What is the role of activists and civil society in defining and defending the collective good in healthcare, especially in cases where that good seems to be heavily shaped by market dynamics? Presenting conceptual and empirical studies from a variety of healthcare contexts and theoretical perspectives, this book addresses this vital question by drawing together multidisciplinary scholarship from Science and Technology Studies, Sociology, Organisation Studies, Marketing, Philosophy, and Public Health. Healthcare has undergone three major changes over the past decades: the advent of personalized medicine, the marketization of public care systems, and the digitalization of healthcare services. This book maps these changes and illustrates the extent to which they are interlinked to produce a seemingly unstoppable move toward individualization in healthcare. The book also highlights the tensions and challenges arising from these interlinkages, and traces how activists react to these tensions to argue for and defend the common good. It thus sketches a multifaceted picture of healthcare activism in the 21st century as civil society responds to these dynamics at the crossroads of markets and morals, economic and social justifications, individual and collective, and digital and non-digital worlds. Crucially, it also highlights potential solutions for heightening patient voices and broadening participation in healthcare markets in a post Covid-19 world.

Activism is action on behalf of a cause, action that goes beyond what is conventional or routine and is relative to the actions by others. Health activism is a growing area of interest for many who work to improve health at both national and international levels because it offers a more direct approach to achieve lasting social and political change. This book, for the first time, provides a clear foundation to the theory, evidence-base and strategies that can be harnessed to bring about change to improve the lives and health of others. For anyone working to improve the health of groups and communities, this will be thought-provoking reading. It has particular relevance for postgraduate students and practitioners in public health and health promotion.

Sick and Tired of Being Sick and Tired moves beyond the depiction of African Americans as mere recipients of aid or as victims of neglect and highlights the ways black health activists created public health programs and influenced public policy at every opportunity. Smith also sheds new light on the infamous Tuskegee syphilis experiment by situating it within the context of black public health activity, reminding us that public health work had oppressive as well as progressive consequences.

Praise for Improving Healthcare Through Advocacy A Guide for the Health and Helping Professions "Bruce Jansson's thoughtful and innovative book will appeal to students in social work, nursing, and public health as well as those working in the health field of practice. The case examples are extraordinary, and Jansson provides the ideas, context, and theoretical base for readers to acquire the skills of advocacy in healthcare. This is by far the best advocacy book I have seen." —Gary Rosenberg, PhD Director, Division of Social Work and Behavioral Science Mount Sinai School of Medicine "Improving Healthcare Through Advocacy is a terrific description of opportunities for advocacy intervention and provides the skill sets necessary for effective advocacy. A needed book." —Laura Weil, LCSW Director, Health Advocacy Program Sarah Lawrence College "Improving Healthcare Through Advocacy is an invaluable resource for practitioners working in the healthcare field as well as for students. It very thoroughly covers healthcare advocacy issues, contains real-world case examples, and provides a clear, step-by-step framework for practicing advocacy." —Kimberly Campbell, ACSW, LCSW Lecturer, Department of Social Work Ball State University An important resource for all who strive for the best in healthcare treatment for their patients, themselves, and the nation Bestselling author and award-winning researcher Bruce S. Jansson uses an intervention framework to illustrate how everyone in the healthcare system can advocate effectively, not just for better healthcare delivery to individual clients but for the necessary policy change that will deliver long- term solutions to our nation's healthcare crisis as well. Improving Healthcare Through Advocacy provides professionals with: Tools to move from traditional services to case advocacy and policy advocacy tasks Over 100 case studies from the perspective of patients, healthcare providers, and others who relate the experiences they have encountered in the healthcare system and share the wisdom they have learned Practical tips on how to provide effective advocacy and bring about positive and long-term change in this complex environment

Women’s Health Advocacy brings together academic studies and personal narratives to demonstrate how women use a variety of arguments, forms of writing, and communication strategies to effect change in a health system that is not only often difficult to participate in, but which can be actively harmful. It explicates the concept of rhetorical ingenuity—the creation of rhetorical means for specific and technical, yet extremely personal, situations. At a time when women’s health concerns are at the center of national debate, this rhetorical ingenuity provides means for women to uncover latent sources of oppression in women’s health and medicine and to influence matters of research, funding, policy, and everyday access to healthcare in the face of exclusion and disenfranchisement. This accessible collection will be inspiring reading for academics and students in health communication, medical humanities, and women’s studies, as well as for activists, patients, and professionals.

