From websites to mobile devices, cyberspace has revolutionized the lived experience of disability - frequently for better, but sometimes for worse. Paul Jaeger offers a sweeping examination of the complex and often contradictory relationships between people with disabilities and the Internet. Tracing the historical and legal evolution of the digital disability divide in the realms of education, work, social life, and culture, and also exploring avenues of policy reform and technology development, Jaeger connects individual experiences with the larger story of technology's promise and limitations for providing equal access online.

Background: Internet use is an integral part of everyday life in contemporary society, especially among young people. It is used to perform activities in everyday life by an increasing proportion of the population. However, knowledge about access to and use of the internet by adolescents and young adults with intellectual disabilities (ID) is scarce. More knowledge is needed about digital competencies and digital participation in their everyday lives. Aim: The overall aim of this thesis was to explore and describe internet access and use, and digital participation in everyday life among adolescents and young adults with intellectual disabilities. Designs and Methods: The thesis is based on results from three studies. In study I, the focus was on access to and use of the internet in the everyday settings of school/work, at home or during free time. Data was collected through observations, conversations, and follow-up interviews with 15 participants with ID, aged 13–24 years. The data was analysed using qualitative content analysis. In studies II and III, the design was cross-sectional and comparative, using national surveys on media and internet use from the Swedish Media Council, from which comparative data from reference groups could be gained. In study II, the national survey of adolescents on internet access and use was cognitively adapted for adolescents with intellectual disabilities, aged 13–20 years, in several steps. This made it accessible to a total selection of pupils from all the special schools in four diverse municipalities in two different regions of Sweden. In study III, the national survey of parents about opportunities and risks of internet use by their adolescents was used. The surveys were sent to a sample of n=318 adolescents with ID and their caregivers/parents. The responses were higher for the adolescents (n=114) than for the parents (n=99), and the response rate of the adolescents with ID was equivalent as that of the reference group, at 36% and 38% respectively. In study II, chi-square tests were used and, when necessary, Fisher’s exact test to analyse the data. In study III, analyses were carried out using Fisher’s exact test and logistic regression to control for confounding factors. Results: This thesis show that access to internet-enabled devices is lower for adolescents with ID than for the general population, except for tablets (study II). All internet activities, except playing games, are performed by fewer adolescents with ID compared to the reference group (study II) and the time spent on the internet activities is less (study III). Both environmental challenges and personal abilities present difficulties in internet access and use (study I) and affect digital participation for adolescents and young adults with ID. Furthermore, a significantly higher proportion of parents of adolescents with ID perceive opportunities associated with internet use and playing games, and a lower proportion perceive risks with negative consequences, or have concerns about online risks, compared with the reference group (study III). Significantly more parents of adolescents with ID state that their adolescent never uses smartphones or social media compared with the reference group. Strategies used to handle the digital environment and take part in internet activities were found and described, such as getting support from others, reducing the number of internet-enabled devices used and personalising them. Gaining access to internet content and performing internet activities was facilitated by picture-, word- and voice-based strategies, which were used by adolescents and young adults with both mild and moderate ID (study I). Conclusions: The conclusions are that the results show a lag in internet access and use and in digital participation by adolescents and young adults with ID. Adolescents and young adults with ID were accessing and using the internet in similar ways to the reference group, but to a lesser extent. The impact of the participants’ environment, together with their lack of certain abilities, make the development of digital competencies difficult for them. The result that parents of adolescents with ID perceive more opportunities and fewer risks associated with the internet provides new knowledge to support positive risk-taking in internet use and enable digital participation by adolescents and young adults with ID. Support can be developed in collaboration between the adolescent/young adult, their parents and teachers, and staff in community-based services and should involve physical, social and digital