Participatory research is well-established as an approach involving people with a direct interest in, or experience of, the issue being studied in carrying out research. However, it raises unique and challenging ethical issues. Traditional concerns with respect for the rights to confidentiality, consent, privacy and protection of ‘research informants’ do not translate easily into participatory research. Boundaries between researchers and those researched are often blurred; research trajectories may be emergent and unpredictable; and major ethical issues revolve around partnership, power, equality and respect for diverse knowledges. The book introduces the key ethical issues in participatory research, drawing on ethical theory and relevant literature before presenting seven substantive chapters, each on a different theme, such as power, ownership, confidentiality and boundaries. The chapters feature an introductory overview of the topic with reference to the literature, followed by four real-life case examples written by participatory researchers and short commentaries on each case. Drawn from around the world (from Denmark to Tanzania), the cases illustrate a range of ethical issues, outlining how they were handled and the reflections and feelings of the contributors. Focusing on developing ethical awareness, confidence and courage to act in ethically challenging situations in everyday research practice, this book is an invaluable resource for all participatory researchers.

This textbook is a comprehensive guide for students interested in using participatory research to improve people’s health and well-being. It is especially designed for those working in the fields of health and social welfare who are embarking on participatory research for the first time. It covers all phases in participatory research from “getting started,” to “acting for change,” “continuing the journey” and “articulating impact.” Its unique format helps readers understand the essence of participatory research as a comprehensive approach for doing research which is underpinned by a set of fundamental values.The many real life examples of participatory research projects from around the world inspire readers to find creative ways to manage their own research while opening up new horizons in their work.

This groundbreaking resource explores core issues in participatory health research (PHR) and traces its global emergence as a force for improving health and well-being, healthcare services, and quality of life. The PHR approach is defined as including community members, health practitioners, and decision-makers as co-researchers, using local knowledge to reduce disparities in care, advocate for responsive health policy, and accelerate positive change in society as a whole. The book’s first half surveys themes essential to the development of the field, including evaluating PHR projects, training professionals in conducting PHR, and the ambitious work of the International Collaboration for Participatory Health Research. International perspectives showcase the varied roles of PHR in addressing urgent local health problems in their specific public health and sociocultural contexts. Among the topics covered: Demonstrating impact in participatory health research Reviewing the effectiveness of participatory health research: challenges and possible solutions Kids in Action—participatory health research with children Participatory health research: an Indian perspective Participatory health research in Latin America: scientific production on chronic diseases Participatory health research in North America: from community engagement to evidence-informed practice Participatory Health Research benefits those teaching and learning about participatory health research at institutions of higher education and in community settings, addressing diverse fields including health promotion and disease prevention, medicine and public health, quality of life, social work, and community development.

Participatory Action Learning and Action Research offers a concise yet comprehensive explanation of the theory, practice and process of this emerging paradigm, methodology and theory of learning. PALAR is a transformative, collaborative and democratic process for resolving complex problems within the context of sustainable professional, organisational and community development. The book draws on real-life examples from socially and economically challenged contexts, and features critical reflections on the strengths and challenges of this evolving methodology in relation to the increased interest in community engagement and project-based learning among institutions of higher education. Analysing theory in the context of sustainable professional, organisational and community development, this book: Provides a comprehensive, research-based manual on the use of PALAR within actual research projects. Explains a means of engaging in research that promotes the mobilisation of human potential relevant in a rapidy changing society. Addresses the challenges of doing participatory research within institutions. Provides applied, specific examples of how PALAR can be adapted for use in socially and economically challenged contexts, typical of developing economies. Offers critical reflections by researchers and community participants on the challenges and uses of PALAR. Innovative, and offering clarity on ethics and research questions, Participatory Action Learning and Action Research will be of interest to both emerging and experienced researchers looking to bring about change at a personal, professional, organisational or community level.

Peer research is increasingly used in international academic, policy and practice environments. It engages members of a group or social network as trusted members of a research team working in communities and settings they are familiar with. Critics, however, point to methodological concerns with peer research. These include the extent to which peer researchers genuinely represent the populations under study; data confidentiality; the emotional burden of enquiring into sensitive issues peers may experience in their own lives; and the reliability and credibility of data collected by people who do not have academic training. The book seeks to counter the marginalisation of research experience and skills derived from close relationships with people and communities, while reflecting critically on the strengths and limitations of peer research. Chapters by a wide range of international contributors illustrate the potential of peer research to facilitate an in-depth understanding of health and social development issues and enhance policy and practice. This interdisciplinary book provides students and professionals working in health, social science and development studies with a thorough grounding in this new style of research. It will appeal to those interested in research and evaluation; sexual health and public health; mental health, disability and social care; gender and sexuality; conservation and environmental management; migration and citizenship studies; humanitarian issues; and international development.

