This ground-breaking study examines visual and literary responses to, and representations of, illness, dying and death from the perspective of the chronically ill, their families and carers, medics, artists, photographers, authors, and academics. It encourages a re-examination of cultural taboos and visual and literary practices that engage with illness and death. Focusing upon a wide range of creative and critical engagements, this book makes a significant contribution to the medical humanities via its exploration of medical practice, literature and film, digital media studies, graphic design, and both contemporary and historical attitudes towards illness, death (including infant mortality), mourning and bereavement. For some, the experience of illness provokes feelings of exile, crisis or social critique, whilst for others it instigates utopian discourses predicated upon personal reflection, communication or connectivity, wherein the “self” is redefined beyond the parameters and constraints of the “body”.

Our personalities and our identities are intimately bound up with the stories that we tell to organize and to make sense of our lives. To understand the human meaning of illness, we therefore must turn to the stories we tell about illness, suffering, and medical care. Stories of Sickness explores the many dimensions of what illness means to the sufferers and to those around them, drawing on depictions of illness in great works of literature and in nonfiction accounts. The exploration is primarily philosophical but incorporates approaches from literature and from the medical social sciences. When it was first published in 1987, Stories of Sickness helped to inaugurate a renewed interest in the importance of narrative studies in health care. For the Second Edition the text has been thoroughly revised and significantly expanded. Four almost entirely new chapters have been added on the nature, complexities, and rigor of narrative ethics and how it is carried out. There is also an additional chapter on maladaptive ways of being sick that deals in greater depth with disability issues. Health care professionals, students of medicine and bioethics, and ordinary people coping with illness, no less than scholars in the health care humanities and social sciences, will find much value in this volume. Unique Features: *Philosophically sophisticated yet clearly written and easily accessible *Interdisciplinary approach--combines philosophy, literature, health care, social sciences *Contains many fascinating stories and vignettes of illness drawn from both fiction and nonfiction *A new and comprehensive overview of the "hot topic" of narrative ethics in medicine and health care

Virginia Woolf’s daring essay on how illness transforms our perception, plus an essay by Woolf’s mother from the caregiver’s perspective: “Revelatory.” —Booklist This new publication of “On Being Ill” with “Notes from Sick Rooms” presents Virginia Woolf and her mother, Julia Stephen, in textual conversation for the first time in literary history. In the poignant and humorous essay “On Being Ill,” Woolf observes that though illness is part of every human being’s experience, it is not celebrated as a subject of great literature in the way that love and war are embraced by writers and readers. We must, Woolf says, invent a new language to describe pain. Illness, she observes, enhances our perceptions and reduces self-consciousness; it is “the great confessional.” Woolf discusses the taboos associated with illness, and she explores how it changes our relationship to the world around us. “Notes from Sick Rooms,” meanwhile, addresses illness from the caregiver’s perspective. With clarity, humor, and pathos, Julia Stephen offers concrete information that remains useful to nurses and caregivers today. This edition also includes an introduction to “Notes from Sick Rooms” by Mark Hussey, founding editor of Woolf Studies Annual, and a poignant afterword by Rita Charon, MD, founder of the field of Narrative Medicine. In addition, Hermione Lee’s brilliant introduction to “On Being Ill” offers a superb overview of Woolf’s life and writing. “Woolf’s inquiry into illness and its impact on the mind is paired with her mother’s observations about caring for the body. Julia Stephen . . . had no professional training but took to heart Florence Nightingale’s precept that every woman is a nurse and emulated Nightingale’s best-selling Notes on Nursing with her own “Notes from Sick Rooms.” In this long-overlooked, precise, and piquant little manual, Stephen is compassionate and ironic, observing that everyone deserves to be tenderly nursed while addressing the small evil of crumbs in bed. This unprecedented literary reunion of mother and daughter is stunning on many fronts, but physician and literary scholar Rita Charon focuses on the essentials in her astute afterword, writing that Woolf’s perspective as a patient and Stephen’s as a nurse together illuminate the goal of care—to listen, to recognize, to imagine, to honor.” —Booklist “Woolf and Stephen will certainly change the way readers think of illness.” —Publishers Weekly

This book seeks to explain how consumption - a horrible disease - came to be the glamorous and artistic Romantic malady. It tries to explain the disparity between literary myth and bodily reality, by examining literature and medicine from the Renaissance to the late Victorian period, covering a wide range of authors and characters.

