Catherine Frazee wants her readers to know that there is far more to disability than most people think or assume. There is much not to like about disability, such as the ways it diminishes status and opportunity, and the ways it requires medical intrusions which, even if lifesaving, are nobody’s idea of a good time. As becomes apparent in this powerful collection of writing, there is much more to the story of disabled life. There is adaptation and activism. There is art, philosophy, and history. There is solidarity, identity, collective struggle, and shared culture. Frazee offers a glimpse into a rich and delicate ecology of disability that warrants not fear and pity, but recognition and respect.

Catherine Frazee wants her readers to know that there is far more to disability than most people think or assume. There is much not to like about disability, such as the ways it diminishes status and opportunity, and the ways it requires medical intrusions which, even if lifesaving, are nobody’s idea of a good time. As becomes apparent in this powerful collection of writing, there is much more to the story of disabled life. There is adaptation and activism. There is art, philosophy, and history. There is solidarity, identity, collective struggle, and shared culture. Frazee offers a glimpse into a rich and delicate ecology of disability that warrants not fear and pity, but recognition and respect.

Into the twenty-first century, millions of disabled people and people experiencing mental distress were segregated from the rest of society and confined to residential institutions. Deinstitutionalization – the closure of these sites and integration of former residents into the community – has become increasingly commonplace. But this project is unfinished. Sites of Conscience explores use of the concept of sites of conscience, which involves place-based memory activities such as walking tours, survivor-authored social histories, and performances and artistic works in or generated from sites of systemic suffering and injustice. These activities offer new ways to move forward from the unfinished deinstitutionalization project and its failures. Covering diverse national contexts, this volume proposes that acknowledging the memories and lived experiences of former residents – and keeping histories and social heritage of institutions alive rather than simply closing sites – holds the greatest potential for recognition, accountability, and action.

Finalist for the 2020 National Book Critics’ Circle Award for Criticism By one of Mexico's greatest contemporary writers, this investigation into state violence and mourning gives voice to the political experience of collective pain. Grieving is a hybrid collection of short crónicas, journalism, and personal essays on systemic violence in contemporary Mexico and along the US-Mexico border. Drawing together literary theory and historical analysis, she outlines how neoliberalism, corruption, and drug trafficking—culminating in the misnamed “war on drugs”—has shaped her country. Working from and against this political context, Cristina Rivera Garza posits that collective grief is an act of resistance against state violence, and that writing is a powerful mode of seeking social justice and embodying resilience. She states: “As we write, as we work with language—the humblest and most powerful force available to us—we activate the potential of words, phrases, sentences. Writing as we grieve, grieving as we write: a practice able to create refuge from the open. Writing with others. Grieving like someone who takes refuge from the open. Grieving, which is always a radically different mode of writing.” “A lucid, poignant collection of essays and poetry. . . . deeply hopeful, ultimately love letters to writing itself, and to the power of language to overcome the silence that impunity imposes.” —New York Times Book Review "For all the losses tallied, the pieces are imbued with optimism and an activist’s passion for reshaping the world." —The New Yorker

Disabling Barriers analyzes issues relating to disability at different moments in Canadian and American history. In this volume, legal scholars, historians, and disability-rights activists demonstrate that disabled people can change their social status by transforming the political and legal discourse surrounding disablement. Employing tools from the fields of law and history, this original contribution explores how disabled people have been portrayed and treated in a variety of contexts, including within the labour market, the workers’ compensation system, the immigration process, and the legal system (both as litigants and as lawyers). It deepens our knowledge of the role of people with disabilities within social movements in disability history. The contributors encourage us to rethink our understanding of both the systemic barriers disabled people face and the capacity of disabled people to effect positive societal change.

“A remarkably nuanced, empathetic, and well-crafted work of journalism, [The Inevitable] explores what might be called the right-to-die underground, a world of people who wonder why a medical system that can do so much to try to extend their lives can do so little to help them end those lives in a peaceful and painless way.”—Brooke Jarvis, The New Yorker More states and countries are passing right-to-die laws that allow the sick and suffering to end their lives at pre-planned moments, with the help of physicians. But even where these laws exist, they leave many people behind. The Inevitable moves beyond margins of the law to the people who are meticulously planning their final hours—far from medical offices, legislative chambers, hospital ethics committees, and polite conversation. It also shines a light on the people who help them: loved ones and, sometimes, clandestine groups on the Internet that together form the “euthanasia underground.” Katie Engelhart, a veteran journalist, focuses on six people representing different aspects of the right to die debate. Two are doctors: a California physician who runs a boutique assisted death clinic and has written more lethal prescriptions than anyone else in the U.S.; an Australian named Philip Nitschke who lost his medical license for teaching people how to end their lives painlessly and peacefully at “DIY Death” workshops. The other four chapters belong to people who said they wanted to die because they were suffering unbearably—of old age, chronic illness, dementia, and mental anguish—and saw suicide as their only option. Spanning North America, Europe, and Australia, The Inevitable offers a deeply reported and fearless look at a morally tangled subject. It introduces readers to ordinary people who are fighting to find dignity and authenticity in the final hours of their lives.

Ableism is embedded in Canadian criminal justice institutions, policies, and practices, making incarceration and institutionalization dangerous – even deadly – for disabled people. Disability Injustice brings together highly original work by a range of scholars and activists who explore disability in the historical and contemporary Canadian criminal justice system. The contributors confront challenging topics such as eugenics and crime control; the pathologizing of difference as deviance; processes of criminalization based on discretionary, biased approaches to physical and mental health; and the role of disability justice activism in contesting longstanding discrimination and exclusion. Weaving together disability and sociolegal studies, criminology, and law, Disability Injustice examines disability in contexts that include policing and surveillance, sentencing and the courts, prisons and other carceral spaces, and alternatives to confinement. This provocative collection highlights how, with deeper understanding of disability, we can and should challenge the practices of crime control and the processes of criminalization.

Mobilizing Metaphor illustrates how radical and unconventional forms of activism, including art, are reshaping the rich and vibrant tradition of disability mobilization in Canada – and in the process, challenging perceptions of disability and the politics that surround it. Until now, research on Canadian disability activism has focused on legal and policy spheres and overlooked how disability activism is as varied as the population it represents. Mobilizing Metaphor combines contributions by artists, activists, and academics (including an insightful concluding chapter by renowned disability scholar Tanya Titchkoksy) with rich illustrations and photographs to reveal how disability art is distinctive as both art and social action. As the contributors sketch the shifting contours of disability politics in Canada and show how disability oppression is not isolated from other prejudices, they challenge us to re-examine how we enact social and political change.

"A few years ago, the Physician in Chief of our hospital, Dr. Perry Gray, circulated a note of complaint from the wife of a patient who had been cared for in our facility. The note described how her husband had been brought to the emergency room by ambulance, admitted to hospital and shortly thereafter died. She indicated that most of his care was satisfactory and, in some instances, even excellent with one significant exception. Soon after arriving in hospital, his CT scan had shown that his lung cancer had spread to his abdomen and he and the family were told to prepare themselves for the worst. Regular doses of morphine were started to alleviate his pain. He survived the night and early the next morning was still able to answer questions from his oncologist. Shortly thereafter, he slipped into unconsciousness"--

"We do not need care!" is a rallying cry for disability movements. It is informed by a recognition that a lack of choice over simple care decisions - like what to eat or what to wear - is a subtle yet pervasive form of violence endured by many disabled people. Disability Politics and Care examines an independent living program to explore what happens when people with disabilities take control of their own care arrangements. Christine Kelly documents responses by a wide range of stakeholders of this program and reflects on some of its broader social and political implications.