environmental adaptations. These can enable the development of digital competencies and minimise the lag in digital participation in everyday life, which is needed for participation in today’s digitalised society. Bakgrund till avhandlingen: Internetanvändning är en integrerad del av vardagen i dagens samhälle, särskilt bland ungdomar. Internet används för att utföra en mängd aktiviteter i vardagen av alltfler personer. Dock är kunskapen om tillgång till, samt användning av internet i vardagliga aktiviteter för ungdomar med intellektuell funktionsnedsättning (IF) bristfällig. Ökad kunskap behövs om digitala kompetenser och digital delaktighet i vardagen för ungdomar och unga vuxna med IF. Syftet med avhandlingen: Det övergripande syftet med denna avhandling var att utforska och beskriva tillgång till och användning av internet och digital delaktighet i vardagen bland ungdomar och unga vuxna med IF. Hur studierna genomfördes: Avhandlingen bygger på resultat från tre delstudier. I studie I samlades data in via observationer av och uppföljande intervjuer med 15 deltagare med IF, i åldern 13–24 år. Fokus låg på tillgång till och användning av internet i deras vardagliga miljöer: skola/arbete, hemma eller på fritiden. Data analyserades med kvalitativ innehållsanalys. I studie II och III var designen jämförande tvärsnittsstudier. Nationella enkäter från Statens Medieråd om medie- och internetanvändning användes där jämförande data från referensgrupper kunde erhållas. I studie II gjordes kognitiva anpassningar av den nationella enkäten om medie- och internetanvändning i flera steg för målgruppen ungdomar med IF i åldern 13–20 år. Anpassningen till en lättläst version av enkäten, med bildstöd för de som behövde det, gjorde den möjlig att skicka till ett totalurval av elever från alla särskolor i fyra olika kommuner i två olika regioner i Sverige. I studie III användes den nationella enkäten till föräldrar om möjligheter och risker med internet- och medieanvändning för deras ungdomar. Enkäterna skickades till ett urval av n = 318 ungdomar med IF och deras vårdgivare/förälder. Antalet svar var fler från ungdomarna (n = 114) jämfört med föräldrarna (n = 99), och svarsfrekvensen för ungdomar med IF var i paritet med referensgruppens, med 36% för ungdomar med IF, jämfört med 38% i referensgruppen. I studie II användes chi-två tester och vid behov Fisher’s exakta test, för analys av data. I studie III genomfördes analyser med Fisher’s exakta test och logistisk regression för att kontrollera för confounding faktorer dvs övriga faktorer som kan påverka. Resultaten som framkom i studierna: Resultaten av studierna visar att tillgången till enheter för internetanvändning är lägre för ungdomar med IF än för ungdomar generellt, med undantag för surfplattor (studie II). Alla internet-aktiviteter, utom att spela spel, utförs av en lägre andel ungdomar med IF jämfört med referensgruppen (studie II) och tiden som spenderas på internet-aktiviteterna är lägre för ungdomar med IF (studie III). Utmaningar i den omgivande miljön, såväl som personliga förmågor leder till svårigheter med internetuppkoppling och internetanvändning (studie I), och påverkar digital delaktighet för ungdomarna och de unga vuxna med IF. Möjligheter och risker med att använda internet visade att en signifikant högre andel föräldrar till ungdomar med IF uppfattar möjligheter förknippade med internetanvändning och att spela spel, och en lägre andel upplever risker med negativa konsekvenser, eller oroar sig för risker med internet jämfört med referensgruppen (studie III). Signifikant fler föräldrar till ungdomar med IF uppfattar dock att deras ungdomar aldrig använder smartphones och sociala medier jämfört med referensgruppen. Strategier, som ungdomar och unga vuxna med både lindrig och måttlig IF använder för att hantera den digitala miljön och delta i internet aktiviteter identifierades (studie I). Strategierna innebär; att få stöd från andra; att minska andelen enheter som används för internetanvändning och att främsta använda enheter som är utformade för/av person; samt att använda stödstrategier som är baserade på ord- bild- och röststöd för att kunna utföra internet-aktiviteter. Kunskapen som avhandlingen har bidragit med: Sammantaget visar resultaten en eftersläpning i tillgång till och användning av internet, liksom i digital delaktighet för ungdomar och unga vuxna med IF. Även om deltagarna har tillgång till och använder internet, är det i lägre utsträckning än referensgruppen. Faktorer i miljön tillsammans med deltagarnas personliga förmågor gör utvecklingen av digital kompetens svår för deltagarna. Resultatet att fler föräldrar till ungdomar med IF uppfattar möjligheter och färre uppfattar risker med internet är ny kunskap som kan stödja positivt risktagande i internetanvändning och möjliggöra digital delaktighet för ungdomar med IF. Stöd kan utvecklas i samarbete mellan ungdomar, deras föräldrar och personal, i både skola och kommunal omsorgsverksamhet, och involvera anpassningar av såväl fysisk, som social och digital miljö för utveckling av digitala kompetenser. Genom detta kan eftersläpningen i digital delaktighet i vardagen minimeras, vilket krävs för delaktighet i dagens digitaliserade samhälle