The AIDS crisis of the 1980s looms large in recent histories of sexuality, medicine, and politics, and justly so—an unknown virus without a cure ravages an already persecuted minority, medical professionals are unprepared and sometimes unwilling to care for the sick, and a national health bureaucracy is slow to invest resources in finding a cure. Yet this widely accepted narrative, while accurate, creates the impression that the gay community lacked any capacity to address AIDS. In fact, as Katie Batza demonstrates in this path-breaking book, there was already a well-developed network of gay-health clinics in American cities when the epidemic struck, and these clinics served as the first responders to the disease. Before AIDS explores this heretofore unrecognized story, chronicling the development of a national gay health network by highlighting the origins of longstanding gay health institutions in Boston, Chicago, and Los Angeles, placing them in a larger political context, and following them into the first five years of the AIDS crisis. Like many other minority communities in the 1970s, gay men faced public health challenges that resulted as much from their political marginalization and social stigmatization as from any disease. Gay men mistrusted mainstream health institutions, fearing outing, ostracism, misdiagnosis, and the possibility that their sexuality itself would be treated as a medical condition. In response to these problems, a colorful cast of doctors and activists built a largely self-sufficient gay medical system that challenged, collaborated with, and educated mainstream health practitioners. Taking inspiration from rhetoric employed by the Black Panther, feminist, and anti-urban renewal movements, and putting government funding to new and often unintended uses, gay health activists of the 1970s changed the medical and political understandings of sexuality and health to reflect the new realities of their own sexual revolution.

Womanist AIDS Activism in the United States: “It’s Who We Are” is an in-depth exploration of AIDS advocacy work among Black women. Based on interviews gathered from thirty-six Black women AIDS activists from across the nation, Angelique Harris and Omar Mushtaq examine the ways in which race, gender, sexuality, and spirituality influence the motivations and approaches behind the efforts of the women in the study. The authors use womanism—an epistemological framework that centers the world views of women of color—to better situate this activism within a larger sociocultural and historical context. They find that identity, spirituality, emotions, and experiences with AIDS knowledge all influence the ways in which these activists approached their community activism work. The authors analyze womanism in detail and propose ways in which this framework can be applied more broadly in examinations of community engagement among women of color, and specifically Black women.

Health is political. It entails fierce battles over the allocation of resources, arguments over the imposition of regulations, and the mediation of dueling public sentiments—all conflicts that are often narrated from a national, top-down view. In All Health Politics Is Local, Merlin Chowkwanyun shifts our focus, taking us to four very different places—New York City, Los Angeles, Cleveland, and Central Appalachia—to experience a national story through a regional lens. He shows how racial uprisings in the 1960s catalyzed the creation of new medical infrastructure for those long denied it, what local authorities did to curb air pollution so toxic that it made residents choke and cry, how community health activists and bureaucrats fought over who'd control facilities long run by insular elites, and what a national coal boom did to community ecology and health. All Health Politics Is Local shatters the notion of a single national health agenda. Health is and has always been political, shaped both by formal policy at the highest levels and by grassroots community battles far below.

The Right to Health in the "International Bill of Rights" -- Latin America and the Right to Healthcare -- Alma-Ata and the Advent of "Primary Care" in the Cold War -- Return to the US: From Medicare to Universal Healthcare? -- Return to Latin America: Alma-Ata in Nicaragua -- 7 The Right to Health in the Age of Neoliberalism -- Exit Alma-Ata, Enter the World Bank -- Healthcare and Neoliberalism: A Return to Chile, Nicaragua, China, Russia, and Cuba -- HIV/AIDS and the Human Right to Health Movement -- The Right to Health in Law: International and Domestic -- Medicines and the Rights-Commodity Dialectic: The Case of South Africa -- Rights, Litigation, and Privatization: Brazil, Colombia, India, and Canada -- The Healthcare Rights-Commodity Dialectic in a Time of Austerity and Reaction -- Conclusion -- Index.

Alondra Nelson recovers a lesser-known aspect of The Black Panther Party's broader struggle for social justice: health care. Nelson argues that the Party's focus on health care was practical and ideological and that their understanding of health as a basic human right and its engagement with the social implications of genetics anticipated current debates about the politics of health and race.