Intersex is the condition whereby an individual is born with biological features that are simultaneously perceived as male and female. Ranging from the ambiguous genitalia of the true 'hermaphrodite' to the 'mildly or internally intersexed', the condition may be as common as cleft palate. Like cleft palate, it is hidden and surgically altered, but for very different reasons. This important book draws heavily on the personal testimony of intersexed individuals, their loved ones, and medical careers. The impact of early sex-assignment surgery on an individual's later life is examined within the context of ethical and clinical questions. Harper challenges the conventional and radical 'treatment' of intersexuality through non-consensual infant sex-assignment surgery. In doing so she exposes powerful myths, taboos, and constructions of gender - the perfect phallus, a bi-polar model of gender and the infallibility of medical decisions. Handling sensitive material with care, this book deepens our understanding of a condition that has itself only been medically understood in recent years.

"When sociologist Georgiann Davis was a teenager, her doctors discovered that she possessed XY chromosomes, marking her as intersex. Rather than share this information with her, they withheld the diagnosis in order to "protect" the development of her gender identity; it was years before Davis would see her own medical records as an adult and learn the truth. Davis' experience is not unusual. Many intersex people feel isolated from one another and violated by medical practices that support conventional notions of the male/female sex binary which have historically led to secrecy and shame about being intersex. Yet, the rise of intersex activism and visibility in the US has called into question the practice of classifying intersex as an abnormality, rather than as a mere biological variation. This shift in thinking has the potential to transform entrenched intersex medical treatment. In Contesting Intersex, Davis draws on interviews with intersex people, their parents, and medical experts to explore the oft-questioned views on intersex in medical and activist communities, as well as the evolution of thought in regards to intersex visibility and transparency. She finds that framing intersex as an abnormality is harmful and can alter the course of one's life. In fact, controversy over this framing continues, as intersex has been renamed a 'disorder of sex development' throughout medicine. This happened, she suggests, as a means for doctors to reassert their authority over the intersex body in the face of increasing intersex activism in the 1990s and feminist critiques of intersex medical treatment. Davis argues the renaming of 'intersex' as a 'disorder of sex development' is strong evidence that the intersex diagnosis is dubious. Within the intersex community, though, disorder of sex development terminology is hotly disputed; some prefer not to use a term which pathologizes their bodies, while others prefer to think of intersex in scientific terms. Although terminology is currently a source of tension within the movement, Davis hopes intersex activists and their allies can come together to improve the lives of intersex people, their families, and future generations. However, for this to happen, the intersex diagnosis, as well as sex, gender, and sexuality, needs to be understood as socially constructed phenomena." -- Publisher's description

From one of the world's foremost intersex activists, a candid, provocative, and eye-opening memoir of gender identity, self-acceptance, and love. My name is Hida Viloria. I was raised as a girl but discovered at a young age that my body looked different. Having endured an often turbulent home life as a kid, there were many times when I felt scared and alone, especially given my attraction to girls. But unlike most people in the first world who are born intersex--meaning they have genitals, reproductive organs, hormones, and/or chromosomal patterns that do not fit standard definitions of male or female--I grew up in the body I was born with because my parents did not have my sex characteristics surgically altered at birth. It wasn't until I was twenty-six and encountered the term intersex in a San Francisco newspaper that I finally had a name for my difference. That's when I began to explore what it means to live in the space between genders--to be both and neither. I tried living as a feminine woman, an androgynous person, and even for a brief period of time as a man. Good friends would not recognize me, and gay men would hit on me. My gender fluidity was exciting, and in many ways freeing--but it could also be isolating. I had to know if there were other intersex people like me, but when I finally found an intersex community to connect with I was shocked, and then deeply upset, to learn that most of the people I met had been scarred, both physically and psychologically, by infant surgeries and hormone treatments meant to "correct" their bodies. Realizing that the invisibility of intersex people in society facilitated these practices, I made it my mission to bring an end to it--and became one of the first people to voluntarily come out as intersex at a national and then international level. Born Both is the story of my lifelong journey toward finding love and embracing my authentic identity in a world that insists on categorizing people into either/or, and of my decades-long fight for human rights and equality for intersex people everywhere.

Introduction: intersex/uality is trouble -- Making meaning: representations and misrepresentations -- Representations and misrepresentations -- Bodies, knowledge, and identity -- Rethinking the meaning and management of intersexuality.

