This volume grapples with the potentials and limitations of illness narratives as diverse cultural perceptions probe into those stories from literary, textual, empirical, ethnographic, historical, and personal bases.

This book is a scholarly collection of interdisciplinary perspectives and practices that examine the positive potential of attending to the voices and stories of those who live and work with illness in real world settings. Its international contributors offer case studies and research projects illustrating how illness can disrupt, highlight and transform themes in personal narratives, forcing the creation of new biographies. As exercises in narrative development and autonomy, the evolving content and expression of illness stories are crucial to our understanding of the lived experience of those confronting life changes. The international contributors to this volume demonstrate the importance of hearing, understanding and effectively liberating voices impacted by illness and change. Contributors include Tineke Abma, Peter Bray, Verusca Calabria, Agnes Elling, Deborah Freedman, Alexandra Fidyk, Justyna Jajszczok, Naomi Krüger, Annie McGregor, Pam Morrison, Miranda Quinney, Yomna Saber, Elena Sharratt, Victorria Simpson-Gervin, Hans T. Sternudd, Mirjam Stuij, Anja Tramper, Alison Ward and Jane Youell.

This volume highlights the importance of diverse voices and perspectives in understanding the history and heritage of psychiatry. Exploring the complex interrelations between psychiatry, heritage and power, Narrating the Heritage of Psychiatry complicates the pervasive biomedical narrative of progress in which the history of psychiatry is usually framed. By examining multiple perspectives, including those of users/survivors of mental health services, the collection sheds light on neglected narratives and aims to broaden our understanding of psychiatric history and current practices. In doing so, it also considers the role of art, activism, and community narratives in reimagining and recontextualizing psychiatric heritage. This volume brings into conversation perspectives from practitioners, patients/users and scholars from the humanities and social sciences.

This open access book focuses on institutions that were produced and formed by the emerging welfare state. How were institutions experienced by the people who interacted with them? How did institutions as sites of experience shape and structure people’s everyday lives? Histories of institutions have mainly focused on the structures and power relations produced by institutional settings. Likewise, despite an extensive historiography of the welfare state, reflections on individuals’ experiences of welfare are few. By using ‘lived institutions’ as its conceptual frame, this edited collection merges the fields of institutional studies, the history of the welfare state – and the novel and vibrant field of the history of experience.

Into the twenty-first century, millions of disabled people and people experiencing mental distress were segregated from the rest of society and confined to residential institutions. Deinstitutionalization – the closure of these sites and integration of former residents into the community – has become increasingly commonplace. But this project is unfinished. Sites of Conscience explores use of the concept of sites of conscience, which involves place-based memory activities such as walking tours, survivor-authored social histories, and performances and artistic works in or generated from sites of systemic suffering and injustice. These activities offer new ways to move forward from the unfinished deinstitutionalization project and its failures. Covering diverse national contexts, this volume proposes that acknowledging the memories and lived experiences of former residents – and keeping histories and social heritage of institutions alive rather than simply closing sites – holds the greatest potential for recognition, accountability, and action.

This book offers a general introduction to historical sources in the history of psychiatry, delving into the range of sources that can be used to investigate this dynamic and exciting field. The chapters in this volume deal with physical sources that might be encountered in the archive, such as asylum casebooks, artwork, material artefacts, post-mortem records, more general types of source including medical journals, literature, public enquiries, and key themes within the field such as feminist sources, activist and survivor sources. Offering practical advice and examples for the novice, as well as insightful suggestions for the experienced scholar, the authors provide worked-through examples of how various source types can be used and exploited and reflect productively on the limits and constraints of different kinds of source material. In so doing it presents readers with a comprehensive guide on how to ‘read’ such sources to research and write the history of psychiatry. Methodically rigorous, clear and accessible, this is a vital reference for students just starting out within the field through to more experienced scholars experimenting with new and unfamiliar sources in the history of medicine and history of psychiatry more specifically. Chapters 4, 8, 9, 10, and 13 of this book are available for free in PDF format as Open Access from the individual product page at www.routledge.com. They have been made available under a Creative Commons Attribution-Non Commercial-No Derivatives 4.0 license.

This book presents new perspectives on the multiplicity of voices in the histories of mental ill-health. In the thirty years since Roy Porter called on historians to lower their gaze so that they might better understand patient-doctor roles in the past, historians have sought to place the voices of previously silent, marginalised and disenfranchised individuals at the heart of their analyses. Today, the development of service-user groups and patient consultations have become an important feature of the debates and planning related to current approaches to prevention, care and treatment. This edited collection of interdisciplinary chapters offers new and innovative perspectives on mental health and illness in the past and covers a breadth of opinions, views, and interpretations from patients, practitioners, policy makers, family members and wider communities. Its chronology runs from the early modern period to the twenty-first century and includes international and transnational analyses from Europe, North America, Asia and Africa, drawing on a range of sources and methodologies including oral histories, material culture, and the built environment. Chapter 4 is available open access under a Creative Commons Attribution 4.0 International License via link.springer.com.

Comprehensive overview of illness narratives in practice, divided into eight distinct parts. The clear layout allows the readers to focus on the area essential to them and get a comprehensive overview and reflective stance of narratives in that field.

Our personalities and our identities are intimately bound up with the stories that we tell to organize and to make sense of our lives. To understand the human meaning of illness, we therefore must turn to the stories we tell about illness, suffering, and medical care. Stories of Sickness explores the many dimensions of what illness means to the sufferers and to those around them, drawing on depictions of illness in great works of literature and in nonfiction accounts. The exploration is primarily philosophical but incorporates approaches from literature and from the medical social sciences. When it was first published in 1987, Stories of Sickness helped to inaugurate a renewed interest in the importance of narrative studies in health care. For the Second Edition the text has been thoroughly revised and significantly expanded. Four almost entirely new chapters have been added on the nature, complexities, and rigor of narrative ethics and how it is carried out. There is also an additional chapter on maladaptive ways of being sick that deals in greater depth with disability issues. Health care professionals, students of medicine and bioethics, and ordinary people coping with illness, no less than scholars in the health care humanities and social sciences, will find much value in this volume.