Adherence and Self-Management in Pediatric Populations addresses the contemporary theories, evidence-based assessments, and intervention approaches for common pediatric chronic illnesses. An introductory chapter summarizes the state of the field and provides a general foundation in adherence and self-management. Subsequent chapters focus on specific diseases, ensuring that the scope of knowledge contained therein is current and thorough, especially as the assessments and interventions can be specific to each disease. Case examples are included within each chapter to illustrate the application of these approaches. The book ends with an emerging areas chapter to illuminate the future of adherence science and clinical work. This book will be extremely helpful to professionals beginning to treat youth with suboptimal adherence or for those who conduct adherence research. Experts in the field will benefit from the synthesized literature to aid in clinical decision-making and advancing adherence science. - Organized by disease for quick reference - Provides case examples to illustrate concepts - Incorporates technology-focused measurement and intervention approaches (mobile and electronic health) throughout

In the United States, chronic diseases currently account for 70 percent of all deaths, and close to 48 million Americans report a disability related to a chronic condition. Today, about one in four Americans have multiple diseases and the prevalence and burden of chronic disease in the elderly and racial/ethnic minorities are notably disproportionate. Chronic disease has now emerged as a major public health problem and it threatens not only population health, but our social and economic welfare. Living Well with Chronic Disease identifies the population-based public health actions that can help reduce disability and improve functioning and quality of life among individuals who are at risk of developing a chronic disease and those with one or more diseases. The book recommends that all major federally funded programmatic and research initiatives in health include an evaluation on health-related quality of life and functional status. Also, the book recommends increasing support for implementation research on how to disseminate effective longterm lifestyle interventions in community-based settings that improve living well with chronic disease. Living Well with Chronic Disease uses three frameworks and considers diseases such as heart disease and stroke, diabetes, depression, and respiratory problems. The book's recommendations will inform policy makers concerned with health reform in public- and private-sectors and also managers of communitybased and public-health intervention programs, private and public research funders, and patients living with one or more chronic conditions.

This book presents the current state of the nursing science in topics relevant to the care of pediatric oncology patients and their families across the treatment trajectory and is framed within a precision health framework. The spectrum of topics covered is wide, including, for example, symptom management, self-care management, exercise and physical activity, family-centered care, palliative care, the role of the nurse in treatment decision making, patient and nurse resiliency, survivorship, and genetic counseling. Throughout, there is a focus on the implications of research for nursing practice, highlighting which elements of the available evidence are ready for translation into practice and which are not. In addition, careful attention is paid to the role that nursing can play in further advancing science through clinical research. The authors are leading experts from across the globe. The book will be of special interest for pediatric oncology nurses, including direct care nurses, research nurses, and nursing leaders, and will also be a stimulating source for researchers and non-oncology nurses.

Thousands of practitioners and students have relied on this handbook, now thoroughly revised, for authoritative information on the links between psychological and medical issues from infancy through adolescence. Sponsored by the Society of Pediatric Psychology, the volume explores psychosocial aspects of specific medical problems, as well as issues in managing developmental and behavioral concerns that are frequently seen in pediatric settings. The book describes best practices in training and service delivery and presents evidence-based approaches to intervention with children and families. All chapters have been rigorously peer reviewed by experts in the field. New to This Edition: *Chapters on rural health, the transition to adult medical care, prevention, and disorders of sex development. *Expanded coverage of epigenetics, eHealth applications, cultural and ethnic diversity, spina bifida, and epilepsy. *Many new authors; extensively revised with the latest with the latest information on clinical populations, research methods, and interventions. *Chapters on training and professional competencies, and quality improvement and cost-effectiveness, and international collaborations. See also Clinical Practice of Pediatric Psychology, edited by Michael C. Roberts, Brandon S. Aylward, and Yelena P. Wu, which uses rich case material to illustrate intervention techniques.

Winner of the 2021 PROSE Award for CLINICAL PSYCHOLOGY and PSYCHIATRY Against a global backdrop of problematic adherence to medical treatment, this volume addresses and provides practical solutions to the simple question: "Why don't patients take treatments that could save their lives?" The Wiley handbook of Healthcare Treatment Engagement offers a guide to the theory, research and clinical practice of promoting patient engagement in healthcare treatment at individual, organizational and systems levels. The concept of treatment engagement, as explained within the text, promotes a broader view than the related concept of treatment adherence. Treatment engagement encompasses more readily the lifestyle factors which may impact healthcare outcomes as much as medication-taking, as well as practical, economic and cultural factors which may determine access to treatment. Over a span of 32 chapters, an international panel of expert authors address this far-reaching and fascinating field, describing a broad range of evidence-based approaches which stand to improve clinical services and treatment outcomes, as well as the experience of users of healthcare service and practitioners alike. This comprehensive volume adopts an interdisciplinary approach to offer an understanding of the factors governing our healthcare systems and the motivations and behaviors of patients, clinicians and organizations. Presented in a user-friendly format for quick reference, the text first supports the reader’s understanding by exploring background topics such as the considerable impact of sub-optimal treatment adherence on healthcare outcomes, before describing practical clinical approaches to promote engagement in treatment, including chapters referring to specific patient populations. The text recognizes the support which may be required throughout the depth of each healthcare organization to promote patient engagement, and in the final section of the book, describes approaches to inform the development of healthcare services with which patients will be more likely to seek to engage. This important book: Provides a comprehensive summary of practical approaches developed across a wide range of clinical settings, integrating research findings and clinical literature from a variety of disciplines Introduces and compliments existing approaches to improve communication in healthcare settings and promote patient choice in planning treatment Presents a range of proven clinical solutions that will appeal to those seeking to improve outcomes on a budget Written for health professionals from all disciplines of clinical practice, as well as service planners and policy makers, The Wiley Handbook of Healthcare Treatment Engagement is a comprehensive guide for individual practitioners and organizations alike. 2021 PROSE Biological and Life Sciences Category for Clinical Psychology & Psychiatry

While in the late 1970s and early 1980s health compliance research on adults represented a vigorous field of study, a marked decline of interest on the topic set in during the last part of the 1980s. By contrast, research on health compliance involving pediatric populations was less popular during the same period; however, interest in this topic -- as evidenced by the contributions to this volume -- is on the increase. Four main themes -- relating to theory, measurement, prevention, and intervention -- emerge and are interwoven among the chapters. These themes help to bind and unify the volume into a conceptual whole because although the sections are divided along thematic lines, contributors often include elements of some or all of the themes in their chapters. This state of affairs reflects the interdependence of these thematic issues and suggests how important they are for the state of the art.

Rehabilitation psychology is one of the fastest growing fields in applied psychology and involves the application of psychological knowledge and skills to the understanding and treatment of individuals with physical disabilities. Rehabilitation psychologists aim to optimize outcomes in terms of health, independence, and daily functioning while also minimizing secondary health problems. The Oxford Handbook of Rehabilitation Psychology provides background and overview of the associated psychological processes and types of interventions that are critical in managing the consequences of disability and chronic disease. Psychological models and research have much to contribute to those working with the physical disabilities; this volume has a broad cognitive behavioral focus within the general banner of the biopsychosocial framework. The editor has successfully brought together contributions from a range of well-established and experienced researchers and practitioners from a wide variety of clinical and academic contexts. They highlight the critical psychological aspects, review applied interventions, and consider the wider conceptual, clinical and professional themes associated with disability and society.