An expert physician empowers parents to make informed decisions about their child’s care. Global impairment of the central nervous system, whether stable or progressive, is often called severe neurological impairment (SNI). A child who has SNI will be cared for both by specialist clinicians and by parents at home. A parent is a child’s best expert and advocate, and many parents become highly skilled in managing their child's care. This guide provides information to help parents increase their knowledge and improve their caregiving skills. In Caring for Children Who Have Severe Neurological Impairment, Dr. Julie M. Hauer advocates shared decision making between family caregivers and healthcare providers. She details aspects of medical care such as pain, sleep, feeding, and respiratory problems that will be particularly useful to parents. Tables and key points summarize discussions for clear, quick reference, while case studies and stories illustrate how different families approach decision making, communication, care plans, and informed consent. Parents and other caregivers will find this book to be indispensable—as will bioethicists and clinicians in pediatrics, neurology, physical and rehabilitative medicine, palliative care, and others who care for children with neurological and neuromuscular disorders. Dr. Hauer offers hope and practical coping strategies in equal measure.

From his childhood in Waco, Texas, where he took expert care of nine small cousins while the adults ate Sunday lunch, to Princeton and an offer from Broadway, to medical and psychoanalytic training, to the exquisite observations into newborn behavior that led babies to be seen in an entirely new light, Dr. T. Berry Brazelton's life has been one of innovation and caring. Known internationally for the Touchpoints theory of regression and growth in infants and young children, Brazelton is also credited for bringing the insights of child development into pediatrics, and for his powerful advocacy in Congress. In Learning to Listen, fans of Brazelton and professionals in his field can follow both the roots of a brilliant career and the evolution of child-rearing into the twenty-first century.

The transformational possibilities of everyday hygiene and care practices In order to mitigate the worst forecasts of climate change, many of us need to make drastic adjustments to how we live and what we consume. For Kelly Dombroski, these changes must also happen in the home: in rethinking routines of care and hygiene that still rely on disposable and plastic products. Caring for Life examines the remarkable evolution in Asia-Pacific hygiene practices and amplifies the creative work of ordinary people guarding human and more-than-human life in their everyday practices of care. Dombroski develops the concept of “guarding life,” a viewpoint that counters homogenous cultural practices and imposed sanitation standards and instead embraces diverse hygiene practices that are networked across varying wisdoms and bodies. She traces how the Chinese diaper-free infant toilet training practice of baniao has traveled to Australia and New Zealand, and she explores the practice of elimination communication, in which babies learn to communicate to their caregivers when they need to eliminate, thus removing the need for diapers. A mother herself, Dombroski conducted ethnographic research while mothering to examine how collectives of mothers draw on Chinese knowledge and their own embodied practices of childcare to create new hybrid forms of infant care. Caring for Life is a call to action, a theory of change, and a fascinating account of the transformational possibilities of care practices. It shows how experiments in personal care can lead to collective, widespread change, ultimately providing a practical and hopeful vision for environmental action. Retail e-book files for this title are screen-reader friendly with images accompanied by short alt text and/or extended descriptions.

First published in 1991. Routledge is an imprint of Taylor & Francis, an informa company. Investigates the ways in which nurses cope with the dying patient and the acute patient who will recover. Factors which influence transition between the two types of care examined. The author concludes that the most effective nurses are those who have formulated coherent attitudes towards the work.

Improve student outcomes with a new approach to relationships and networks Relationships matter. Who You Know explores this simple idea to give teachers and school administrators a fresh perspective on how to break the pattern of inequality in American classrooms. It reveals how schools can invest in the power of relationships to increase social mobility for their students. Discussions about inequality often focus on achievement gaps. But opportunity is about more than just test scores. Opportunity gaps are a function of not just what students know, but who they know. This book explores the central role that relationships play in young people’s lives, and provides guidance for a path forward. Schools can: Integrate student support models that increase access to caring adults in students’ lives Invest in learning models that strengthen teacher-student relationships Deploy emerging technologies that expand students’ networks to experts and mentors from around world Exploring the latest tools, data, and real-world examples, this book provides evidence-based guidance for educators looking to level the playing field and expert analysis on how policymakers and entrepreneurs can help. Networks need no longer be limited by geography or circumstance. By making room for relationships, K-12 schools can transform themselves into hubs of next-generation learning and connecting. Who You Know explains how.

