This book departs from conventional bioethics approaches to consider the different moral and political economies involved in the donation and transformation of human organs, gametes, stem cells and breastmilk. Collectively, the authors draw attention to the different values associated with research and therapy on body part and tissue exchange through an examination of altruism, gift and commodity relations. They expertly discuss issues such as the bioethical conundrums around the circulation and use of human biological materials and services as well as their legal and regulatory limits, the economic benefits and health values attributed to various body parts and products, and the matter of immaterial labour and affective relations between donors, recipients and others involved in tissue provision. Based on new empirical research, this interdisciplinary collection of original and timely essays will be of interest to students and researchers in gender and cultural studies, sociology, anthropology, science and technology studies, as well as medical professionals with an interest in health and reproduction.

#1 NEW YORK TIMES BESTSELLER • “The story of modern medicine and bioethics—and, indeed, race relations—is refracted beautifully, and movingly.”—Entertainment Weekly NOW A MAJOR MOTION PICTURE FROM HBO® STARRING OPRAH WINFREY AND ROSE BYRNE • ONE OF THE “MOST INFLUENTIAL” (CNN), “DEFINING” (LITHUB), AND “BEST” (THE PHILADELPHIA INQUIRER) BOOKS OF THE DECADE • ONE OF ESSENCE’S 50 MOST IMPACTFUL BLACK BOOKS OF THE PAST 50 YEARS • WINNER OF THE CHICAGO TRIBUNE HEARTLAND PRIZE FOR NONFICTION NAMED ONE OF THE BEST BOOKS OF THE YEAR BY The New York Times Book Review • Entertainment Weekly • O: The Oprah Magazine • NPR • Financial Times • New York • Independent (U.K.) • Times (U.K.) • Publishers Weekly • Library Journal • Kirkus Reviews • Booklist • Globe and Mail Her name was Henrietta Lacks, but scientists know her as HeLa. She was a poor Southern tobacco farmer who worked the same land as her slave ancestors, yet her cells—taken without her knowledge—became one of the most important tools in medicine: The first “immortal” human cells grown in culture, which are still alive today, though she has been dead for more than sixty years. HeLa cells were vital for developing the polio vaccine; uncovered secrets of cancer, viruses, and the atom bomb’s effects; helped lead to important advances like in vitro fertilization, cloning, and gene mapping; and have been bought and sold by the billions. Yet Henrietta Lacks remains virtually unknown, buried in an unmarked grave. Henrietta’s family did not learn of her “immortality” until more than twenty years after her death, when scientists investigating HeLa began using her husband and children in research without informed consent. And though the cells had launched a multimillion-dollar industry that sells human biological materials, her family never saw any of the profits. As Rebecca Skloot so brilliantly shows, the story of the Lacks family—past and present—is inextricably connected to the dark history of experimentation on African Americans, the birth of bioethics, and the legal battles over whether we control the stuff we are made of. Over the decade it took to uncover this story, Rebecca became enmeshed in the lives of the Lacks family—especially Henrietta’s daughter Deborah. Deborah was consumed with questions: Had scientists cloned her mother? Had they killed her to harvest her cells? And if her mother was so important to medicine, why couldn’t her children afford health insurance? Intimate in feeling, astonishing in scope, and impossible to put down, The Immortal Life of Henrietta Lacks captures the beauty and drama of scientific discovery, as well as its human consequences.

Bioethics asks fundamental questions. 'Who lives? Who dies? Who decides?' These questions are relevant to us all. Too often, the general public's sole encounter with these weighty questions is through sound bites fed to us by the media—where complex, difficult matters are typically presented in superficial and inaccurate terms. Here, renowned bioethicist Albert R. Jonsen equips readers with the tools and background to navigate the fascinating and complex landscape of bioethics. Bioethics Beyond the Headlines is a primer. You will not find convoluted philosophical arguments in this volume. Rather, you will find an engaging sampling of the key questions in bioethics, including euthanasia, assisted reproduction, cloning and stem cells, neuroscience, access to healthcare, and even research on animals and questions of environmental ethics—areas typically overlooked in general introductions to bioethics. But a 'primer' is not merely a first book—it should also 'prime' the interest of the reader, to prepare the mind for a more expansive venture into these issues. Bioethics Beyond the Headlines intends to do just that.

The feeding of human milk to socially and biologically unrelated infants is not a new phenomenon, but the Euroamerican values of individualism have generated expectations that mothers are individually responsible for feeding their own infants. Using a bio-communities of practice framework, this dynamic new analysis explores the emotional and material dimensions of the growing milk sharing practice in the Global North and its implications for contemporary understandings of infant feeding in the US. Ranging widely across themes of motherhood, gender and sociology, this is a compelling empirical account of infant feeding that stimulates new thinking about a contentious practice.