"In this penetrating analysis of the social attitudes toward various major illnesses - chiefly tuberculosis, the scourge of the 19th century, and cancer, the terror of our own - Susan Sontag demonstrates that "illness is not a metaphor" and shows why "the healthiest way of being ill is one purified of metaphoric thinking." Once tuberculosis was identified as a bacterial infection, it ceased to be a symbol of a romantic fading away or of a sensitive or artistic temperament, and it could be treated and cured. Similarly, we must today cease to think of cancer as a mark of doom, a punishment or a sign of a repressed personality, and recognize it for what it is: one disease among many and often receptive to treatment." -- from back cover.

Challenging traditional approaches to medical history, Disease in the History of Modern Latin America advances understandings of disease as a social and cultural construction in Latin America. This innovative collection provides a vivid look at the latest research in the cultural history of medicine through insightful essays about how disease—whether it be cholera or aids, leprosy or mental illness—was experienced and managed in different Latin American countries and regions, at different times from the late nineteenth century to the present. Based on the idea that the meanings of sickness—and health—are contestable and subject to controversy, Disease in the History of Modern Latin America displays the richness of an interdisciplinary approach to social and cultural history. Examining diseases in Mexico, Brazil, Argentina, Colombia, Peru, and Bolivia, the contributors explore the production of scientific knowledge, literary metaphors for illness, domestic public health efforts, and initiatives shaped by the agendas of international agencies. They also analyze the connections between ideas of sexuality, disease, nation, and modernity; the instrumental role of certain illnesses in state-building processes; welfare efforts sponsored by the state and led by the medical professions; and the boundaries between individual and state responsibilities regarding sickness and health. Diego Armus’s introduction contextualizes the essays within the history of medicine, the history of public health, and the sociocultural history of disease. Contributors. Diego Armus, Anne-Emanuelle Birn, Kathleen Elaine Bliss, Ann S. Blum, Marilia Coutinho, Marcus Cueto, Patrick Larvie, Gabriela Nouzeilles, Diana Obregón, Nancy Lays Stepan, Ann Zulawski

A New York Times bestseller/Washington Post Notable Book of 2017/NPR Best Books of 2017/Wall Street Journal Best Books of 2017 "This book will serve as the definitive guide to the past and future of health care in America.”—Siddhartha Mukherjee, Pulitzer Prize-winning author of The Emperor of All Maladies and The Gene At a moment of drastic political upheaval, An American Sickness is a shocking investigation into our dysfunctional healthcare system - and offers practical solutions to its myriad problems. In these troubled times, perhaps no institution has unraveled more quickly and more completely than American medicine. In only a few decades, the medical system has been overrun by organizations seeking to exploit for profit the trust that vulnerable and sick Americans place in their healthcare. Our politicians have proven themselves either unwilling or incapable of reining in the increasingly outrageous costs faced by patients, and market-based solutions only seem to funnel larger and larger sums of our money into the hands of corporations. Impossibly high insurance premiums and inexplicably large bills have become facts of life; fatalism has set in. Very quickly Americans have been made to accept paying more for less. How did things get so bad so fast? Breaking down this monolithic business into the individual industries—the hospitals, doctors, insurance companies, and drug manufacturers—that together constitute our healthcare system, Rosenthal exposes the recent evolution of American medicine as never before. How did healthcare, the caring endeavor, become healthcare, the highly profitable industry? Hospital systems, which are managed by business executives, behave like predatory lenders, hounding patients and seizing their homes. Research charities are in bed with big pharmaceutical companies, which surreptitiously profit from the donations made by working people. Patients receive bills in code, from entrepreneurial doctors they never even saw. The system is in tatters, but we can fight back. Dr. Elisabeth Rosenthal doesn't just explain the symptoms, she diagnoses and treats the disease itself. In clear and practical terms, she spells out exactly how to decode medical doublespeak, avoid the pitfalls of the pharmaceuticals racket, and get the care you and your family deserve. She takes you inside the doctor-patient relationship and to hospital C-suites, explaining step-by-step the workings of a system badly lacking transparency. This is about what we can do, as individual patients, both to navigate the maze that is American healthcare and also to demand far-reaching reform. An American Sickness is the frontline defense against a healthcare system that no longer has our well-being at heart.

