Serious illness and mortality, those most universal, unavoidable, and frightening of human experiences, are the focus of this pioneering study which has been hailed as a telling and provocative commentary on our times. As modern medicine has become more scientific and dispassionate, a new literary genre has emerged: pathography, the personal narrative concerning illness, treatment, and sometimes death. Hawkins's sensitive reading of numerous pathographies highlights the assumptions, attitudes, and myths that people bring to the medical encounter. One factor emerges again and again in these case studies: the tendency in contemporary medical practice to focus primarily not on the needs of the individual who is sick but on the condition that we call disease. Pathography allows the individual person a voice-one that asserts the importance of the experiential side of illness, and thus restores the feeling, thinking, experiencing human being to the center of the medical enterprise. Recommended for medical practitioners, the clergy, caregivers, students of popular culture, and the general reader, Reconstructing Illness demonstrates that only when we hear both the doctor's and the patient's voice will we have a medicine that is truly human.

Bondspeople who fled from slavery during and after the Civil War did not expect that their flight toward freedom would lead to sickness, disease, suffering, and death. But the war produced the largest biological crisis of the nineteenth century, and as historian Jim Downs reveals in this groundbreaking volume, it had deadly consequences for hundreds of thousands of freed people. In Sick from Freedom, Downs recovers the untold story of one of the bitterest ironies in American history--that the emancipation of the slaves, seen as one of the great turning points in U.S. history, had devastating consequences for innumerable freed people. Drawing on massive new research into the records of the Medical Division of the Freedmen's Bureau-a nascent national health system that cared for more than one million freed slaves-he shows how the collapse of the plantation economy released a plague of lethal diseases. With emancipation, African Americans seized the chance to move, migrating as never before. But in their journey to freedom, they also encountered yellow fever, smallpox, cholera, dysentery, malnutrition, and exposure. To address this crisis, the Medical Division hired more than 120 physicians, establishing some forty underfinanced and understaffed hospitals scattered throughout the South, largely in response to medical emergencies. Downs shows that the goal of the Medical Division was to promote a healthy workforce, an aim which often excluded a wide range of freedpeople, including women, the elderly, the physically disabled, and children. Downs concludes by tracing how the Reconstruction policy was then implemented in the American West, where it was disastrously applied to Native Americans. The widespread medical calamity sparked by emancipation is an overlooked episode of the Civil War and its aftermath, poignantly revealed in Sick from Freedom.

`The summaries of evidence have provided ready-made challenges to previously unquestioned medical options ... the book provides a challenging update on the nature of scientific inquiry.' - British Journal of Clinical Psychology Despite nearly one hundred years of research, very little progress has been achieved in the understanding of schizophrenic behaviour. There remains considerable uncertainty even about the fundamental features of the hypothesised illness. Reconstructing Schizophrenia subjects the difficult concept of schizophrenia to rigorous scientific, historical and sociological scrutiny. They ask why a biological defect has been assumed in the absence of hard evidence and look at what can be done psychologically to alleviate schizophrenic symptoms. Finally, they explore what new models and research strategies are required in order to understand schizophrenic behaviour. The result is a book that provides a distinctive and critical perspective on modern psychiatric theories and which demonstrates the severe limitations of an exclusively medical approach to understanding madness.

Updated second edition: “A bold and imaginative book which moves our thinking about narratives of illness in new directions.” —Sociology of Heath and Illness Since it was first published in 1995, The Wounded Storyteller has occupied a unique place in the body of work on illness. A collective portrait of a so-called “remission society” of those who suffer from illness or disability, as well as a cogent analysis of their stories within a larger framework of narrative theory, Arthur W. Frank’s book has reached a large and diverse readership including the ill, medical professionals, and scholars of literary theory. Drawing on the work of such authors as Oliver Sacks, Anatole Broyard, Norman Cousins, and Audre Lorde, as well as from people he met during the years he spent among different illness groups, Frank recounts a stirring collection of illness stories, ranging from the well-known—Gilda Radner’s battle with ovarian cancer—to the private testimonials of people with cancer, chronic fatigue syndrome, and disabilities. Their stories are more than accounts of personal suffering: They abound with moral choices and point to a social ethic. In this new edition Frank adds a preface describing the personal and cultural times when the first edition was written. His new afterword extends the book’s argument significantly, discussing storytelling and experience, other modes of illness narration, and a version of hope that is both realistic and aspirational. Reflecting on his own life during the creation of the first edition and the conclusions of the book itself, he reminds us of the power of storytelling as way to understand our own suffering. “Arthur W. Frank’s second edition of The Wounded Storyteller provides instructions for use of this now-classic text in the study of illness narratives.” —Rita Charon, author of Narrative Medicine “Frank sees the value of illness narratives not so much in solving clinical conundrums as in addressing the question of how to live a good life.” —Christianity Today