Bioethics has paid surprisingly little attention to the special problems faced by women and to feminist analyses of current health care issues other than reproduction. Feminism & Bioethics: Beyond Reproduction aims to counterbalance this one-sided approach. A breakthrough volume of original essays authored by leading figures in bioethics and feminist theory, it moves beyond reproduction and nursing, taking bioethics into new territory. The book starts with an investigation of the relationship between feminism and bioethics and introduces different approaches to the problem. Chapters stress the importance of liberal feminism which prefers feminist over feminine analysis, integrate the experience of women of color, draw from the women's self-help movement, and apply feminist standpoint theory. In the second part of the book, contributors view various bioethical problems from a feminist perspective: euthanasia, AIDS, the definition of health, doctor-patient communication, the Human Genome Project, the conduct of biomedical research, and health care reform. They examine the pros and cons of the application of gender and feminism to bioethics. This provocative volume is bound to change and broaden the way bioethicists, students, patients, and the public consider bioethical issues.

This book addresses responses to the predicament of medical and social infertility. It draws on international research to examine the dimensions of reproductive citizenship in relation to decision-making about a range of issues: from fertility preservation and the desirability of family creation as a normative expectation of social participation, to how families manage and negotiate engagement with providers of reproductive materials and services around information disclosure and contact, and how they consider their social obligations and responsibilities in relation to the use of assisted reproductive technology (ART).

An argument for putting sentiment aside and maximizing the practical impact of our donated dollars: “Powerful, provocative” (Nicholas Kristof, The New York Times). Peter Singer’s books and ideas have been disturbing our complacency ever since the appearance of Animal Liberation. Now he directs our attention to a challenging new movement in which his own ideas have played a crucial role: effective altruism. Effective altruism is built upon the simple but profoundly unsettling idea that living a fully ethical life involves doing the “most good you can do.” Such a life requires a rigorously unsentimental view of charitable giving: to be a worthy recipient of our support, an organization must be able to demonstrate that it will do more good with our money or our time than other options open to us. Singer introduces us to an array of remarkable people who are restructuring their lives in accordance with these ideas, and shows how, paradoxically, living altruistically often leads to greater personal fulfillment than living for oneself. Doing the Most Good develops the challenges Singer has made, in the New York Times and Washington Post, to those who donate to the arts, and to charities focused on helping our fellow citizens, rather than those for whom we can do the most good. Effective altruists are extending our knowledge of the possibilities of living less selfishly, and of allowing reason, rather than emotion, to determine how we live. Doing the Most Good offers new hope for our ability to tackle the world’s most pressing problems.

In this original and compelling book, Jeffrey P. Bishop, a philosopher, ethicist, and physician, argues that something has gone sadly amiss in the care of the dying by contemporary medicine and in our social and political views of death, as shaped by our scientific successes and ongoing debates about euthanasia and the “right to die”—or to live. The Anticipatory Corpse: Medicine, Power, and the Care of the Dying, informed by Foucault’s genealogy of medicine and power as well as by a thorough grasp of current medical practices and medical ethics, argues that a view of people as machines in motion—people as, in effect, temporarily animated corpses with interchangeable parts—has become epistemologically normative for medicine. The dead body is subtly anticipated in our practices of exercising control over the suffering person, whether through technological mastery in the intensive care unit or through the impersonal, quasi-scientific assessments of psychological and spiritual “medicine.” The result is a kind of nihilistic attitude toward the dying, and troubling contradictions and absurdities in our practices. Wide-ranging in its examples, from organ donation rules in the United States, to ICU medicine, to “spiritual surveys,” to presidential bioethics commissions attempting to define death, and to high-profile cases such as Terri Schiavo’s, The Anticipatory Corpse explores the historical, political, and philosophical underpinnings of our care of the dying and, finally, the possibilities of change. This book is a ground-breaking work in bioethics. It will provoke thought and argument for all those engaged in medicine, philosophy, theology, and health policy.

This book explores the new ways in which biology is becoming technology. The revolutionary iPS cell technology has made it possible to turn human skin and blood cells into pluripotent stem cells, thus providing an unprecedented opportunity to study the pathophysiology of diseases, understand human developmental biology, and generate new therapies. Drawing from a rich ethnographic study, Meskus traces the making of the iPS cell technology through the perspectives of clinical translation, laboratory experimentation, and tissue donation by voluntary patients. Discussing non-human agency, the embodied and affective basis of knowledge production, and the material politics of science, the book develops the idea of an instrumentality-care continuum as a fundamental dynamic of biomedical craft. This continuum, Meskus argues, opens up a novel perspective to the commercialization and industrial-scale appropriation of human biology, and thereby to the future of ethical biomedical research.

Altruism in Cross-Cultural Perspective provides such a scholarly overview, examining the intersection of culture and such topics as evolutionary accounts of altruism and the importance of altruism in ritual and religion. ​​The past decade has seen a proliferation of research on altruism, made possible in part by significant funding from organizations such as the John Templeton Foundation. While significant research has been conducted on biological, social, and individual dimensions of altruism, there has been no attempt to provide an overview of the ways that altruistic behavior and attitudes vary across cultures. The book addresses the methodological challenges of researching altruism across cultures, as well as the ways that altruism is manifest in difficult circumstances. A particular strength of the book is its attention to multiple disciplinary approaches to understanding altruism, with contributors from fields including psychology, anthropology, sociology, biology, communication, philosophy, religious studies, gender studies, and bioethics.​