Disability—as with other marginalized topics in social policy—is at risk for exclusion from social debate. This multivolume reference work provides an overview of challenges and opportunities for people with disabilities and their families at all stages of life. Once primarily thought of as a medical issue, disability is now more widely recognized as a critical issue of identity, personhood, and social justice. By discussing challenges confronting people with disabilities and their families and by collecting numerous accounts of disability experiences, this volume firmly situates disability within broader social movements, policy, and areas of marginalization, providing a critical examination into the lived experiences of people with disabilities and how disability can affect identity. A foundational introduction to disability for a wide audience—from those intimately connected with a person with a disability to those interested in the science behind disability—this collection covers all aspects of disability critical to understanding disability in the United States. Topics covered include characteristics of disability; disability concepts, models, and theories; important historical developments and milestones for people with disabilities; prominent individuals, organizations, and agencies; notable policies and services; and intersections of disability policy with other policy.

“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

A fascinating exploration of the relationship between American culture and music as defined by musicians, scholars, and critics from around the world.

Examines the issues, events, people, activism, laws, and personal experiences and social ramifications of disability throughout US history. This three-volume reference is suitable for the high school and college curriculum.

What was the longest and harshest medical quarantine in modern history, and how did people survive it? In Hawaiʻi beginning in 1866, men, women, and children suspected of having leprosy were removed from their families. Most were sentenced over the next century to lifelong exile at an isolated settlement. Thousands of photographs taken of their skin provided forceful, if conflicting, evidence of disease and disability for colonial health agents. And yet among these exiled people, a competing knowledge system of kinship and collectivity emerged during their incarceration. This book shows how they pieced together their own intimate archives of care and companionship through unanticipated adaptations of photography.

Presents current knowledge of and experience with disability across a wide variety of places, conditions, and cultures to both the general reader and the specialist.

Everybody has fears in common and in this unique handwritten book, the author (an adult with developmental disabilities) battles his fears by listing more than 138 of them. He explores the depths of our most human emotion from small fears, like 'fear of bats' and 'fear of being different', to more complex fears like 'fear that if you put too much toilet paper in the toilet bowl it will run over and get all over the floor and on you and on someone else too, it would leak from upstairs to the next floor below'. This is a uniquely offbeat account of common worries and fears.