The inspiring, often hilarious account of one man's refusal to compromise his life after he is diagnosed with hemophilia.

This memoir of hemophilia is intensely personal and impressionistic, shifting back and forth in time between the author's recovery from a bleed episode in 1989 and accounts of his childhood. Among the issues he deals with are his guilt for having survived both his brother, who died of kidney disease in 1980, and the nine out of ten hemophiliaces who've been stricken by HIV and AIDS. The author is an award-winning poet, and his prose here is lyrical and highly original, approaching issues of illness and family in fresh and deeply affecting ways. Annotation c. by Book News, Inc., Portland, Or.

Hurt and Pain: Literature and the Suffering Body examines the strategies authors have used to portray bodies in pain, drawing on a diverse range of literary texts from the seventeenth century to the present day. Susannah B. Mintz provides readings of canonical writers including John Donne, Emily Dickinson, and Samuel Beckett, alongside contemporary writers such as Ana Castillo and Margaret Edson, focusing on how pain is shaped according to the conventions-and also experiments-of genre: poetry, memoir, drama, and fiction. With insights from disability theory and recent studies of the language of pain, Mintz delivers an important corrective to our most basic fears of physical suffering, revealing through literature that pain can be a source of connection, compassion, artistry, and knowledge. Not only an important investigation of authors' formal and rhetorical choices, Hurt and Pain reveals how capturing pain in literature can become a fundamental component of crafting human experience.

The field of disability history continues to evolve rapidly. In this collection, Susan Burch and Michael Rembis present essays that integrate critical analysis of gender, race, historical context, and other factors to enrich and challenge the traditional modes of interpretation still dominating the field. Contributors delve into four critical areas of study within disability history: family, community, and daily life; cultural histories; the relationship between disabled people and the medical field; and issues of citizenship, belonging, and normalcy. As the first collection of its kind in over a decade, Disability Histories not only brings readers up to date on scholarship within the field but fosters the process of moving it beyond the U.S. and Western Europe by offering work on Africa, South America, and Asia. The result is a broad range of readings that open new vistas for investigation and study while encouraging scholars at all levels to redraw the boundaries that delineate who and what is considered of historical value. Informed and accessible, Disability Histories is essential for classrooms engaged in all facets of disability studies within and across disciplines.

2019 Foreword INDIES Award, Gold for Anthologies “Medicine still contains an oral tradition, passed down in stories: the stories patients tell us, the ones we tell them, and the ones we tell ourselves,” writes contributor Madaline Harrison. Bodies of Truth continues this tradition through a variety of narrative approaches by writers representing all facets of health care. And, since all of us have been or will be touched by illness or disability—our own or that of a loved one—at some point in our lives, any reader of this anthology can relate to the challenges, frustrations, and pain—both physical and emotional—that the contributors have experienced. Bodies of Truth offers perspectives on a wide array of issues, from food allergies, cancer, and neurology to mental health, autoimmune disorders, and therapeutic music. These experiences are recounted by patients, nurses, doctors, parents, children, caregivers, and others who attempt to articulate the intangible human and emotional factors that surround life when it intersects with the medical field.

For most of literary history, personal confessions about illness were considered too intimate to share publicly. By the mid-twentieth century, however, a series of events set the stage for the emergence of the illness narrative. The increase of chronic disease, the transformation of medicine into big business, the women's health movement, the AIDS/HIV pandemic, the advent of inexpensive paperbacks, and the rise of self-publishing all contributed to the proliferation of narratives about encounters with medicine and mortality. While the illness narrative is now a staple of the publishing industry, the genre itself has posed a problem for literary studies. What is the role of criticism in relation to personal accounts of suffering? Can these narratives be judged on aesthetic grounds? Are they a collective expression of the lost intimacy of the patient-doctor relationship? Is their function thus instrumental—to elicit the reader's empathy? To answer these questions, Ann Jurecic turns to major works on pain and suffering by Susan Sontag, Elaine Scarry, and Eve Sedgwick and reads these alongside illness narratives by Jean-Dominique Bauby, Reynolds Price, and Anne Fadiman, among others. In the process, she defines the subgenres of risk and pain narratives and explores a range of critical responses guided, alternately, by narrative empathy, the hermeneutics of suspicion, and the practice of reparative reading. Illness as Narrative seeks to draw wider attention to this form of life writing and to argue for new approaches to both literary criticism and teaching narrative. Jurecic calls for a practice that's both compassionate and critical. She asks that we consider why writers compose stories of illness, how readers receive them, and how both use these narratives to make meaning of human fragility and mortality.

