This User’s Guide is intended to support the design, implementation, analysis, interpretation, and quality evaluation of registries created to increase understanding of patient outcomes. For the purposes of this guide, a patient registry is an organized system that uses observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for a population defined by a particular disease, condition, or exposure, and that serves one or more predetermined scientific, clinical, or policy purposes. A registry database is a file (or files) derived from the registry. Although registries can serve many purposes, this guide focuses on registries created for one or more of the following purposes: to describe the natural history of disease, to determine clinical effectiveness or cost-effectiveness of health care products and services, to measure or monitor safety and harm, and/or to measure quality of care. Registries are classified according to how their populations are defined. For example, product registries include patients who have been exposed to biopharmaceutical products or medical devices. Health services registries consist of patients who have had a common procedure, clinical encounter, or hospitalization. Disease or condition registries are defined by patients having the same diagnosis, such as cystic fibrosis or heart failure. The User’s Guide was created by researchers affiliated with AHRQ’s Effective Health Care Program, particularly those who participated in AHRQ’s DEcIDE (Developing Evidence to Inform Decisions About Effectiveness) program. Chapters were subject to multiple internal and external independent reviews.

Transformative scenario planning is a way that people can work together with others to transform themselves and their relationships with one another and their systems. In this simple and practical book, Kahane explains this methodology and how to use it.

The environment for obtaining information and providing statistical data for policy makers and the public has changed significantly in the past decade, raising questions about the fundamental survey paradigm that underlies federal statistics. New data sources provide opportunities to develop a new paradigm that can improve timeliness, geographic or subpopulation detail, and statistical efficiency. It also has the potential to reduce the costs of producing federal statistics. The panel's first report described federal statistical agencies' current paradigm, which relies heavily on sample surveys for producing national statistics, and challenges agencies are facing; the legal frameworks and mechanisms for protecting the privacy and confidentiality of statistical data and for providing researchers access to data, and challenges to those frameworks and mechanisms; and statistical agencies access to alternative sources of data. The panel recommended a new approach for federal statistical programs that would combine diverse data sources from government and private sector sources and the creation of a new entity that would provide the foundational elements needed for this new approach, including legal authority to access data and protect privacy. This second of the panel's two reports builds on the analysis, conclusions, and recommendations in the first one. This report assesses alternative methods for implementing a new approach that would combine diverse data sources from government and private sector sources, including describing statistical models for combining data from multiple sources; examining statistical and computer science approaches that foster privacy protections; evaluating frameworks for assessing the quality and utility of alternative data sources; and various models for implementing the recommended new entity. Together, the two reports offer ideas and recommendations to help federal statistical agencies examine and evaluate data from alternative sources and then combine them as appropriate to provide the country with more timely, actionable, and useful information for policy makers, businesses, and individuals.

The story of a formative year in 12-year-old Franny Chapman's life, and the life of a nation facing the threat of nuclear war. Franny Chapman just wants some peace. But that's hard to get when her best friend is feuding with her, her sister has disappeared, and her uncle is fighting an old war in his head. Her saintly younger brother is no help, and the cute boy across the street only complicates things. Worst of all, everyone is walking around just waiting for a bomb to fall. It's 1962, and it seems that the whole country is living in fear. When President Kennedy goes on television to say that Russia is sending nuclear missiles to Cuba, it only gets worse. Franny doesn't know how to deal with what's going on in the world -- no more than she knows how to deal with what's going on with her family and friends. But somehow she's got to make it through. Featuring a captivating story interspersed with footage from 1962, award-winning author Deborah Wiles has created a documentary novel that will put you right alongside Franny as she navigates a dangerous time in both her history and our history.

This book contains data on over 150 of the most commonly used herbal medicines, dietary supplements and nutraceuticals.

The book examines the evolution and current state of corporate social responsibility (CSR), using a five-stage maturity model: defensive, charitable, promotional, strategic and transformative CSR. The first four stages are dubbed CSR 1.0 and characterise most current CSR practice, while the fifth stage is named CSR 2.0 (also transformative or systemic CSR) and describes emergent and future CSR practices. Reasons are given why CSR 1.0 approaches have failed to have any significant impact on the most serious global social, environmental and ethical challenges. The emergent CSR 2.0 will then be explored in detail by elaborating on five principles underlying the new approach, including: creativity, scalability, responsiveness, glocality and circularity. A four-part DNA Model is also introduced, covering value creation, good governance, societal contribution and ecological integrity, which provides the basis for defining and measuring CSR 2.0. Finally, a 70-question CSR 2.0 self-assessment diagnostic tool developed by the author is presented, with sample data to show how the tool can be used for future research and practitioner application.

From two-time National Book Award finalist Deborah Wiles, the remarkable story of two cousins who must take a road trip across America in 1969 in order to let a teen know he's been drafted to fight in Vietnam. Full of photos, music, and figures of the time, this is the masterful story of what it's like to be young and American in troubled times. It's 1969.Molly is a girl who's not sure she can feel anything anymore, because life sometimes hurts way too much. Her brother Barry ran away after having a fight with their father over the war in Vietnam. Now Barry's been drafted into that war - and Molly's mother tells her she has to travel across the country in an old schoolbus to find Barry and bring him home.Norman is Molly's slightly older cousin, who drives the old schoolbus. He's a drummer who wants to find his own music out in the world - because then he might not be the "normal Norman" that he fears he's become. He's not sure about this trip across the country . . . but his own mother makes it clear he doesn't have a choice.Molly and Norman get on the bus - and end up seeing a lot more of America that they'd ever imagined. From protests and parades to roaring races and rock n' roll, the cousins make their way to Barry in San Francisco, not really knowing what they'll find when they get there.As she did in her other epic novels Countdown and Revolution, two-time National Book Award finalist Deborah Wiles takes the pulse of an era . . . and finds the multitude of heartbeats that lie beneath it.