A revealing account of how families adapt to living with a chronically ill child What is it like to live with a child who has a chronic, life-threatening disease? What impact does the illness have on well siblings in the family? Myra Bluebond-Langner suggests that understanding the impact of the illness lies not in identifying deficiencies in the lives of those affected, but in appreciating how family members carry on with their lives in the face of the disease's intrusion. The Private Worlds of Dying Children, Bluebond-Langner's previous book, now considered a classic in the field, explored the world of terminally ill children. In her new book, she turns her attention to the lives of those who live in the shadow of chronic illness: the parents and well siblings of children who have cystic fibrosis. Through a series of narrative portraits, she draws us into the daily lives of nine families of children at different points in the natural history of the illness—from diagnosis through the terminal phase. In these portraits, as family members talk about their experiences in their own words, we see how parents, well siblings, and the ill children themselves struggle, in different ways, to contain the intrusion of the disease into their lives. Bluebond-Langner looks at how parents adjust their priorities and their idea of what constitutes a normal life, how they try to balance the needs of other family members while caring for the ill child, and how they see the future. This context helps us understand how well siblings view the illness and how they relate to their ill sibling and parents. Since the issues raised are not unique to cystic fibrosis but are common to other chronic and life-threatening illnesses, this book will be of interest to all who study, care for, or live with the seriously ill.

The practice of medicine has advanced dramatically in recent years, but the language used to discuss illness – by medical practitioners, patients and carers – has not kept pace. As a result, clinicians and, just as importantly, patients and their relatives and carers, are not able to communicate clearly in relation to illness. The upshot is misunderstanding and confusion on all sides. In this ground-breaking book, Dr Fergus Shanahan, an eminent gastroenterologist who has practised in Ireland, the United States and Canada, and published widely around the world, looks at memoirs of illness, and outlines the lessons we can learn from a better understanding of the words we use to describe illness. He looks at the ways in which language can act as a barrier with regard to illness, and proposes practical ways in which we can dismantle these barriers. The book is written for the general reader: as Dr Shanahan puts it himself, he is "enough of an expert to be wary of experts". The Language of Illness, part manifesto, part memoir, and part instruction manual, is an appeal for the use of clearer, more holistic language, by all those involved with, and affected by, illness. Like the great American poet-doctor William Carlos Williams, he aims to help us develop a new language by means of which we can develop a new way of living with illness – which is an integral part of the human condition. Put simply, it is a book for all those who care about caring.

`This book is a "must read" for all students of health psychology, and will be of considerable interest and value to others interested in the field. The discipline has not involved itself with the central issues of this book so far, but Radley has now brought this material together in an accessible way, offering important new perspectives, and directions for the discipline. This book goes a long way towards making sense for, and of, health psychology′ - Journal of Health Psychology What are people′s beliefs about health? What do they do when they feel ill? Why do they go to the doctor? How do they live with chronic disease? This introduction to the social psychology of health and illness addresses these and other questions about how people make sense of illness in everyday life, either alone or with the help of others. Alan Radley reviews findings from medical sociology, health psychology and medical anthropology to demonstrate the relevance of social and psychological explanations to questions about disease and its treatment. Topics covered include: illness, the patient and society; ideas about health and staying healthy; recognizing symptoms and falling ill; and the healing relationship: patients, nurses and doctors. The author also presents a critical account of related issues - stress, health promotion and gender differences.

The Routledge History of Disease draws on innovative scholarship in the history of medicine to explore the challenges involved in writing about health and disease throughout the past and across the globe, presenting a varied range of case studies and perspectives on the patterns, technologies and narratives of disease that can be identified in the past and that continue to influence our present. Organized thematically, chapters examine particular forms and conceptualizations of disease, covering subjects from leprosy in medieval Europe and cancer screening practices in twentieth-century USA to the ayurvedic tradition in ancient India and the pioneering studies of mental illness that took place in nineteenth-century Paris, as well as discussing the various sources and methods that can be used to understand the social and cultural contexts of disease. Chapter 24 of this book is freely available as a downloadable Open Access PDF under a Creative Commons Attribution-Non Commercial-No Derivatives 3.0 license. https://www.routledgehandbooks.com/doi/10.4324/9781315543420.ch24

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This classic book, long out of print in English, challenges accepted ideas of illness by suggesting it’s not an enemy to be fought. When you see your symptoms as bodily expressions of psychological or spiritual conflicts, you can use them as guides to inner work. You can respond to troubles with infection, allergies, respiration, digestion, skin, nervous system, heart and circulation, sexuality and pregnancy, even accidents, with practical actions that heal the heart and mind.

This book contains excerpts of life stories from 118 individuals diagnosed with schizophrenia, bipolar disorder, borderline personality disorder, and major depressive disorder. This library of personal narratives, heavily reproduced and quoted throughout the text, presents a composite image of the ways in which narrative identity can be affected by mental illness while also being a resource for personal recovery. Those researching, studying or practicing in mental health professions will find a wealth of humanizing first-person perspectives on mental illness that foster perspective-taking and aid patient-centered treatment and study. Researchers of narrative psychology will find a unique set of life stories synthesized with existing literature on identity and recovery. Moving towards intervention, the authors include a 'guide for narrative repair' with the aim of healing narrative identity damage and fostering growth of adaptive narrative identity.

This work questions the problematic connections between illness and modernity: the complicated negotiations involving the body both in its physicality and phenomenology and the poetics and praxiality of illness. The project, which is predominantly conceptual in nature, for it does not see illness solely as a clinical-physical category (leaning heavily on the medical sciences), but rather perspectivizes its phenomenology and pathographical limits and manifestations, lateralizing on its critical correspondences with a selection of modernist texts ranging from Virginia Woolf to Samuel Beckett. The book unearths different ‘possibilities’ of illness without denying its (quite natural) association with morbidity, pain, suffering, dying and death. It looks at illness and its effects on different bodies phenomenologically with the help of some twentieth-century philosophers, including Martin Heidegger, Jean Luc-Nancy, Maurice Merleau-Ponty, Jean-Paul Sartre and Emmanuel Levinas. The book locates these phenomenological understandings in a reading of some of the important literary works of early twentieth-century Europe — five literary works from five different genres (poetry, drama, fiction, non-fiction and epistle) — critiquing the relevance of the phenomenological body in the literary and narrative world of the texts. The author deals with Samuel Beckett’s Endgame, Franz Kafka’s letters, Thomas Mann’s Death in Venice, Virginia Woolf’s On Being Ill and T. S. Eliot’s The Wasteland within the aesthetico-philosophical space and the epistemic dialogism that modernist aesthetics implies and espouses.