By the 1970s, a therapeutic revolution, decades in the making, had transformed hemophilia from an obscure hereditary malady into a manageable bleeding disorder. Yet the glory of this achievement was short lived. The same treatments that delivered some normalcy to the lives of persons with hemophilia brought unexpectedly fatal results in the 1980s when people with the disease contracted HIV-AIDS and Hepatitis C in staggering numbers. The Bleeding Disease recounts the promising and perilous history of American medical and social efforts to manage hemophilia in the twentieth century. This is both a success story and a cautionary tale, one built on the emergence in the 1950s and 1960s of an advocacy movement that sought normalcy—rather than social isolation and hyper-protectiveness—for the boys and men who suffered from the severest form of the disease. Stephen Pemberton evokes the allure of normalcy as well as the human costs of medical and technological progress in efforts to manage hemophilia. He explains how physicians, advocacy groups, the blood industry, and the government joined patients and families in their unrelenting pursuit of normalcy—and the devastating, unintended consequences that pursuit entailed. Ironically, transforming the hope of a normal life into a purchasable commodity for people with bleeding disorders made it all too easy to ignore the potential dangers of delivering greater health and autonomy to hemophilic boys and men.

In light of materialist revisions of the Cartesian dual self and the increased recognition of memoir and autobiography as a crucial cultural index, the physical body has emerged in the last twenty-five years as an increasingly inescapable object of inquiry, speculation, and theory that intersects all of the various subgenres of life writing. New Essays on Life Writing and the Body thus offers a timely, original, focused, and yet appropriately interdisciplinary study of life writing. This collection brings together new work by established authorities in autobiography, such as Timothy Dow Adams, G. Thomas Couser, Cynthia Huff, and others, along with essays by emerging scholars in the field. Subjects range from new interpretations of well-known autobiographies by Edith Wharton, Gertrude Stein, and Lucy Grealy, as well as scholarly surveys of more recently defined subgenres, such as the numerous New Woman autobiographies of the late 19th century, adoption narratives, and sibling memoirs of the mentally impaired. Due to their wide, interdisciplinary focus, these essay will prove valuable not only to more traditional literary scholars interested in the classic literary autobiography but also to those in Women’s Studies, Ethnic and African-American Studies, as well as in emerging fields such as Disability Studies and Cognitive Studies.

Illness affects us all; we are called on to support and care for loved ones who face health challenges, and in turn, we encounter our own physical and emotional frailties when our health declines. Body & Soul features inspiring and award-winning fiction, essays, memoirs, poetry, photography, and visual art on the universal themes of wellness, treatment, and healing. Told from the points of view of patients, practitioners, caregivers, families, and friends, Body & Soul provides a powerful literary perspective on how we are challenged, bewildered, changed, and uplifted by our encounters with change, illness, and disease. Readers will appreciate the richness, depth, and diversity of these healing stories and will become motivated to generate and share their own transformative narratives. Together with the online discussion guide (providing questions relating to selected pieces in the anthology), Body & Soul is an ideal text for courses and support groups as well as individual reflection. Students and practitioners from all clinical disciplines and scholars in the humanities and social sciences will find this text invaluable.

A dazzling new anthology of 180 contemporary poems, selected and introduced by America’s Poet Laureate, Billy Collins. Inspired by Billy Collins’s poem-a-day program with the Library of Congress, Poetry 180 is the perfect anthology for readers who appreciate engaging, thoughtful poems that are an immediate pleasure. A 180-degree turn implies a turning back—in this case, to poetry. A collection of 180 poems by the most exciting poets at work today, Poetry 180 represents the richness and diversity of the form, and is designed to beckon readers with a selection of poems that are impossible not to love at first glance. Open the anthology to any page and discover a new poem to cherish, or savor all the poems, one at a time, to feel the full measure of contemporary poetry’s vibrance and abundance. With poems by Catherine Bowman, Lucille Clifton, Billy Collins, Dana Gioia, Edward Hirsch, Galway Kinnell, Kenneth Koch, Philip Levine, Thomas Lux, William Matthews, Frances Mayes, Paul Muldoon, Naomi Shihab Nye, Sharon Olds, Katha Pollitt, Mary Jo Salter, Charles Simic, David Wojahn, Paul Zimmer, and many more.