority area; a new statutory framework for adult safeguarding. Others sections cover the establishment of Health Education England and the Health Research Authority, and allow for the abolition (subject to consultation) of the Human Fertilisation and Embryology Authority and Human Tissue Authority.

English for Carers (UCOC version)is a book which can be used in conjunction with online materials by carers, personal care assistants, nursing assistants and nurses who care for the elderly. A variety of common situations are presented, including end-of-life care. Dialogues are introduced using short YouTube cartoon videos with related practice activities. The book has a communication focus aimed at Pre-Intermediate Level (A2) Virginia Allum is a medical English author who has published several EFL/ESP books for nurses, nursing assistants and doctors. She is a practising Registered Nurse in the UK and has taught in a Diploma of Nurses and Aged Care Certificate in Australia. She is a co-author of both 'Cambridge English for Nursing' books as well as several online courses for nurses and healthcare assistants