The forty-year "Tuskegee" Syphilis Study has become the American metaphor for medical racism, government malfeasance, and physician arrogance. The subject of histories, films, rumors, and political slogans, it received an official federal apology f

The forty-year Tuskegee Syphilis Study has become the American metaphor for medical racism, government malfeasance, and physician arrogance. The subject of histories, films, rumors, and political slogans, it received an official federal apology from President Bill Clinton in a White House ceremony. Susan M. Reverby offers a comprehensive ana...

Between 1932 and 1972, approximately six hundred African American men in Alabama served as unwitting guinea pigs in what is now considered one of the worst examples of arrogance, racism, and duplicity in American medical research--the Tuskegee syphilis study. Told they were being treated for "bad blood," the nearly four hundred men with late-stage syphilis and two hundred disease-free men who served as controls were kept away from appropriate treatment and plied instead with placebos, nursing visits, and the promise of decent burials. Despite the publication of more than a dozen reports in respected medical and public health journals, the study continued for forty years, until extensive media coverage finally brought the experiment to wider public knowledge and forced its end. This edited volume gathers articles, contemporary newspaper accounts, selections from reports and letters, reconsiderations of the study by many of its principal actors, and works of fiction, drama, and poetry to tell the Tuskegee story as never before. Together, these pieces illuminate the ethical issues at play from a remarkable breadth of perspectives and offer an unparalleled look at how the study has been understood over time.

The Search for the Legacy of the USPHS Syphilis Study at Tuskegee is a collection of essays that seeks to redefine the "legacy" of the infamous Tuskegee Syphilis Study in light of recent findings from other scientific studies that challenge the long-standing, widely-held understanding of the study. These essays are written with thoughtful attention to fully integrate the essayists' perspectives on the impact of the study on the lives of Americans today and place the legacy of the study within the evolving picture of racial and ethnic relations in the United States. Each essayist looks through his or her own personal and professional prism to give an account of what constitutes that legacy today. Contributors include the two leading historians of the Tuskeegee Syphilis Study and two former Surgeons General of the United States as well as other prominent scholars from the fields of public health, bioethics, psychology, biostatistics, medicine, dentistry, journalism, medical sociology, medical anthropology, and health disparities research.

NATIONAL BOOK CRITICS CIRCLE AWARD WINNER • The first full history of Black America’s shocking mistreatment as unwilling and unwitting experimental subjects at the hands of the medical establishment. No one concerned with issues of public health and racial justice can afford not to read this masterful book. "[Washington] has unearthed a shocking amount of information and shaped it into a riveting, carefully documented book." —New York Times From the era of slavery to the present day, starting with the earliest encounters between Black Americans and Western medical researchers and the racist pseudoscience that resulted, Medical Apartheid details the ways both slaves and freedmen were used in hospitals for experiments conducted without their knowledge—a tradition that continues today within some black populations. It reveals how Blacks have historically been prey to grave-robbing as well as unauthorized autopsies and dissections. Moving into the twentieth century, it shows how the pseudoscience of eugenics and social Darwinism was used to justify experimental exploitation and shoddy medical treatment of Blacks. Shocking new details about the government’s notorious Tuskegee experiment are revealed, as are similar, less-well-known medical atrocities conducted by the government, the armed forces, prisons, and private institutions. The product of years of prodigious research into medical journals and experimental reports long undisturbed, Medical Apartheid reveals the hidden underbelly of scientific research and makes possible, for the first time, an understanding of the roots of the African American health deficit. At last, it provides the fullest possible context for comprehending the behavioral fallout that has caused Black Americans to view researchers—and indeed the whole medical establishment—with such deep distrust.

In 1932, the U.S. Public Health Service recruited 623 African American men from Macon County, Alabama, for a study of "the effects of untreated syphilis in the Negro male." For the next 40 years -- even after the development of penicillin, the cure for syphilis -- these men were denied medical care for this potentially fatal disease. The Tuskegee Syphilis Study was exposed in 1972, and in 1975 the government settled a lawsuit but stopped short of admitting wrongdoing. In 1997, President Bill Clinton welcomed five of the Study survivors to the White House and, on behalf of the nation, officially apologized for an experiment he described as wrongful and racist. In this book, the attorney for the men, Fred D. Gray, describes the background of the Study, the investigation and the lawsuit, the events leading up to the Presidential apology, and the ongoing efforts to see that out of this painful and tragic episode of American history comes lasting good.

