Drawing on insights from work in medical history and sociology, this book analyzes changing meanings of personalized medicine over time, from the rise of biomedicine in the twentieth century, to the emergence of pharmacogenomics and personal genomics in the 1990s and 2000s. In the past when doctors championed personalization they did so to emphasize that patients had unique biographies and social experiences in the name of caring for their patients as individuals. However, since the middle of the twentieth century, geneticists have successfully promoted the belief that genes are implicated in why some people develop diseases and why some have adverse reactions to drugs when others do not. In doing so, they claim to offer a new way of personalizing the prediction, prevention and treatment of disease. As this book shows, the genomic reimagining of personalized medicine centres on new forms of capitalization and consumption of genetic information. While genomics promises the ultimate individualization of medicine, the author argues that personalized medicine exists in the imaginative gap between the problems and limits of current scientific practices and future prospects to individualize medical interventions. A rigorous, critical examination of the promises of genomics to transform the economics and delivery of medicine, Genomics and the Reimagining of Personalized Medicine examines the consequences of the shift towards personalization for the way we think about and act on health and disease in society. As such, it will be of interest to scholars and students of the sociology of medicine and health, science and technology studies, and health policy.

"Personalized Medicine investigates the recent movement for patients' involvement in how they are treated, diagnosed, and medicated; a movement that accompanies the increasingly popular idea that people should be proactive, well-informed participants in their own healthcare. While it is often the case that participatory practices in medicine are celebrated as instances of patient empowerment or, alternatively, are dismissed as cases of patient exploitation, Barbara Prainsack challenges these views to illustrate how personalized medicine can give rise to a technology-focused individualism, yet also present new opportunities to strengthen solidarity. Facing the future, this book reveals how medicine informed by digital, quantified, and computable information is already changing the personalization movement, providing a contemporary twist on how medical symptoms or ailments are shared and discussed in society"--Provided by publisher.

People have always sought medical care that is tailored to every individual patient. Alongside with the historical development of institutions of care, the vision of personal and 'holistic' care persisted. Patient-centred medicine, interpersonal communication and shared decision making have become central to medical practice and services. This evolving vision of 'personalized medicine' is in the forefront of medicine, creating debates among ethicists, philosophers and sociologists of medicine about the nature of disease and the definition of wellness, the impact on the daily life of patients, as well as its implications on low-income countries. Is increased 'precision' also an improvement on the personal aspects of care or erosion of privacy? Do 'precise' and 'personalized' approach marginalize public health, and can this care be personalized without attention to culture, economy and society? The book provides a multidisciplinary and interdisciplinary discussion of the ethos and ethics of precision/personal medicine, involving scientists who have shaped the field, in dialogue with ethicists, social scientists and philosophers of science. The contributing scholars come from all over the world and from different cultural backgrounds providing reflective perspectives of history of ideas, critical theory and technology assessment, together with the actual work done by pioneers in the field. It explores issues such as global justice, gender, public health, pharmaceutical industry, international law and religion, and explores themes discussed in relation to personalized medicine such as new-born screening and disorders of consciousness. This book will be of interest to academicians in bioethics, history of medicine, social sciences of medicine as well as general educated readers.

The Handbook provides an essential resource at the interface of Genomics, Health and Society, and forms a crucial research tool for both new students and established scholars across biomedicine and social sciences. Building from and extending the first Routledge Handbook of Genetics and Society, the book offers a comprehensive introduction to pivotal themes within the field, an overview of the current state of the art knowledge on genomics, science and society, and an outline of emerging areas of research. Key themes addressed include the way genomic based DNA technologies have become incorporated into diverse arenas of clinical practice and research whilst also extending beyond the clinic; the role of genomics in contemporary ‘bioeconomies’; how challenges in the governance of medical genomics can both reconfigure and stabilise regulatory processes and jurisdictional boundaries; how questions of diversity and justice are situated across different national and transnational terrains of genomic research; and how genomics informs – and is shaped by – developments in fields such as epigenetics, synthetic biology, stem cell, microbial and animal model research. Chapters 13 and 28 of this book are freely available as downloadable Open Access PDFs at http://www.taylorfrancis.com, under a Creative Commons Attribution-Non Commercial-No Derivatives (CC-BY-NC-ND) 4.0 license.

Genome Finland tells a story of genomic medicine in Finland from the study of rare Finnish diseases in the 1960s and 1970s to the implementation of personalized medicine in the 2020s. The main focus is on the 21st century – the period after the Human Genome Project – and on the establishment of new infrastructures to support genomic medicine, such as biobanks. The book opens up the reasoning and discussions as well as the settings and events through which Finnish medical genetics reached the top level of international biomedicine in the late 1990s, biobanks and biobank research evolved during the 2000s and 2010s, and large transnational public-private partnership projects utilising massive amounts of genome and patient data started to dominate also Finnish research into the 2020s. In particular, Genome Finland examines and exposes the connections between biomedical science, ‘knowledge-based’ economy and business, and innovation policy in Finland during the past decades.

