The future of disability in America will depend on how well the U.S. prepares for and manages the demographic, fiscal, and technological developments that will unfold during the next two to three decades. Building upon two prior studies from the Institute of Medicine (the 1991 Institute of Medicine's report Disability in America and the 1997 report Enabling America), The Future of Disability in America examines both progress and concerns about continuing barriers that limit the independence, productivity, and participation in community life of people with disabilities. This book offers a comprehensive look at a wide range of issues, including the prevalence of disability across the lifespan; disability trends the role of assistive technology; barriers posed by health care and other facilities with inaccessible buildings, equipment, and information formats; the needs of young people moving from pediatric to adult health care and of adults experiencing premature aging and secondary health problems; selected issues in health care financing (e.g., risk adjusting payments to health plans, coverage of assistive technology); and the organizing and financing of disability-related research. The Future of Disability in America is an assessment of both principles and scientific evidence for disability policies and services. This book's recommendations propose steps to eliminate barriers and strengthen the evidence base for future public and private actions to reduce the impact of disability on individuals, families, and society.

The Americans with Disabilities Act (ADA) and other national policies are designed to ensure the greatest possible inclusion of people with disabilities in all aspects of American life. But as a matter of national policy we still place the lion's share of responsibility for raising children with disabilities on their families. While this strategy largely works, sociologist Dennis Hogan maintains, the reality is that family financial security, the parents' relationship, and the needs of other children in the home all can be stretched to the limit. In Family Consequences of Children's Disabilities Hogan delves inside the experiences of these families and examines the financial and emotional costs of raising a child with a disability. The book examines the challenges families of children with disabilities encounter and how these challenges impact family life. The first comprehensive account of the families of children with disabilities, Family Consequences of Children's Disabilities employs data culled from seven national surveys and interviews with twenty-four mothers of children with disabilities, asking them questions about their family life, social supports, and how other children in the home were faring. Not surprisingly, Hogan finds that couples who are together when their child is born have a higher likelihood of divorcing than other parents do. The potential for financial insecurity contributes to this anxiety, especially as many parents must strike a careful balance between employment and caregiving. Mothers are less likely to have paid employment, and the financial burden on single parents can be devastating. One-third of children with disabilities live in single-parent households, and nearly 30 percent of families raising a child with a disability live in poverty. Because of the high levels of stress these families incur, support networks are crucial. Grandparents are often a source of support. Siblings can also assist with personal care and, consequently, tend to develop more helpful attitudes, be more inclusive of others, and be more tolerant. But these siblings are at risk for their own health problems: they are three times more likely to experience poor health than children in homes where there is no child with a disability. Yet this book also shows that raising a child with a disability includes unexpected rewards—the families tend to be closer, and they engage in more shared activities such as games, television, and meals. Family Consequences of Children's Disabilities offers access to a world many never see or prefer to ignore. The book provides vital information on effective treatment, rehabilitation, and enablement to medical professionals, educators, social workers, and lawmakers. This compelling book demonstrates that every mirror has two faces: raising a child with a disability can be difficult, but it can also offer expanded understanding. A Volume in the American Sociological Association's Rose Series in Sociology

Children living in poverty are more likely to have mental health problems, and their conditions are more likely to be severe. Of the approximately 1.3 million children who were recipients of Supplemental Security Income (SSI) disability benefits in 2013, about 50% were disabled primarily due to a mental disorder. An increase in the number of children who are recipients of SSI benefits due to mental disorders has been observed through several decades of the program beginning in 1985 and continuing through 2010. Nevertheless, less than 1% of children in the United States are recipients of SSI disability benefits for a mental disorder. At the request of the Social Security Administration, Mental Disorders and Disability Among Low-Income Children compares national trends in the number of children with mental disorders with the trends in the number of children receiving benefits from the SSI program, and describes the possible factors that may contribute to any differences between the two groups. This report provides an overview of the current status of the diagnosis and treatment of mental disorders, and the levels of impairment in the U.S. population under age 18. The report focuses on 6 mental disorders, chosen due to their prevalence and the severity of disability attributed to those disorders within the SSI disability program: attention-deficit/hyperactivity disorder, oppositional defiant disorder/conduct disorder, autism spectrum disorder, intellectual disability, learning disabilities, and mood disorders. While this report is not a comprehensive discussion of these disorders, Mental Disorders and Disability Among Low-Income Children provides the best currently available information regarding demographics, diagnosis, treatment, and expectations for the disorder time course - both the natural course and under treatment.

"What a marvelous and amazing textbook. Drs. Marini, Glover-Graf and Millington have done a remarkable job in the design of this highly unique book, that comprehensively and very thoughtfully addresses the psychosocial aspects of the disability experience. These highly respected scholars have produced a major work that will be a central text in rehabilitation education for years to come." From the Foreword by Michael J. Leahy, Ph.D., LPC, CRC Office of Rehabilitation and Disability Studies Michigan State University "This is an excellent book, but the best parts are the stories of the disabled, which give readers insights into their struggles and triumphs." Score: 94, 4 Stars--Doody's Medical Reviews What are the differences between individuals with disabilities who flourish as opposed to those who never really adjust after a trauma? How are those born with a disability different from individuals who acquire one later in life? This is the first textbook about the psychosocial aspects of disability to provide students and practitioners of rehabilitation counseling with vivid insight into the experience of living with a disability. It features the first-person narratives of 16 people living with a variety of disabling conditions, which are integrated with sociological and societal perspectives toward disability, and strategies for counseling persons with disabilities. Using a minority model perspective to address disability, the book focuses on historical perspectives, cultural variants regarding disability, myths and misconceptions, the attitudes of special interest and occupational groups, the psychology of disability with a focus on positive psychology, and adjustments to disability by the individual and family. A wealth of counseling guidelines and useful strategies are geared specifically to individual disabilities. Key Features: Contains narratives of people living with blindness, hearing impairments, spinal cord injuries, muscular dystrophy, polio, mental illness, and other disabilities Provides counseling guidelines and strategies specifically geared toward specific disabilities, including "dos and don'ts" Includes psychological and sociological research relating to individual disabilities Discusses ongoing treatment issues and ethical dilemmas for rehabilitation counselors Presents thought-provoking discussion questions in each chapter Authored by prominent professor and researcher who became disabled as a young adult