During several decades, syntactic reconstruction has been more or less regarded as a bootless and an unsuccessful venture, not least due to the heavy criticism in the 1970s from scholars like Watkins, Jeffers, Lightfoot, etc. This fallacious view culminated in Lightfoot’s (2002: 625) conclusion: “[i]f somebody thinks that they can reconstruct grammars more successfully and in more widespread fashion, let them tell us their methods and show us their results. Then we’ll eat the pudding.” This volume provides methods for the identification of i) cognates in syntax, and ii) the directionality of syntactic change, showcasing the results in the introduction and eight articles. These examples are offered as both tastier and also more nourishing than the pudding Lightfoot had in mind when discarding the viability of reconstructing syntax.

As the body politics of life writing in the United States change, illness and disability memoirs receive considerable attention. Although these narratives are framed by a lack of health, they abundantly present health and do so beyond its binary relationship to the pathological. This book departs from previous scholarship by bringing into focus the writers' representations of cure, recovery, and healing as well as their reluctance to bring closure to their narratives and align their stories with traditional notions of health. These memoirs thus partake in the construction of alternative narratives of illness and disability.

First published in 2001. This is the first substantial reference work in English on the various forms that constitute "life writing." As this term suggests, the Encyclopedia explores not only autobiography and biography proper, but also letters, diaries, memoirs, family histories, case histories, and other ways in which individual lives have been recorded and structured. It includes entries on genres and subgenres, national and regional traditions from around the world, and important auto-biographical writers, as well as articles on related areas such as oral history, anthropology, testimonies, and the representation of life stories in non-verbal art forms.

The first full-length study to bring together the fields of Health Humanities and German studies, this book features contributions from a range of key scholars and provides an overview of the latest work being done at the intersection of these two disciplines. In addition to surveying the current critical terrain in unparalleled depth, it also explores future directions that these fields may take. Organized around seven sections representing key areas of focus for both disciplines, this book provides important new insights into the intersections between Health Humanities, German Studies, and other fields of inquiry that have been gaining prominence over the past decade in academic and public discourse. In their contributions, the authors engage with disability studies, critical race studies, gender/embodiment studies, trauma studies, as well as animal/environmental studies.

This volume explores cultural innovation and transformation as revealed through the emergence of new media genres. New media have enabled what impresses most observers as a dizzying proliferation of new forms of communicative interaction and cultural production, provoking multimodal experimentation, and artistic and entrepreneurial innovation. Working with the concept of genre, scholars in multiple fields have begun to explore these processes of emergence, innovation, and stabilization. Genre has thus become newly important in game studies, library and information science, film and media studies, applied linguistics, rhetoric, literature, and elsewhere. Understood as social recognitions that embed histories, ideologies, and contradictions, genres function as recurrent social actions, helping to constitute culture. Because genres are dynamic sites of tension between stability and change, they are also sites of inventive potential. Emerging Genres in New Media Environments brings together compelling papers from scholars in Brazil, Canada, England, and the United States to illustrate how this inventive potential has been harnessed around the world.

In general, the history of virtue theory is well-documented (Sherman, 1997; O’Neill, 1996). Its relationship to medicine is also recorded in our work and in that of others (Pellegrino and Thomasma, 1993b; 1996; Drane, 1994; Ellos, 1990). General publications stress the importance of training the young in virtuous practices. Still, the popularity of education in virtue is widely viewed as part of a conservative backlash to modern liberal society. Given the authorship of some of these works by professional conservatives like William Bennett (1993; 1995), this concern is authentic. One might correspondingly fear that greater adoption of virtue theory in medicine will be accompanied by a corresponding backward-looking social agenda. Worse yet, does reaffirmation of virtue theory lacquer over the many challenges of the postmodern world view as if these were not serious concerns? After all, recreating the past is the “retro” temptation of our times. Searching for greater certitude than we can now obtain preoccupies most thinkers today. One wishes for the old clarity and certitudes (Engelhardt, 1991). On the other hand, the same thinkers who yearn for the past, like Engelhardt sometimes seems to do, might stress the unyielding gulf between past and present that creates the postmodern reaction to all systems of Enlightenment thought (1996).