WINNER OF THE 2020 PULITZER PRIZE IN GENERAL NONFICTION "The Undying is a startling, urgent intervention in our discourses about sickness and health, art and science, language and literature, and mortality and death. In dissecting what she terms 'the ideological regime of cancer,' Anne Boyer has produced a profound and unforgettable document on the experience of life itself." —Sally Rooney, author of Normal People "Anne Boyer’s radically unsentimental account of cancer and the 'carcinogenosphere' obliterates cliche. By demonstrating how her utterly specific experience is also irreducibly social, she opens up new spaces for thinking and feeling together. The Undying is an outraged, beautiful, and brilliant work of embodied critique." —Ben Lerner, author of The Topeka School A week after her forty-first birthday, the acclaimed poet Anne Boyer was diagnosed with highly aggressive triple-negative breast cancer. For a single mother living paycheck to paycheck who had always been the caregiver rather than the one needing care, the catastrophic illness was both a crisis and an initiation into new ideas about mortality and the gendered politics of illness. A twenty-first-century Illness as Metaphor, as well as a harrowing memoir of survival, The Undying explores the experience of illness as mediated by digital screens, weaving in ancient Roman dream diarists, cancer hoaxers and fetishists, cancer vloggers, corporate lies, John Donne, pro-pain ”dolorists,” the ecological costs of chemotherapy, and the many little murders of capitalism. It excoriates the pharmaceutical industry and the bland hypocrisies of ”pink ribbon culture” while also diving into the long literary line of women writing about their own illnesses and ongoing deaths: Audre Lorde, Kathy Acker, Susan Sontag, and others. A genre-bending memoir in the tradition of The Argonauts, The Undying will break your heart, make you angry enough to spit, and show you contemporary America as a thing both desperately ill and occasionally, perversely glorious. Includes black-and-white illustrations

Thoroughly revised and expanded for a new generation of readers, this classic guide to enjoying literature to its fullest—a lively, enlightening, and entertaining introduction to a diverse range of writing and literary devices that enrich these works, including symbols, themes, and contexts—teaches you how to make your everyday reading experience richer and more rewarding. While books can be enjoyed for their basic stories, there are often deeper literary meanings beneath the surface. How to Read Literature Like a Professor helps us to discover those hidden truths by looking at literature with the practiced analytical eye—and the literary codes—of a college professor. What does it mean when a protagonist is traveling along a dusty road? When he hands a drink to his companion? When he’s drenched in a sudden rain shower? Thomas C. Foster provides answers to these questions as he explores every aspect of fiction, from major themes to literary models, narrative devices, and form. Offering a broad overview of literature—a world where a road leads to a quest, a shared meal may signify a communion, and rain, whether cleansing or destructive, is never just a shower—he shows us how to make our reading experience more intellectually satisfying and fun. The world, and curricula, have changed. This third edition has been thoroughly revised to reflect those changes, and features new chapters, a new preface and epilogue, as well as fresh teaching points Foster has developed over the past decade. Foster updates the books he discusses to include more diverse, inclusive, and modern works, such as Angie Thomas’s The Hate U Give; Emily St. John Mandel’s Station Eleven; Neil Gaiman’s Neverwhere; Elizabeth Acevedo’s The Poet X; Helen Oyeyemi's Mr. Fox and Boy, Snow, Bird; Sandra Cisneros’s The House on Mango Street; Zora Neale Hurston’s Their Eyes Were Watching God; Maggie O’Farrell’s Hamnet; Madeline Miller’s Circe; Pat Barker’s The Silence of the Girls; and Tahereh Mafi’s A Very Large Expanse of Sea.