Over the last thirty years, the field of disability studies has emerged from the political activism of disabled people. In this challenging review of the field, leading disability academic and activist Tom Shakespeare argues that the social model theory has reached a dead end. Drawing on a critical realist perspective, Shakespeare promotes a pluralist, engaged and nuanced approach to disability. Key topics discussed include: dichotomies - the dangerous polarizations of medical model versus social model, impairment versus disability and disabled people versus non-disabled people identity - the drawbacks of the disability movement's emphasis on identity politics bioethics in disability - choices at the beginning and end of life and in the field of genetic and stem cell therapies care and social relationships - questions of intimacy and friendship. This stimulating and accessible book challenges orthodoxies in British disability studies, promoting a new conceptualization of disability and fresh research agenda. It is an invaluable resource for researchers and students in disability studies and sociology, as well as professionals, policy makers and activists.

Over the last forty years, the field of disability studies has emerged from the political activism of disabled people. In this challenging review of the field, leading disability academic and activist Tom Shakespeare argues that disability research needs a firmer conceptual and empirical footing. This new edition is updated throughout, reflecting Shakespeare’s most recent thinking, drawing on current research, and responding to controversies surrounding the first edition and the World Report on Disability, as well as incorporating new chapters on cultural disability studies, personal assistance, sexuality, and violence. Using a critical realist approach, Disability Rights and Wrongs Revisited promotes a pluralist, engaged and nuanced approach to disability. Key topics discussed include: dichotomies – going beyond dangerous polarizations such as medical model versus social model to achieve a complex, multi-factorial account of disability identity - the drawbacks of the disability movement's emphasis on identity politics bioethics - choices at the beginning and end of life and in the field of genetic and stem cell therapies relationships – feminist and virtue ethics approaches to questions of intimacy, assistance and friendship. This stimulating and accessible book challenges disability studies orthodoxy, promoting a new conceptualization of disability and fresh research agenda. It is an invaluable resource for researchers and students in disability studies and sociology, as well as professionals, policy makers and activists.

Disability: The Basics is an engaging and accessible introduction to disability which explores the broad historical, social, environmental, economic and legal factors which affect the experiences of those living with an impairment or illness in contemporary society. The book explores key introductory topics including: the diversity of the disability experience; disability rights and advocacy; ways in which disabled people have been treated throughout history and in different parts of the world; the daily realities of living with an impairment or illness; health, education, employment and other services that exist to support and include disabled people; ethical issues at the beginning and end of life. Disability: The Basics aims to provide readers with an understanding of the lived experiences of disabled people and highlight the continuing gaps and barriers in social responses to the challenge of disability. This book is suitable for lay people, students of disability studies as well as students taking a disability module as part of a wider course within social work, health care, sociology, nursing, policy and media studies.

Theorizing the role of disabled subjects in global consumer culture and the emergence of alternative crip/queer subjectivities in film, fiction, media, and art

Extraordinary Bodies is a cornerstone text of disability studies, establishing the field upon its publication in 1997. Framing disability as a minority discourse rather than a medical one, the book added depth to oppressive narratives and revealed novel, liberatory ones. Through her incisive readings of such texts as Harriet Beecher Stowe's Uncle Tom's Cabin and Rebecca Harding Davis's Life in the Iron Mills, Rosemarie Garland-Thomson exposed the social forces driving representations of disability. She encouraged new ways of looking at texts and their depiction of the body and stretched the limits of what counted as a text, considering freak shows and other pop culture artifacts as reflections of community rites and fears. Garland-Thomson also elevated the status of African-American novels by Toni Morrison and Audre Lorde. Extraordinary Bodies laid the groundwork for an appreciation of disability culture and an inclusive new approach to the study of social marginalization.

Examines how the framing of disability has serious implications for legal, medical, and policy treatments of disability.

Disabled people are routinely assumed to lack the capabilities and capacities to embody and experience sexuality and desire, as well as the agency to love and be loved by others, and build their own families, if they so choose. Centring on the sexual, intimate and erotic lives of disabled people, this book presents a rare opportunity to understand and ask critical questions about such widely held assumptions. In essence, this book is a collection of sexual stories, told by disabled people on their own terms and in their own ways. Stories that shed light on areas of disability, love and life that are typically overlooked and ignored. A sociological analysis of these stories reveals the creative ways in which disabled people manage and negotiate their sexual and intimate lives in contexts where these are habitually denied. In its calls for disabled people’s sexual and intimate citizenship, stories are drawn upon as the means to create social change and build more radically inclusive sexual cultures. In this ground breaking feminist critical disability studies text, The Intimate Lives of Disabled People introduces and contributes to contemporary debates around disability, sexuality and intimacy in the 21st century. Its arguments are relevant and accessible to researchers, academics, and students across a wide range of disciplines – such as sociology, gender studies, psychology, social work, and philosophy – as well as disabled people, their families and allies, and the professionals who work with and for them.

This book explores the societal resistance to accessibility for persons with disabilities, and tries to set an example of how to study exclusion in a time when numerous policies promise inclusion. With 12 chapters organised in three parts, the book takes a comprehensive approach to accessibility, covering transport and communication, knowledge and education, law and organisation. Topics within a wide cross-disciplinary field are covered, including disability studies, social work, sociology, ethnology, social anthropology, and history. The main example is Sweden, with its implementation of the United Nations Convention on the Rights of Persons with Disabilities within the context of the Nordic welfare state. By identifying and discussing persistent social and cultural conditions as well as recurring situations and interactions that nurture resistance to advancing accessibility, despite various strong laws promoting it, the book’s conclusions are widely transferable. It argues for the value of alternating between methods, theoretical perspectives, and datasets to explore how new arenas, resources and technologies cause new accessibility concerns — and possibilities — for persons living with impairments. We need to be able to follow actors closely to uncover how they feel, act, and argue, but also to connect to wider discursive and institutional patterns and systems. This book will be of interest to scholars and students of disability studies, social work, sociology, ethnology, social anthropology, political science, and organisation studies.

This open access book introduces the human development model to define disability and map its links with health and wellbeing, based on Sen's capability approach. The author uses panel survey data with internationally comparable questions on disability for Ethiopia, Malawi, Tanzania and Uganda. It presents evidence on the prevalence of disability and its strong and consistent association with multidimensional poverty, mortality, economic insecurity and deprivations in education, morbidity and employment. It shows that disability needs to be considered from multiple angles including aging, gender, health and poverty. Ultimately, this study makes a call for inclusion and prevention interventions as solutions to the deprivations associated with impairments and health conditions. This work was published by Saint Philip Street Press pursuant to a Creative Commons license permitting commercial use. All rights not granted by the work's license are retained by the author or authors.

With the advent of CRISPR gene-editing technology, designer babies have become a reality. Françoise Baylis insists that scientists alone cannot decide the terms of this new era in human evolution. Members of the public, with diverse interests and perspectives, must have a role in determining our future as a species.