Despite remarkable advancements in biomedical research, the healthcare industry faces challenges in effectively translating these discoveries into tangible patient benefits. Healthcare professionals often need help to keep pace with the rapid evolution of medical knowledge, leading to variations in patient care and treatment outcomes. Policymakers and educators may need more insight to leverage recent biomedical developments in shaping effective health policies and educational curricula. Additionally, ethical considerations surrounding emerging technologies like gene editing and Artificial Intelligence (AI) in healthcare pose complex dilemmas that require careful navigation. Reshaping Healthcare with Cutting-Edge Biomedical Advancements offers a comprehensive solution to these challenges. By providing a detailed exploration of the latest breakthroughs in genomics, regenerative therapies, neurobiology, AI, and more, this book equips healthcare professionals with the knowledge needed to make informed decisions about patient care. It also guides policymakers and educators, offering insights into the implications of recent biomedical advancements for shaping health policies and educational programs.

Hippocrates famously advised doctors 'it is far more important to know what person the disease has than what disease the person has'. Yet 2,500 years later, 'personalised medicine', based on individual genetic profiling and the achievements of genomic research, claims to be revolutionary. In this book, experts from a wide range of disciplines critically examine this claim. They expand the discussion of personalised medicine beyond its usual scope to include many other highly topical issues, including: human nuclear genome transfer ('three-parent IVF'), stem cell-derived gametes, private umbilical cord blood banking, international trade in human organs, biobanks such as the US Precision Medicine Initiative, direct-to-consumer genetic testing, health and fitness self-monitoring. Although these technologies often prioritise individual choice, the original ideal of genomic research saw the human genome as 'the common heritage of humanity'. The authors question whether personalised medicine actually threatens this conception of the common good.

Genomics and Society; Ethical, Legal-Cultural, and Socioeconomic Implications is the first book to address the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011. The work addresses fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system. Of particular interest to healthcare practitioners, bioethicists, and health economists, and of tangential interest to the gamut of applied social scientists investigating the societal impact of new medical paradigms, the work describes a myriad of issues around consent, confidentiality, rights, patenting, regulation, and legality in the new era of genomic medicine. - Addresses the vast and thorny web of ELSI topics identified as core priorities of the NHGRI in 2011 - Presents the core fundamental issues of biosociety and bioeconomy as the revolution in biology moves from research lab to healthcare system - Describes a myriad of issues around consent, including confidentiality, rights, patenting, regulation, and more

The Routledge International Handbook of Critical Issues in Health and Illness is a multidisciplinary reference book that brings together cutting-edge health and illness topics from around the globe. It offers a range of theoretical and critical perspectives to provide contemporary insights into complex health issues that can offer ways to address inequitable patterns of illness and ill health. This collection, written by an international pool of expert academics from a range of disciplinary backgrounds, is unique in providing theoretical and critical analyses on key health topics, considering power and broader social structures that influence health and illness outcomes. The chapters are organised in three parts. The first covers medical contexts; here, chapters provide commentary and critical analysis of the history of medicine, medicalisation, pharmaceuticalisation, services and care, medical technology, diagnosis, screening, personalised medicine, and complementary and alternative medicine. The second part covers life contexts; chapters include a range of life contexts that have implications for health, including gender, sexuality, reproduction, disability, ethnicity, indigeneity, inequality, ageing, and dying. The third part covers shifting contextual domains; chapters consider contemporary areas of life that are rapidly changing, including bioethics, digital health, migration, medical travel, geography and "place", commercialisation, globalisation, and climate change. The Routledge International Handbook of Critical Issues in Health and Illness is a key contemporary reference text for scholars, students, researchers, and professionals across disciplines, including sociology, psychology, anthropology, geography, medicine, public health, and health science.

Shifting Solidarities offers a comprehensive analysis of solidarity at a time when major social transformations have penetrated the heart of European societies, disrupting markets and labour relations, transforming social practices, and affecting the moral infrastructure of European welfare states. Factors such as the economic crisis, migration, digitalisation, and climate change all contribute to a sense of emergency. This volume considers how, in times of crisis, there are calls for solidarity by various new social and political actors and movements. The contributions present a broad array of empirical work and critical scholarship, zooming in on shifting solidarities in various domains of social life, including work, social policy, health care, religion, family, gender and migration. This compelling volume provides a unique resource for understanding solidarity in contemporary Europe, and will be a vital text for students and scholars across sociology, social policy, cultural studies, employment/labour markets and organisation studies, migration studies and European studies.