One in every seven children is disabled. Children with disabilities are among the most likely to be marginalized, poor and vulnerable. UNICEF is committed to improving the lives of children, particularly those who face the greatest disadvantages. The report will investigate the web of barriers disabled children face: discrimination, harmful norms and the lack of accurate information. The report will analyse and provide good-practice guidance on: inclusive health and education; prevention; nutrition; protection from violence, exploitation and abuse; emergency response; institutionalization; and the role of appropriate technology and infrastructure

Images of disabled children are found throughout well-known works of literature, film, and even opera. Their characters range from sweet, to brave, to tragic. Disabled children are also a part of the reality of life either in personal ways or as poster girls and boys for drives and causes. Behind these images is a historical presence that has been created by the societies in which these children live and have lived. This work examines current knowledge about children's experience of physical, cognitive, and emotional/behavioral impairments from the Colonial period to the present, while revealing the social constructions of both disability and childhood throughout American history. Just as disability has been advanced as an essential consideration in other historical inquiries, such as that of gender, this is a work intended to demonstrate the critical role of disability with respect to the history of childhood.

The most recent high-profile advocate for Americans with disabilities, actor Christopher Reeve, has highlighted for the public the economic and social costs of disability and the importance of rehabilitation. Enabling America is a major analysis of the field of rehabilitation science and engineering. The book explains how to achieve recognition for this evolving field of study, how to set priorities, and how to improve the organization and administration of the numerous federal research programs in this area. The committee introduces the "enabling-disability process" model, which enhances the concepts of disability and rehabilitation, and reviews what is known and what research priorities are emerging in the areas of: Pathology and impairment, including differences between children and adults. Functional limitationsâ€"in a person's ability to eat or walk, for example. Disability as the interaction between a person's pathologies, impairments, and functional limitations and the surrounding physical and social environments. This landmark volume will be of special interest to anyone involved in rehabilitation science and engineering: federal policymakers, rehabilitation practitioners and administrators, researchers, and advocates for persons with disabilities.

2021 Schneider Family Book Award Young Children's Honor Book (American Library Association) Experience the true story of lifelong activist Jennifer Keelan-Chaffins and her participation in the Capitol Crawl in this inspiring autobiographical picture book. This beautifully illustrated story includes a foreword from Jennifer and backmatter detailing her life and the history of the disability rights movement. This is the story of a little girl who just wanted to go, even when others tried to stop her. Jennifer Keelan was determined to make a change—even if she was just a kid. She never thought her wheelchair could slow her down, but the way the world around her was built made it hard to do even simple things. Like going to school, or eating lunch in the cafeteria. Jennifer knew that everyone deserves a voice! Then the Americans with Disabilities Act, a law that would make public spaces much more accessible to people with disabilities, was proposed to Congress. And to make sure it passed, Jennifer went to the steps of the Capitol building in Washington DC to convince them. And, without her wheelchair, she climbed. ALL THE WAY TO THE TOP! A Rise: A Feminist Book Project Nominee A Junior Library Guild Selection All the Way to the Top is perfect for: Elementary school teachers looking for books to supplement disability rights curriculum and the history of the ADA (find a free Common-Core Aligned Educator Guide at www.sourcebooks.com) Parents looking for social justice picture books, books on activism and for young activists, and inspiring books for girls Parents, teachers, librarians, and guardians looking for beautifully illustrated, inspirational and educational books for young readers in their life

Although the general public in the United States assumes children to be generally healthy and thriving, a substantial and growing number of children have at least one chronic health condition. Many of these conditions are associated with disabilities and interfere regularly with children's usual activities, such as play or leisure activities, attending school, and engaging in family or community activities. In their most severe forms, such disorders are serious lifelong threats to children's social, emotional well-being and quality of life, and anticipated adult outcomes such as for employment or independent living. However, pinpointing the prevalence of disability among children in the U.S. is difficult, as conceptual frameworks and definitions of disability vary among federal programs that provide services to this population and national surveys, the two primary sources for prevalence data. Opportunities for Improving Programs and Services for Children with Disabilities provides a comprehensive analysis of health outcomes for school-aged children with disabilities. This report reviews and assesses programs, services, and supports available to these children and their families. It also describes overarching program, service, and treatment goals; examines outreach efforts and utilization rates; identifies what outcomes are measured and how they are reported; and describes what is known about the effectiveness of these programs and services.

All-new clinical resource for managing children with developmental and behavioral concerns. Developed by leading experts in developmental and behavioral pediatrics, the all-new AAP Developmental and Behavioral Pediatrics gives one place to turn for expert recommendations to deliver, coordinate, and/or monitor quality developmental/behavioral care within the medical home. The one resource with all the essentials for pediatric primary care providers. Evaluation and care initiation: Interviewing and counseling, Surveillance and screening, Psychoeducational testing, Neurodevelopment.