This edited collection brings together keynote articles from the journal Disability & Society to provide a comprehensive and though-provoking exploration of the place of technology in disabled people’s lives, documenting and analysing the growing impact of technology on disability and society over recent decades. The authors explore theoretical, empirical and moral dilemmas that arise with the changing relationship between technological change and the lives, aspirations and possibilities of disabled people. The volume is organised into three parts which consider early foundational work connecting disability and technology; key empirical studies related to the optimum use of technologies for independence and inclusion; and new moral and social dynamics thrown up by technological developments for disabled people’s lives.

“Disability rights activist Alice Wong brings tough conversations to the forefront of society with this anthology. It sheds light on the experience of life as an individual with disabilities, as told by none other than authors with these life experiences. It's an eye-opening collection that readers will revisit time and time again.” —Chicago Tribune One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people, just in time for the thirtieth anniversary of the Americans with Disabilities Act, From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

Disability and New Media examines how digital design is triggering disability when it could be a solution. Video and animation now play a prominent role in the World Wide Web and new types of protocols have been developed to accommodate this increasing complexity. However, as this has happened, the potential for individual users to control how the content is displayed has been diminished. Accessibility choices are often portrayed as merely technical decisions but they are highly political and betray a disturbing trend of ableist assumption that serve to exclude people with disability. It has been argued that the Internet will not be fully accessible until disability is considered a cultural identity in the same way that class, gender and sexuality are. Kent and Ellis build on this notion using more recent Web 2.0 phenomena, social networking sites, virtual worlds and file sharing. Many of the studies on disability and the web have focused on the early web, prior to the development of social networking applications such as Facebook, YouTube and Second Life. This book discusses an array of such applications that have grown within and alongside Web 2.0, and analyzes how they both prevent and embrace the inclusion of people with disability.

Disability rights advocates in the United Kingdom and the United States recently embraced new media technologies in unexpected and innovative ways. This book sheds light on this process of renewal and asks whether the digitalisation of disability rights advocacy can help re-configure political participation into a more inclusive experience for disabled Internet users, enhancing their stakes in democratic citizenship. Through the examination of social media content, Web link analysis, and interviews with leading figures in grassroots groups on both sides of the Atlantic, Filippo Trevisan reveals the profound impact that the Internet has had on disability advocacy in the wake of the austerity agenda that followed the 2008 global financial crisis. In Britain, a new, tech-savvy generation of young disabled self-advocates has emerged from this process. The role of social media platforms such as Facebook in helping politically inexperienced users make sense of complex policy changes through the use of personal stories is discussed also. In addition, this book explains why British disability advocates adopted more innovative and participatory strategies compared to their American counterparts when faced with similar policy crises. This book reviews the implications of this unexpected digital transformation for the structure of the disability rights movement, its leadership, and the opportunity for disabled citizens to participate fully in democratic politics vis-à-vis persisting Web access and accessibility barriers. An original perspective on the relationship between disability and the Internet, and an indispensable read for scholars wishing to contextualize and enrich their knowledge on digital disability rights campaigns vis-à-vis the broader ecology of policymaking.

Janet Abbate recounts the key players and technologies that allowed the Internet to develop; but her main focus is always on the social and cultural factors that influenced the Internet's design and use. Since the late 1960s the Internet has grown from a single experimental network serving a dozen sites in the United States to a network of networks linking millions of computers worldwide. In Inventing the Internet, Janet Abbate recounts the key players and technologies that allowed the Internet to develop; but her main focus is always on the social and cultural factors that influenced the Internets design and use. The story she unfolds is an often twisting tale of collaboration and conflict among a remarkable variety of players, including government and military agencies, computer scientists in academia and industry, graduate students, telecommunications companies, standards organizations, and network users. The story starts with the early networking breakthroughs formulated in Cold War think tanks and realized in the Defense Department's creation of the ARPANET. It ends with the emergence of the Internet and its rapid and seemingly chaotic growth. Abbate looks at how academic and military influences and attitudes shaped both networks; how the usual lines between producer and user of a technology were crossed with interesting and unique results; and how later users invented their own very successful applications, such as electronic mail and the World Wide Web. She concludes that such applications continue the trend of decentralized, user-driven development that has characterized the Internet's entire history and that the key to the Internet's success has been a commitment to flexibility and diversity, both in technical design and in organizational culture.

Media representation of and for the disabled has been recharged in recent years with the expansion of new media worldwide. Interactive digital communications -- such as the Interact, new varieties of voice and text telephones, and digital broadcasting -- have created a need for a more innovative understanding of new media and disability issues. This engaging analysis offers a global perspective on how people with disabilities are represented as users, consumers, viewers, or listeners of new media, by policymakers, corporations, programmers, and the disabled themselves.

In the early 1990s, people predicted the death of privacy, an end to the current concept of 'property,' a paperless society, 500 channels of high-definition interactive television, world peace, and the extinction of the human race after a takeover engineered by intelligent machines. Imagining the Internet zeroes in on predictions about the Internet's future and revisits past predictions—and how they turned out. It gives the history of communications in a nutshell, illustrating the serious impact of pervasive networks and how they will change our lives over the next century.

A History of the Internet and the Digital Future tells the story of the development of the Internet from the 1950s to the present and examines how the balance of power has shifted between the individual and the state in the areas of censorship, copyright infringement, intellectual freedom, and terrorism and warfare. Johnny Ryan explains how the Internet has revolutionized political campaigns; how the development of the World Wide Web enfranchised a new online population of assertive, niche consumers; and how the dot-com bust taught smarter firms to capitalize on the power of digital artisans. From the government-controlled systems of the Cold War to today’s move towards cloud computing, user-driven content, and the new global commons, this book reveals the trends that are shaping the businesses, politics, and media of the digital future.