A philosopher offers a framework for the treatment of intersex children, and a moral argument for responsibility to them and their families. Putting the ethical tools of philosophy to work, Ellen K. Feder seeks to clarify how we should understand “the problem” of intersex. Adults often report that medical interventions they underwent as children to “correct” atypical sex anatomies caused them physical and psychological harm. Proposing a philosophical framework for the treatment of children with intersex conditions—one that acknowledges the intertwined identities of parents, children, and their doctors—Feder presents a persuasive moral argument for collective responsibility to these children and their families. “In a voice both urgent and nuanced, Feder squarely faces the complexities that accompany the care of people with atypical sex anatomies in medical science. . . . Rich with cross-discipline potential, Feder’s engaging argument should provide a new approach for doctors and parents caring for children with atypical sex anatomy.” —Publishers Weekly, starred review “Feder’s book is a welcome injection of new ideas into feminist scholarship on intersex, post-Consensus Statement era.” —Women’s Review of Books “Is a work of philosophy capable of bringing insightful new perspectives or illuminating and forceful arguments to an urgent social matter so as truly to effect a felt change in the lives of people concerned by it? Feder’s book is capable of this effect. As such, it takes the risk of calling forth a new public, or a new readership, and so is a work whose appeal could well be ahead of its time. But its time should be here.” —International Journal of Feminist Approaches to Bioethics “Making Sense of Intersex significantly enhances our understanding of intersex and the ethical issues involved in medical practice more generally.” —Kennedy Institute of Ethics Journal

Examines how intersexed individuals negotiate identity in a dual gendered culture.

This collection of 21 articles is designed to serve as a state-of-the art reference book for intersexuals, their parents, health care professionals, ethics committee members, and anyone interested in problems associated with intersexuality. It fills an important need because of its uniqueness as an interdisciplinary effort, bringing together not just urologists and endocrinologists, but gynecologists, psychiatrists, psychologists, lawyers, theologians, gender theorists, medical historians, and philosophers. Most contributors are well-known experts on intersexuality in their respective fields. The book is also unique in that it is also an international effort, including authors from England, the Netherlands, Germany, Australia, India, Canada and the United States. The book begins with introductory chapters on the etiology of intersex conditions, conceptual clarification, legal issues, and reflections about the inherent characteristics of medical care that have led up to the issues we face today and explain the resistance to change in traditional practices. Researchers provide recent data on gender identity, surgical outcomes, and appropriate clinical care. Issues never having been addressed are introduced. The significance of intersexuality for Christianity and for philosophical concerns with authenticity add further depth to the collection. The final chapters deal with future possibilities in the treatment of intersex and for intersex advocacy.

This book explores representations of intersex - intersex persons, intersex communities, and intersex as a cultural concept and knowledge category - in contemporary North American literature and popular culture. The study turns its attention to the significant paradigm shift in the narratives on intersex that occurred within early 1990s intersex activism in response to biopolitical regulations of intersex bodies. Focusing on the emergence of recent autobiographical stories and cultural productions like novels and TV series centering around intersex, Viola Amato provides a first systematic analysis of an activism-triggered resignification of intersex.

Intersex and/as/is/with disability. The connections between intersex and disability deserve nuanced attention if we are to strengthen intersex human rights claims and understand the experiences of intersex people living with the disabling consequences of medical intervention. Cripping Intersex explores three key themes: the medical management of people with intersex characteristics; the mainstream fascination with sport sex-testing policies; and the eugenic implications of preimplantation genetic diagnosis. This necessary work offers radical new understandings of intersex-with-disability by investigating how intersex and interphobia intersect with disability and ableism, and pushes analyses of intersex experience further than feminist or queer theory can do alone.

To date, intersex studies has not received the scholarly attention it deserves as research in this area has been centred around certain key questions, scholars and geographical regions. Exploring previously neglected territories, this book broadens the scope of intersex studies, whilst adopting perspectives that turn the gaze of the liberal, humanist, scientific outlook upon itself, in order to reconfigure debates about rights, autonomy and subjectivity, and challenges the accepted paradigms of intersex identity politics. Presenting the latest theoretical and empirical research from an international group of experts, this is a truly interdisciplinary volume containing critical approaches from both the humanities and social sciences. With its contributions to sociology, anthropology, medicine, law, history, cultural studies, psychology and psychoanalysis, Critical Intersex will appeal to scholars and clinical practitioners alike.