Najja was born with Sickle Cell Anemia. At age 6 she was diagnosed with Stenosis of the Carotid Artery. When she was 11 she was struck with Moyamoya Disease, a rare neurological disease. At age 13 she underwent a bone marrow transplant that changed her life forever. This book will uplift and inspire you. It is a hopeful and encouraging story of a mother's undying love and devotion to a young daughter whose strength and courage living with multiple life threatening illnesses goes beyond her years. Kristin demonstrates amazing strength, hope and determination to fight for her daughter's life amid challenging health concerns. She and Najja, along with family prove that love truly conquers all. This book is a MUST read for any family or individual living with a life threatening illness; a perfect addition for any home library.

Living with and surviving Sickle cell disease is an autobiography written about the life of a girl who fights to survive a chronic illness that she was diagnosed with at birth. She lives her life in fear of dying from this horrific disease. Instead of giving up and letting the disease conquer her she chooses to take a stand and fight instead. She uses her experiences as motivation to write about what she has been through and inspire the lives of many people. The book offers many miraculous stories and different scenarios of ups and downs in her life. The book is very informational, educational, moving, and inspirational to anyone who is going through some of the same experiences and even those who are not. The book will no doubt leave a lasting impression about the author.

Sickle Cell Anemia is a horrible disease to an outsider looking in. However, to me, it is no different than any other life-threatening disease! The only difference is Sickle Cell Anemia does not get the much-needed recognition it truly deserves. People know little or nothing about the disease because it is not seen as important like other well-known diseases are. I personally have an issue with that problem because I have Sickle Cell Anemia, and I have always been a lifelong advocate for it! Sickle Cell Anemia has affected me as well as many of my family members. There are countless other people in the world who also suffer from Sickle Cell Anemia. I decided to write my personal story because living with this disease has been quite a challenging journey for me, from my childhood until my middle-aged years. I have had both some good days and some bad ones, but God has kept me. So, I won’t complain! I feel as if I’ve been on an emotional roller coaster that has taken me on some highs and lows. It seems like I have been on this ride a million times over, and it simply will not stop. Despite experiencing some periodic turbulence, I have still managed to have some great times on this roller coaster ride! Therefore, I can honestly say, “It’s okay! I’m going to ride this ‘til the wheels fall off.” Plus, I know God will never, ever give me or anyone else more than we can handle! I have also learned how to weather the storms over the years. Early on, I lived my life worried every day because I was told that I was going to die at the age of 17. Accordingly, I lived with that expectation until I surpassed that deadline. Ever since then, I have been living my life without the constant fear of dying at such a tender age. Life is precious, and I live each day to the fullest! Sickle Cell Anemia is only a part of me; it is not the total sum of who I am!

ABC's of Sickle Cell Disease is a top educational resource for children with sickle cell disease. Parents, caregivers, and healthcare workers should have the book on hand to help explain how the condition works within a child's body. A recommended children's book for ages 5-12. It breaks down terms and concepts for children diagnosed with Sickle Cell Disease (SCD). The author simplified the information so even a child could understand how this genetic blood disorder affects the body. The book is an excellent tool for parents, teachers, healthcare workers, or caregivers to teach children.healthcare workers ABC'S OF SICKLE CELL DISEASE FEATURES: Beautiful original illustrations―Children learn more about Sickle Cell Disease using the letters A to Z. Large 8.5 x 11-inch pages. Educational and interesting―Each page effectively describes the blood disorder to young patients. Made for diverse families―The pages feature children, adults, and medical professionals from different ethnic groups because sickle cell disease affects families from multicultural backgrounds worldwide. Positive and inspiring―The book is a positive keepsake that gives young sickle cell warriors a chance to boost their confidence and creativity.

I have learned a lot on my journey about strength and what it means to hold on to your faith. As a single mother of three, this journey of raising a child with Sickle Cell Anemia stretched me so thin that I nearly broke. Sickle cell disease is an inherited form of anemia where red blood cells become abnormally long and pointed, similar to the shape of a crescent moon. It affects approximately one out of every 365 African-American births in the United States and millions worldwide. But with prayer and a support system, we're making it. It pleases me to share my story of raising a family through the adversities of dealing with the sickle cell disease. With encouraging insights and information easy to comprehend, In The Midst of a Sickle Storm, will help you: -Navigate through the stress that a sickle storm causes not only for the "sickler" but for their families. -Build a healthier structure to handle when sickle cell crisis happens. -Learn medical terminology used so you aren't lost in translation during your doctor's visit. -Know essential steps to help your child cope with dealing with sickle cell. "Sickle Cell disease does not come with a manual, but it does come with a mother who never gives up!" Advocating for SCD until my last breath!! - Lillie Thomas Daugherty

Iam a Sickle Cell Survivor, Ten Years and still Counting narrates the raw, straight-from-the-source story of an 18-year-old Sickle Cell survivor recounting her medical journey from frequent hospital visits, multiple absences from school, as well as an almost unconscious pull to be rid of what genetic shackles are holding her back. And all her memories were formed from the innocent cradle of her mind from when she was only a child. At seven years of age when she received the bone marrow and cord blood stem cell transplant. Carol's story before and now 10 years after the procedure is nothing short of an incredible make-over. The innocence but depth of this spell-binding narrative is more than just an eye-opener to the intricate challenges of sickle cell anemia. Her story renders a human face to sickle cell anemia and is the welcome handbook during an encounter with the debilitating and almost always, a fatal disease.

Judy Gray was four when the pain first struck. As mysterious as it was excruciating, Judy's anguish confounded the local doctor, who advised her mother to apply liniment. It was not until Judy was a teenager that another doctor informed her aunt of the real cause of Judy's agony - something called sickle cell anemia. The social mores of that time, however, dictated that adults discussed nothing of substance with children. So Judy learned little about her ailment other than it could cause her to die. A frightened Judy simply put sickle cell disease out of her mind and suffered in silence as she went on with her life. Readers will follow Judy's journey through college, a teaching career, a short-lived marriage, and the raising of a daughter while enduring severe pain episodes. All the while, exhaustion was her constant companion. Living with Sickle Cell Disease: The Struggle to Survive is a story of Judy Gray Johnson's perseverance in the face of living with a little-understood chronic illness.

Alexia's World is about a little girl living with sickle cell disease. She is passionate and full of life. While she is aware of her limitations, she places no limits on herself. She is funny, creative, energetic, bold, authentic, kind and compassionate. Her mom, who also has the disease, is her hero and best friend. Together they form a formidable team. They focus on wellness to control the symptoms of the disease. Alexia and her mom also help other children living with the disease to thrive despite the disease. The book chronicles her journey living with sickle cell disease. She speaks about the ups and downs of her life, including the struggles her family faces navigating the healthcare system and the joy of finding what has helped to improve her health-related quality of life. Alexia now lives relatively symptom free.