Bringing us close to the complex history of the civil rights movement in the American South—the currents that involved thousands of communities and millions of individual lives—this book looks deeply into the experiences of a single Alabama town, Tuskegee, and its surrounding Macon County. It is based on interviews with the people—white and black, liberal and traditional—whose lives were caught up in the movement and altered forever. We see Tuskegee in the early 1940s, seat of America’s most venerable institute of high education for blacks, an important symbol of black progress—yet almost entirely controlled by a white power structure—and we see the emergence of a charismatic leader, Charles G. Gomillion, who defied Tuskegee Institutes’ apolitical traditions and inspired blacks to organize for their right to vote. Thus begins decades of struggle, which Robert J. Norrell re-creates for us through the testimony of the people who lived and shaped this history: the dramatic appearance before a U.S. congressional committee of local civil rights leaders and ordinary farmers bearing witness to the seemingly endless obstructions to block voter registration; the months-long boycott of white Tuskegee merchants that was sparked by the city council’s attempt to exclude black voters by gerrymandering; the fiercely controversial move to integrate the public schools that culminated in Governor George Wallace’s order to state troopers to prevent the opening of Tuskegee High; the anguish that accompanied efforts by blacks to penetrate all-white church congregations. Norrell describes how blacks enters—and won—local elections, including those for mayor and sheriff, and how, with the onset of heightened activism in the late 1960s, Gomillion and other established leaders of the civil rights movement heard angry youthful voices raised against their cautious approach. Reaping the Whirlwind carries us through the early 1970s to a community profoundly changed, proud to have shed its false air of harmony, gradually coming to terms with the disorder and dissension of the preceding years. It is a moving and significant chronicle that documents a critical era in the nation’s history.

The forty-year Tuskegee Syphilis Study, which took place in and around Tuskegee, Alabama, from the 1930s through the 1970s, has become a profound metaphor for medical racism, government malfeasance, and physician arrogance. Susan M. Reverby's Examining Tuskegee is a comprehensive analysis of the notorious study of untreated syphilis among African American men, who were told by U.S. Public Health Service doctors that they were being treated, not just watched, for their late-stage syphilis. With rigorous clarity, Reverby investigates the study and its aftermath from multiple perspectives and illuminates the reasons for its continued power and resonance in our collective memory.

The Search for the Legacy of the USPHS Syphilis Study at Tuskegee is a collection of essays that seeks to redefine the "legacy" of the infamous Tuskegee Syphilis Study in light of recent findings from other scientific studies that challenge the long-standing, widely-held understanding of the study. These essays are written with thoughtful attention to fully integrate the essayists' perspectives on the impact of the study on the lives of Americans today and place the legacy of the study within the evolving picture of racial and ethnic relations in the United States. Each essayist looks through his or her own personal and professional prism to give an account of what constitutes that legacy today. Contributors include the two leading historians of the Tuskeegee Syphilis Study and two former Surgeons General of the United States as well as other prominent scholars from the fields of public health, bioethics, psychology, biostatistics, medicine, dentistry, journalism, medical sociology, medical anthropology, and health disparities research.

The Origins of Bioethics argues that what we remember from the history of medicine and how we remember it are consequential for the identities of doctors, researchers, and patients in the present day. Remembering when medicine went wrong calls people to account for the injustices inflicted on vulnerable communities across the twentieth century in the name of medicine, but the very groups empowered to create memorials to these events often have a vested interest in minimizing their culpability for them. Sometimes these groups bury this past and forget events when medical research harmed those it was supposed to help. The call to bioethical memory then conflicts with a desire for “minimal remembrance” on the part of institutions and governments. The Origins of Bioethics charts this tension between bioethical memory and minimal remembrance across three cases—the Tuskegee Syphilis Study, the Willowbrook Hepatitis Study, and the Cincinnati Whole Body Radiation Study—that highlight the shift from robust bioethical memory to minimal remembrance to forgetting.