Participatory Health through Social Media explores how traditional models of healthcare can be delivered differently through social media and online games, and how these technologies are changing the relationship between patients and healthcare professionals, as well as their impact on health behavior change. The book also examines how the hospitals, public health authorities, and inspectorates are currently using social media to facilitate both information distribution and collection. Also looks into the opportunities and risks to record and analyze epidemiologically relevant data retrieved from the Internet, social media, sensor data, and other digital sources. The book encompasses topics such as patient empowerment, gamification and social games, and the relationships between social media, health behavior change, and health communication crisis during epidemics. Additionally, the book analyzes the possibilities of big data generated through social media. Authored by IMIA Social Media working group, this book is a valuable resource for healthcare researchers and professionals, as well as clinicians interested in using new media as part of their practice or research. - Presents a multidisciplinary point of view providing the readers with a broader perspective - Brings the latest case studies and technological advances in the area, supported by an active international community of members who actively work in this area - Endorsed by IMIA Social Media workgroup, guaranteeing trustable information from the most relevant experts on the subject - Examines how the hospitals, public health authorities, and inspectorates are currently using social media to facilitate both information distribution and collection

This SAGE Handbook presents contemporary, cutting-edge approaches to participatory research and inquiry. It has been designed for the community of researchers, professionals and activists engaged in interventions and action for social transformation, and for readers interested in understanding the state of the art in this domain. The Handbook offers an overview of different influences on participatory research, explores in detail how to address critical issues and design effective participatory research processes, and provides detailed accounts of how to use a wide range of participatory research methods. Chapters cover pioneering new participatory research techniques including methods that can be operationalised at scale, approaches to engaging the poorest and most marginalised, and ways of harnessing technologies to increase the scope of participation, amongst others. Drawing upon a wide range of disciplines, and bringing together contributing authors from across the globe, this Handbook will be of interest to an international readership from across the broad spectrum of social sciences, including social policy, development studies, geography, sociology, criminology, political science, health and social care, education, psychology, business & management. It will also be an insightful and practical resource for facilitators, community workers, and activists for social change. Part 1: Introduction Part 2: Key Influences and Foundations of Participatory Research Part 3: Critical Issues in the Practice of Participatory Research Part 4: Methods and Tools Part 4.1: Dialogic and Deliberative Processes Part 4.2: Digital Technologies in Participatory Research Part 4.3: Participatory Forms of Action Orientated Research Part 4.4: Visual and Performative Methods Part 4.5: Participatory Monitoring, Evaluation and Learning Part 4.6: Mixing and Mashing Participatory and Formal Research Part 5: Final Reflections

This book advocates for community-based research with vulnerable populations within the field of higher education. The chapters outline how research can democratize knowledge generation to make it more accessible and socially relevant, and emphasizes the value of the lived and experiential knowledge of vulnerable and marginalized populations. Rooted in a critique of the current practices of higher education that fail to support participatory and transformative research, the research is structured at micro, macro and meso levels to ultimately emancipate colonized thinking of stakeholders about power, privilege and participation. Focusing primarily on various contexts within the Global South, the contributors argue that the time is ripe for community-based research which combines the theoretical knowledge of the academy with the local, experiential knowledge of those experiencing the consequences of social inequality to co-construct knowledge for change.

This Handbook presents established and innovative perspectives on involving older adults as co-creators in ageing research. It reorients research and policy toward more inclusive and adequate designs that capture the voices and needs of older adults. The Handbook: introduces types of participatory approaches in ageing research; highlights key methodological aspects of these approaches; gives insights from projects across different cultural contexts and academic disciplines, showing ways in which older participants can be involved in co-designing different stages of the research cycle; examines key issues to consider when involving older participants at each step of the research process; includes the voices of older adults directly; draws out conclusions and points ways forward for future research. This Handbook will be essential reading for researchers and students interested in the field of ageing and/ or participatory methods, as well as for those policy stakeholders in the fields of ageing and demographic change, social and public policy, or health and wellbeing who are interested in involving older adults in policy processes. It will be useful for third-sector advocacy organizations and international non-governmental and public agencies working either in citizen involvement/participation or the ageing sector.

This new edition of A Handbook of Children and Young People’s Participation brings together work from research and practice to reflect on some of the key developments in the field since the first edition published in 2010. Subtitled ‘Conversations for Transformational Change’, the collection focuses on both ongoing and new discourses that enable us to advance thinking and practice to better understand what it means for participation to be transformational. Featuring all new content, it explores the developments that have been achieved in theory and practice in the last decade as well as the challenges and, indeed, the limitations of dominant participation approaches with children and young people in achieving genuine societal transformation. A key feature of the Handbook is the inclusion of young people as co-authors in many of the chapters. Foregrounding aspects of participation as experienced by diverse groups of children and young people, the book especially illuminates the experiences and perspectives of participation relating to groups of children who face particular challenges, such as displaced children and children living with disabilities and young people from indigenous groups in a range of contexts. The broad spectrum of debates that the text covers will be invaluable in challenging and transforming thinking and practice for a wide range of scholars, practitioners, activists and young people themselves. It will additionally be suitable for use on a wide range of courses including childhood and youth studies, sociology, law, political studies, community development, development studies, children’s rights, citizenship studies, education and social work.