"The Caregiving Trap" combines the authentic life and professional experience of Pamela D. Wilson, who provides recommendations for overwhelmed and frustrated caregivers who themselves may one day need care. "The Caregiving Trap" includes stories about Pamela's actual personal and professional experience along with end of chapter exercises to support caregivers. Common caregiving issues include: A sense of duty and obligation to provide care that damages family relationships Emotional and financial challenges resulting in denial of care needs Ignorance of predictive events that result in situations of crises or harm Delayed decision making and lack of planning resulting in limited choices Minimum standards of care supporting the need for advocacy

Family caregiving affects millions of Americans every day, in all walks of life. At least 17.7 million individuals in the United States are caregivers of an older adult with a health or functional limitation. The nation's family caregivers provide the lion's share of long-term care for our older adult population. They are also central to older adults' access to and receipt of health care and community-based social services. Yet the need to recognize and support caregivers is among the least appreciated challenges facing the aging U.S. population. Families Caring for an Aging America examines the prevalence and nature of family caregiving of older adults and the available evidence on the effectiveness of programs, supports, and other interventions designed to support family caregivers. This report also assesses and recommends policies to address the needs of family caregivers and to minimize the barriers that they encounter in trying to meet the needs of older adults.

To care can feel good, or it can feel bad. It can do good, it can oppress. But what is care? A moral obligation? A burden? A joy? Is it only human? In Matters of Care, María Puig de la Bellacasa presents a powerful challenge to conventional notions of care, exploring its significance as an ethical and political obligation for thinking in the more than human worlds of technoscience and naturecultures. Matters of Care contests the view that care is something only humans do, and argues for extending to non-humans the consideration of agencies and communities that make the living web of care by considering how care circulates in the natural world. The first of the book’s two parts, “Knowledge Politics,” defines the motivations for expanding the ethico-political meanings of care, focusing on discussions in science and technology that engage with sociotechnical assemblages and objects as lively, politically charged “things.” The second part, “Speculative Ethics in Antiecological Times,” considers everyday ecologies of sustaining and perpetuating life for their potential to transform our entrenched relations to natural worlds as “resources.” From the ethics and politics of care to experiential research on care to feminist science and technology studies, Matters of Care is a singular contribution to an emerging interdisciplinary debate that expands agency beyond the human to ask how our understandings of care must shift if we broaden the world.

Caring for the Dying describes a whole new way to approach death and dying. It explores how the dying and their families can bring deep meaning and great comfort to the care given at the end of a life. Created by Henry Fersko-Weiss, the end-of-life doula model is adapted from the work of birth doulas and helps the dying to find meaning in their life, express that meaning in powerful and beautiful legacies, and plan for the final days. The approach calls for around-the-clock vigil care, so the dying person and their family have the emotional and spiritual support they need along with guidance on signs and symptoms of dying. It also covers the work of reprocessing a death with the family afterward and the early work of grieving. Emphasis is placed on the space around the dying person and encourages the use of touch, guided imagery, and ritual during the dying process. Throughout the book Fersko-Weiss tells amazing and encouraging stories of the people he has cared for, as well as stories that come from doulas he has trained and worked with over the years. What is unique about this book is the well-conceived and thorough approach it describes to working skillfully with the dying. The guidance provided can help a dying person, their family, and caregivers to transform the dying experience from one of fear and despair into one that is uplifting and even life affirming. You will see death in a new light and gain a different perspective on how to help the dying. It may even change the way you live your life right now.

A doctor on the front lines of hospital care illuminates one of the most important and controversial social issues of our time. It is harder to die in this country than ever before. Though the vast majority of Americans would prefer to die at home—which hospice care provides—many of us spend our last days fearful and in pain in a healthcare system ruled by high-tech procedures and a philosophy to “fight disease and illness at all cost.” Dr. Ira Byock, one of the foremost palliative-care physicians in the country, argues that how we die represents a national crisis today. To ensure the best possible elder care, Dr. Byock explains we must not only remake our healthcare system but also move beyond our cultural aversion to thinking about death. The Best Care Possible is a compelling meditation on medicine and ethics told through page-turning life-or-death medical drama. It has the power to lead a new national conversation.